Covid-19 Resources for People with ME

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Category Archives: United States

National Disability Voter Registration Week

National Disability Voter Registration WeekJuly 13-17, 2020 #MEAction is excited to participate in National Disability Voter Registration Week! Let’s get people with ME and all people with disabilities registered to vote, educated about this year’s election, and prepared to cast our ballots!We have gathered resources to help make it as ...

Dr. Anthony Fauci says that post-covid syndrome “is highly suggestive of” myalgic encephalomyelitis

During an International AIDS Society Covid-19 press conference held July 9th, Dr. Anthony Fauci (Director of the National Institute of Allergy and Infectious Diseases and member of the White House Coronavirus Task Force) answered a question posed by Terri L. Wilder, who is the #MEAction New York leader, journalist for ...

ADA 30th Anniversary–Stories Wanted

The 30th of the anniversary of the American Disability Act (ADA) is fast approaching--July 26th. As a way to celebrate this momentous occasion, we are looking to share stories of how the ADA has positively impacted the lives of people with ME.We want to honor those who fought hard to ...

An Interview with JD Davids: Lessons from an Illder (Chronically Ill Elder) on Pride, activism, and accessibility

JD Davids holding a protest sign that reads ACT UP and Occupy Wall Street End AIDS. JD Davids speaking into a microphone at a protest. JD Davids is a writer, an advocate and an #MEAction Board member. He has more than 25 years of experience in health activism, social movements, ...

#MEAction Supports Health Care at Home Act

#MEAction is excited to announce our support of the Health Care at Home Act, which increases telemedicine opportunities during the pandemic. Telemedicine enables people with myalgic encephalomyelitis (ME) to access their healthcare professionals without leaving home, which can mean the difference between being able to access a doctor or not ...

Accessible Ways for People with ME to Get Involved in Racial Justice

Accessible Ways that People with ME can get Involved in Racial Justice#MEAction has always focused on empowering and supporting our community. We know that many people with ME are wanting to show support for racial justice and it is often difficult to know how to engage from home. Here are ...
The text reads Black Lives Matter

Black Lives Matter.

George Floyd. Breonna Taylor. Ahmaud Arbery. Tony McDade. There is so much pain, suffering, grief, and anger across the United States and around the world. As healthcare activists and advocates, we have seen time and time again that Black individuals face discrimination not just in their doctors’ offices but in ...

We Are Essential Campaign

#MEAction is going to embark on a four week campaign, #WeAreEssential, asking Congress to recognize that the disability/chronic illness community is ESSENTIAL and must be included in the next Covid-19 packages ...

Postcards to Doctors Featured Artist: Emily Lawton

We are so excited that the Postcards to Doctors Initiative sent more than 6,000 postcards to physicians across the United States! We’d like to take this opportunity to recognize one of #MEAction’s Postcards to Doctors amazing artists, Emily Lawton. After she was diagnosed with ME at the age of fifteen, ...

Enrolling studies: Internet-Based Participation

What: Researchers at Southern Connecticut State University are currently enrolling individuals in a study that will examine an intervention app for people living with ME/CFS. This app monitors daily perceived and expended energy and fatigue levels. Participants will be asked to complete an online survey about their health history, ME/CFS ...