Author: #MEAction

#MEAction: Letter to the Editor

TAKE ACTION TO GET THE PRESS WE DESERVE

Over the past year #MEAction has been focusing on reaching out to the national press to make sure journalists and medical professionals are educated about ME and can provide the correct context when writing articles about long COVID and long haulers. Our efforts have paid off and we continue to receive coverage and new opportunities

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Read Pieces of Work from the Writing from Our ME Lives Group

read Pieces from Writing from our ME Lives Group

#MEAction is excited to share two pieces of work from the Writing From Our ME Lives writing group. We will be sharing more work in the coming days! Hope you enjoy their work.  If you are interested in joining the next Writing From Our ME Lives meeting, they meet on every Thursday at 11am PST.

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2021 MillionsMissing announcement for the week of May 12th

Get ready for #MillionsMissing

We are gearing up for #MillionsMissing 2021! This year will be a week long event, from May 9 to 15, of action and activities to strengthen our community, and fight for recognition, research and medical education for myalgic encephalomyelitis (ME). Check out our website for the #MillionsMissing timeline of events, grab your t-shirt, and plan a local event!  We

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Headshots of panel with wording to the side about date and time.

Press Telebriefing: long COVID & ME

When: Thursday, March 25, 12 p.m. PT / 3 p.m. ET  Contact: Adriane Tillman, #MEAction, [email protected]  MEDIA Advisory: A Panel of Experts to Explain How Long COVID Intersects with ME/CFS    On March 25, #MEAction will host a telepresser featuring a panel of experts who are uniquely positioned to speak to how long COVID is

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Investigating the impact of Covid-19 on ME – Survey

Please help #MEAction UK and #MEAction Scotland by taking part in this survey to find out the effect that Covid-19 has on people with ME. Take the survey We are working in collaboration with Action for ME to gather evidence on the impact of Covid-19 on our community. We have heard many stories from people

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Solve M.E.’s Advocacy Week and the Long Covid Alliance

Solve M.E. Advocacy week will be from Sunday, April 18th, 2021 to Saturday, April 24th, 2021. As a core member of the Long Covid Alliance and a partner on Advocacy Day, #MEAction would like to encourage you to participate in this important event if you are able. The keystone event is Advocacy Day, on Tuesday,

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Collage of the 5 winning postcards with Join our 2021 campaign written on the side

Postcards to Doctors Continues – Sponsor or Participate!

Postcards to Doctors is going strong! Postcards to Doctors, which we launched in 2019, is a medical education campaign in the US that focuses on getting medical professionals to learn more about ME. Our aim is to get as many people as possible to take the UNREST CME course, and Postcards to Doctors has enabled us to reach

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