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Category: Advocacy

Group of ME Action volunteers standing outside the Scottish Parliament at Millions Missing 2022, wearing red ME Action t-shirts and smiling at the camera. Two in the middle are holding a large sign which says Millions Missing spaced in between outlines of people.

#MEAction Scotland’s plans for #MillionsMissing

April 20, 2023 No Comments

This year, #MEAction Scotland will be doing smaller, more focused activities for #MillionsMissing than previous years, and we are asking the community to take part in the digital campaign, rather than joining us in person. We also need people to email their MSPs, which there is information about below. Volunteers are planning two main activities

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2023 #MillionsMissing in white and black on a red background. The words, Join the UK and Scotland Digital Campaign in black marker font towards the bottom. The #MEAction UK and Scotland logos are the bottom left and right hand corners.

Join the UK and Scotland’s digital campaign this #MillionsMissing

April 14, 2023 4 Comments

May is nearly here and that means so is ME Awareness Week and #MillionsMissing! This year, #MEAction Scotland and #MEAction UK are returning to the central theme of #MillionsMissing – drawing attention to the people missing from their previous lives and wider society because of ME. Most people don’t understand how widespread ME is, or

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A laptop sitting on a desk. In the background, you can see a cup and saucer, some post-it notes and a folder. On the screen is the Scottish Government's website, with a large title that says 'Scottish Good Practice Statement on Myalgic Encephalomyelitis / Chronic Fatigue Syndrome (ME-CFS).' A red banner is at the bottom of the photo with white writing which says, '#MEAction Scotland responds to the updated Scottish Good Practice Statement on ME.’ The ME Action Scotland logo is in the top left corner.

#MEAction Scotland responds to the updated Scottish Good Practice Statement

March 21, 2023 No Comments

The Scottish Government published the updated Scottish Good Practice Statement (SGPS) on ME-CFS on 28th February 2023.  The decision to update the Scottish Good Practice Statement, originally published in 2010, was a result of the Scottish stakeholder review of the 2021 NICE guideline on ME/CFS, and its recommendations for implementing the guideline in Scotland. The

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#MEAction logo is in white in the top left corner and the words Colorado State Chapter are in white laying across an image of snow capped mountains and pine trees. There is a bottom section of the image that is a green box with the words Working-With-Governors-Office-to-Create A New Senior Policy Advisor Role-Leading to Statewide Report on Long COVID

#MEAction Colorado Works With Governor’s Office to Create A New Senior Policy Advisor Role on Long COVID and Post Viral Infection Planning–Leading to Statewide Report on Long COVID

February 24, 2023 No Comments

#MEAction Colorado’s first legislative effort in Colorado began with an ME/CFS day declaration in the Colorado Legislature on February 25, 2020. Representative Alex Valdez read into the legislative record a proclamation about the presence of and deleterious effects of ME in Colorado. This effort was relatively easy to accomplish and consisted of finding a representative

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A screenshot of Sue Webber MSP opening the debate on ME in the Scottish Parliament. Sue is a white woman with blonde hair. She’s wearing a flowery blouse, a dark jacket and a chunky necklace. The desks of the Debating Chamber are around her, and some other MSPs can be partially seen. At the bottom of the image, the words The Scottish Parliament debate on ME are written in black over a red box. The #MEAction Scotland logo is at the bottom, right hand corner.

The Scottish Parliament debate on ME

February 14, 2023 No Comments

Article summary: Sue Webber MSP’s Member’s Business debate took place in the Scottish Parliament on Thursday 2nd February, 2023. It was a successful debate with a good turnout of MSPs from across all parties, and it had to be extended due to the amount of MSPs who wanted to speak. There were calls on the

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DHSC released a new progress Report

January 19, 2023 No Comments

DHSC has released an update on the progress of the work underway to support the development of a Delivery Plan on Myalgic Encephalomyelitis / Chronic Fatigue. This is dated from December 2022.You can read the full report using the link below: DHSC Information Bulletin Dec 22 FINAL MECFS updated

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