We have a golden opportunity to secure substantial funds to address the clinical care crisis in ME/CFS and Long COVID, but your help is needed NOW. #MEAction and the Patient-Led Research Collaborative have put together a proposal that calls for the State of California to appropriate $120 million for Centers of Excellence in Long COVID along
#MEAction CA’s advocacy work resulted in getting an article & interview published in Medical Board of CA’s newsletter!
As we enter into 2020, we want to take a moment to recognize all the hard work our State Chapters accomplished in 2019 for myalgic encephalomyelitis (ME). The tenacity and commitment of our state leaders and members is awe-inspiring. #MEAction Colorado introduced a resolution for ME before the Rotary Club that got passed locally and
#MEAction is fighting to end the crisis of myalgic encephalomyelitis (ME) and create an equitable world for people with ME. We know that we must fight at every level to make this happen. #MEAction U.S. State Chapters are dug in and working to change the landscape of ME in their home states, and create a
California advocates for myalgic encephalomyelitis (ME) are fighting for the state to institute a statewide Centers of Excellence program that would train ME specialists, provide state-of-the-art treatment for people with ME, and undertake advanced research. Activists across the state have already met with 24 state legislators to discuss this initiative. Activist and parent of a
Researchers at Stanford University have discovered that the brains of patients with ME display abnormalities in the white matter within the right hemisphere. It is crucial to further the research involved with these findings as they may lead to more definitive diagnoses of ME. Who: Dr. Montoya and Dr. Zeineh at the Stanford School of Medicine When: Ongoing What:
This study is interested in ME/CFS patients who would classify themselves in the severe category (mostly bedbound, could be housebound). Dr. Montoya and Dr. Michelle James, a neuroradiologist at Stanford University, aim to investigate the inflammatory process in the brain of ME/CFS patients. They believe that this study could lead to improvements in our understanding of the disease
The Stanford Genome Technology Center will host the Second Annual Community Symposium on the Molecular Basis of ME/CFS, sponsored by the Open Medicine Foundation, at Stanford University on Saturday, Sept. 29. The following researchers will be presenting: Ronald W. Davis, PhD, Maureen Hanson, PhD, Jonas Bergquist, MD, PhD, Wenzhong Xiao, PhD, Alain Moreau, PhD, Ronald G.
Researchers from Stanford University aim to evaluate the endocrine system in female ME patients to learn how the hypothalamic-pituitary-adrenall (HPA) axis functions in ME/CFS patients. They will do this by evaluating antibodies in 60 ME/CFS cases and through basic endocrine testing. Who: Dr. Montoya at Stanford University is collaborating with Dr. De Bellis at Secondary University at Naples to
Brain tissue banks are able to provide ME researchers with samples to keep their research moving forward; Dr. Montoya and Dr. Plowey are accepting brain tissue from ME patients postmortem. Studying the brain tissue of ME patients is an important part of understanding more about the disease overall. Who: Dr. Montoya and Dr. Plowey at Stanford