
#MillionsMissing 2025: Sending Out An SOS
For #MillionsMissing 2024, #MEAction is sending out an SOS.
For #MillionsMissing 2024, #MEAction is sending out an SOS.
The White House is terminating funding for NIH RECOVER grants awarded in 2022 and 2023 for Long COVID.
We want to provide you with an update about where we stand with the federal administration massively cutting Medicaid and threatening to get rid of Telehealth extensions. We are so grateful for the actions that you have taken with us to fight to protect Medicaid and Telehealth but we still have a long road ahead
Ian Simon, the head of the Long COVID Office at Department of Health and Human Services (HHS), released the following statement to coworkers: Dear Colleagues, We are writing to let you know that the Office of Long COVID Research and Practice will be closing as part of the administration’s reorganization coming this week. We are
We are writing to you with an urgent call to action. The Trump administration has cut funding for the Center for Solutions for ME/CFS at Columbia University as part of a broader $400 million funding termination at the university. This devastating decision includes the loss of NIH funding for one of the nation’s few Collaborative Research
#MEAction Georgia volunteer, Cory Anderson-Sweeney, uses her Baby Deer Bakery to spread awareness about ME and her Cookie of the Month Club to help raise funds for #MEAction. We were inspired by her journey and we hope you will enjoy the scrumptious look into her story in her own words. Here’s the delicious morsel: When
#MEAction has been fighting alongside the Long COVID community since 2020 – we know that our futures are inextricably linked.
#MEAction invites you to experience Pillow Crafters Showcase: Healing Themes—The Wildflower Process on Wednesday, March 26th, 2025 at 11am PT/2pm ET/6pm GMT, a showcase of resilience, creativity, and the many ways we reclaim our identities after an ME/CFS diagnosis. RSVP Here Through the symbolism of a wildflower, participants have explored themes such as grief, transformation,
Press Contact: #MEAction: [email protected] Patient & Expert Voices Must Be Heard: Advocates Urge Administration to Reinstate Long COVID Advisory Committee #MEAction and the Patient-Led Research Collaborative – leading organizations advocating for people with Long
#MEAction acknowledges and celebrates the amazing women in our community.