Category: Congress

Holiday Win: 42 Members of Congress Sign on to Support People with ME/CFS

  Thanks to another strong turnout from the ME/CFS community, 14 Senators and 28 Congressional Representatives joined together to sign this bipartisan letter to the U.S. Department of Health and Human Services (HHS) in support of people with ME/CFS. The bicameral letter was sponsored by Senator Ed Markey (MA) in the Senate and Congresswoman Anna

Read More »

Advocacy Round-up – A Season of Protest and Petition

The #MEAction community has dug in deep this fall to undertake the incredibly important work – and heavy lifting – of ensuring that our health agencies create guidelines that will improve the lives of people with ME. We are holding our government officials accountable for their decisions that affect our daily lives. We continue to

Read More »

Ten Organizations Ask Congress to Create Legislation for ME/CFS

On Friday, November 2nd, #MEAction, the Solve ME/CFS Initiative, and eight other ME/CFS organizations sent a letter to our champions in the House of Representatives – Representatives Eshoo (CA18),  Lofgren (CA19), McGovern (MA02), and Raskin (MD08) –  requesting that they create legislation for myalgic encephalomyelitis / chronic fatigue syndrome (ME/CFS). To our knowledge, this is

Read More »

#MEAction Welcomes U.S. Advocacy Manager

We at #MEAction are so excited to welcome Erin Roediger as our new U.S. Advocacy Manager! We are thrilled that with Erin’s wealth of healthcare advocacy, volunteer coordination, and electoral campaign experience, we will be able to expand our congressional outreach program in concert with our partner organizations – the Solve ME/CFS Initiative and the

Read More »

Learn how to Lobby Congress: Read our Toolkit

Since its inception three years ago, the #MEAction Congressional team has worked hard to build relationships with members of Congress in order to gain their support for investing in biomedical research and clinical care for myalgic encephalomyelitis. Now, the Congress team has created a comprehensive manual for activists who want to gain more knowledge about

Read More »

U.S. House of Rep. Supports More Funding for NIH

We applaud the U.S. House of Representatives for its support to increase funding for the National Institutes of Health (NIH). Last week, the House Appropriations Committee released its draft funding bill that raises spending for the NIH by $1.25 billion (3 percent) to $38.3 billion in 2019. Year-by-year, the NIH budget increases, and, year-by-year, the NIH fails to address

Read More »

Ten Percent of U.S. House Representatives Show Support for ME

Yes, you read right!  Thanks to the incredible community outreach over the course of just a few days, TEN percent of the House of Representatives signed a letter to the chairs of the House Appropriations Committee advocating for ME/CFS. Forty-four members from twenty states and the District of Columbia signed on – thirteen more than

Read More »

21st Century Cures Act Passes House with Overwhelming Bipartisan Support

21st Century Cures Act Passes House with Overwhelming Bipartisan Support ME/CFS advocates have been eagerly awaiting passage of the 21st Century Cures Act since it was initially introduced in 2013, given it was originally written to increase NIH funding and fast-track research and treatment development. On Wednesday, November 30, a compromise bill with modified provisions from the original 21st Century Cures Act swept the House… READ MORE

Read More »
Scroll to Top