OMF is launching a new research study to perform a retrospective analysis of clinical laboratory data from hundreds of ME/CFS patients. This study will gather and analyze the clinical laboratory tests and results ordered by ME/CFS specialists. OMF is hopeful that analyzing a large number of clinical records using robust statistical methods may reveal new insights.
Drs. David Kaufman and Bela Chheda (Center for Complex Diseases, CA) and Dr. Susan Levine (ME/CFS Clinician & Researcher, NY) will lead the first phase of this study using de-identified results from their patients. Later, OMF hopes to bring on additional clinicians. Eventually, OMF plans to share the results with the whole ME/CFS medical and research communities.
OMF is very grateful to the newest partner, Statisticians without Borders, who has stepped in to lead the data analysis pro-bono. Hany Zayed, PhD, Head of Data Sciences Solutions, Rigel Pharmaceuticals and Statisticians Without Borders volunteer will lead this project.
In August, we shared with you that we and six other ME/CFS organizations had submitted a proposal to the National Center of Health Statistics (NCHS) to fix the coding of ME/CFS in the US International Classification of Diseases (ICD-10-CM). Today, we are writing with an update on that proposal and asking that you sign the