×

Category Archives: United States

Make yourself Heard before U.S. Health Officials – Submit your Comment to CFSAC by June 13

/ by / 3 Comments
You showed up for #MillionsMissing, now is the time to show up before our federal agencies to demand that they take urgent and strategic action for people with Myalgic Encephalomyelitis. The Chronic Fatigue Syndrome Advisory Committee (CFSAC) will hold its bi-annual meeting on June 20th and 21st, and we need ...

Victory for ME Disability Claim – U.S. Court Upholds Plaintiff’s Lawsuit After Being Denied Disability

/ by / 6 Comments
Former Washington Post science reporter, Brian Vastag, won a federal lawsuit against Prudential Insurance after the insurance company dropped his short-term disability benefits and denied his bid for long-term ones. Vastag’s lawyers said that the ruling should make it harder for insurers to deny benefits to similar cases in the future ...

U.S. Votes to Track ME/CFS on BRFSS Survey

/ by / 5 Comments
Back in March, we urged you to take action and inform your state health officials and departments to begin tracking ME/CFS as part of the their annually-conducted Behavioral Risk Factor Surveillance System (BRFSS). Many chronic health conditions are tracked using this system.  State health departments use the data collected to plan health ...

Thousands sign letter to be delivered to Francis Collins

/ by / 3 Comments
On May 24th, 2018, we delivered this 580-page LETTER to Francis Collins, with over 7,000 signatures, photos, and personal comments. We are demanding: A Diagnostic Test, Clinical Trials, and Treatments We asked Francis Collins to meet with us, and we need answers soon. We also sent this video plea to Francis Collins, demanding answers. (Warning: This ...

Victory for #MEAction NY Activists: State Publishes Webpage about ME

/ by / 1 Comment
The New York State Department of Health has recently established a new webpage about Myalgic Encephalomyelitis (ME) on its website, thanks to the hard work of #MEAction activists. New York is one of only three states in the U.S. that has a page on ME. (Illinois and Wisconsin have some ...

Open Medicine Foundation Announces Harvard Collaborative Research Center

/ by / 2 Comments
Today, the Open Medicine Foundation announced that it had funded a new ME/CFS Collaborative Research Center at Harvard under Ron Tompkins and Wenzhong Xiao, to the tune of $1.8 million dollars. The Center will include with Massachusetts General Hospital (MGH), Brigham and Women’s Hospital, and Beth Israel Deaconess Medical Center. There are ...

The NIH Plan for ME is Dismal

/ by / 5 Comments
Occupy M.E. describes the NIH's current plan to address the crisis of Myalgic Encephalomyelitis as "do a little and wait." Blogger Jennie Spotila describes the agency's plan, which was found buried in the NIH 2019 budget request sent to Congress, as follows: NIH is going to wait for the new Collaborative ...

U.S. Congress Introduces Resolution for ME

/ by / 5 Comments
Yesterday, the U.S. Congress introduced a resolution in the Senate to show support for research and medical education for Myalgic Encephalomyelitis (ME) ...

The Global Impact of #MillionsMissing

/ by / 0 Comment
The impact of #MillionsMissing 2018 was phenomenal. Protestors took to the streets in 100 countries across the world with demonstrations taking place in North America, South America, Europe, the United Kingdom, South Africa and Asia. Along with people taking action from home, there was a total of 300 visibility actions. More ...

OMF shares a Patient’s Reflection on UNREST

/ by / 1 Comment
This anonymous patient was truly moved by viewing Unrest and is sharing this personal reflection to encourage action ...