OMF is launching a new research study to perform a retrospective analysis of clinical laboratory data from hundreds of ME/CFS patients. This study will gather and analyze the clinical laboratory tests and results ordered by ME/CFS specialists. OMF is hopeful that analyzing a large number of clinical records using robust statistical methods may reveal new insights.
Drs. David Kaufman and Bela Chheda (Center for Complex Diseases, CA) and Dr. Susan Levine (ME/CFS Clinician & Researcher, NY) will lead the first phase of this study using de-identified results from their patients. Later, OMF hopes to bring on additional clinicians. Eventually, OMF plans to share the results with the whole ME/CFS medical and research communities.
OMF is very grateful to the newest partner, Statisticians without Borders, who has stepped in to lead the data analysis pro-bono. Hany Zayed, PhD, Head of Data Sciences Solutions, Rigel Pharmaceuticals and Statisticians Without Borders volunteer will lead this project.
Press Release: Cochrane Library Faces Backlash Over ME/CFS Review Cancellation
January 24, 2025 – Cochrane Library has made the shocking decision to abandon an independent analysis of its 2019 review of exercise therapy for myalgic encephalomyelitis / chronic fatigue syndrome (ME/CFS) – and has altered the date of publication to make the review appear current when, in fact, its sources are 10 years old or