Fund Mike's North Pole Marathon

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#MEAction

Running a 26.2 mile marathon at the north pole for IiME
This is the challenge of a lifetime and it is the result of my daughter having ME since September 2008. I have seen firsthand how damaging ME can be to a person’s life, their prospects and their family.

Support Mike’s marathon and raise money for Invest in ME

Categories: Past actions

Latest News

In Memory of Dr. Ronald G. Tompkins MD, ScD

Mourning the loss of Dr. Ron Tompkins

January 18, 2022 2 Comments

Today #MEAction joins the community in mourning the loss of Dr. Ronald G. Tompkins, MD, ScD, who passed away this week. Ron Tompkins was a clinician, clinical researcher, and friend and ally to people with ME. He was the Sumner M. Redstone Professor of Surgery at Harvard Medical School, Founding Director of the Center for

National Institutes of Health campus buildings from above

NIH Long COVID research lacks clear plan to identify and track ME/CFS

January 14, 2022 1 Comment

MEAction has written to the National Institutes of Health (NIH) expressing our deep concern that the RECOVER Initiative research agenda lacks a clear plan for how to accurately identify or consistently track the onset of myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) cases among patients with Long COVID. This is of particular importance because a sizable fraction

The Last Two Years Changed the World…

January 10, 2022 No Comments

What a year 2021 was! People with ME have always faced formidable challenges: every day combatting stigma, lack of understanding from clinicians, NIH’s and CDC’s low budgetary commitments, and a world of challenges navigating disability on top of symptoms. It’s no exaggeration to say that 2020 and 2021 changed the world – and the world of chronic,

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