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Author: #MEAction

rectangle image with the words Join the fight for medicaid & telehealth in the top left corner with a airhorn in the bottom right corner. On the sides are stripes of blue and red. the meaction logo in the bottom left hand corner.

Join the Fight for Medicaid & Telehealth

March 26, 2025 No Comments

We want to provide you with an update about where we stand with the federal administration massively cutting Medicaid and threatening to get rid of Telehealth extensions. We are so grateful for the actions that you have taken with us to fight to protect Medicaid and Telehealth but we still have a long road ahead

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burnt red rectangle image. with a red flashing siren in the top left corner. The words, Closing: Office of Long COVID! #MEAction logo in the bottom right hand corner.

Office of Long COVID at HHS Closing

March 25, 2025 2 Comments

Ian Simon, the head of the Long COVID Office at Department of Health and Human Services (HHS), released the following statement to coworkers: Dear Colleagues, We are writing to let you know that the Office of Long COVID Research and Practice will be closing as part of the administration’s reorganization coming this week. We are

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Red graphic with text: "Trump Admin Cuts Funding for ME/CFS Collaborative Research Center at Columbia University" and a #MEAction logo.

Trump Cuts Funding for ME/CFS Centers at Columbia University

March 20, 2025 2 Comments

We are writing to you with an urgent call to action. The Trump administration has cut funding for the Center for Solutions for ME/CFS at Columbia University as part of a broader $400 million funding termination at the university. This devastating decision includes the loss of NIH funding for one of the nation’s few Collaborative Research

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sky blue square image with a collection of cookies lining the bottom 1/3 of the image. At the top of the image is the Baby Deer Bakery Logo which features a cartoon drawn image of a deer face. the words, volunteer's bakery spreads ME awareness + raises funds. The meaction logo is the bottom right hand corner.

Volunteer’s Bakery Spreads ME Awareness + Raises Funds

March 19, 2025 1 Comment

#MEAction Georgia volunteer, Cory Anderson-Sweeney, uses her Baby Deer Bakery to spread awareness about ME and her Cookie of the Month Club to help raise funds for #MEAction. We were inspired by her journey and we hope you will enjoy the scrumptious look into her story in her own words. Here’s the delicious morsel: When

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Pillow Crafters Showcase: Healing Themes—The Wildflower Process

March 6, 2025 No Comments

 #MEAction invites you to experience Pillow Crafters Showcase: Healing Themes—The Wildflower Process on Wednesday, March 26th, 2025 at 11am PT/2pm ET/6pm GMT, a showcase of resilience, creativity, and the many ways we reclaim our identities after an ME/CFS diagnosis. RSVP Here Through the symbolism of a wildflower, participants have explored themes such as grief, transformation,

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