#MEAction & Mayo ME/CFS Algorithm is Live!
April 26, 2023
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Together, we built a new ME/CFS diagnostic & treatment algorithm for Mayo Clinic– including info on severe ME.
Category: All News
ME & Long COVID patients need telemedicine prescribing flexibility
March 31, 2023
3 Comments
DEA should amend its proposed rule to ensure access to care
NIH Must Not Overlook Evidence of Exercise Harm
March 22, 2023
4 Comments
Long COVID Exercise study must address safety, efficacy concerns.
MEAction questions Long COVID exercise study’s safety, efficacy
March 6, 2023
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Calls for immediate public release of RECOVER’s clinical trial design
Woman with Severe ME and EDS starving to death in NHS hospital
February 22, 2023
12 Comments
UPDATE: We want to provide a brief update on Sami Berry’s case and what she needs help with now. The situation in hospital reached the point that Sami decided she had to self-discharge to try and stay alive. She is at home with a Percutaneous Endoscopic Jejunostomy (PEJ ) tube but she needs treatment with
Let’s Look at #MEAction’s Top Hits from 2022
January 9, 2023
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As we ring in the new year, it is a wonderful time to reflect on how much #MEAction accomplished in a very busy and exciting 2022! There are so many wins to share, so we decided to narrow down the list to our TOP HITS! ——————- #MILLIONSMISSING 2022: * Bringing together the powerful Virtual #MillionsMissing
I live at the intersection of pandemics: HIV, ME/CFS & Long COVID
December 8, 2022
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Reflections on embodying intersecting identities of disease and disability
My Truth, Our Trauma, & A Call to Keep Fighting
December 7, 2022
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Reflections from the World AIDS Day White House Protest
Take Action Virtually with our White House Protest
November 30, 2022
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AIDS, ME/CFS & Long COVID activists demand Biden, Congress fund pandemic plans
On World AIDS Day, We’re Taking Action at the White House
November 23, 2022
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White House Must Confront Global Health Nightmare of Colliding Pandemics