Category Tag: activism

Voices from Sacramento: Janet Dafoe and Ashley Haugen

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Some of you may know Dr. Janet Dafoe and her daughter Ashley Haugen through their tireless advocacy work for ME.  Dr. Dafoe's son and Ashley's brother, Whitney Dafoe, has severe ME, and is the impetus behind their efforts to raise funding, raise awareness, and raise hell. These statements were read at the Sacramento California rally ...

CA Senate will Vote on Resolution for ME/CFS Thursday – Call your Senator!

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California - A resolution to proclaim May as Myalgic Encephalomyelitis / Chronic Fatigue Syndrome Awareness (ME/CFS) Month will go before the California Senate this Thursday. Now, is a great time to educate your California Senator about ME/CFS, and let them know that you are a constituent who cares about this cause. Even ...

#MillionsMissing Will Take to the Streets on May 12th – Join Them!

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The #MillionsMissing are taking to the streets in 17 cities across the world on Friday, May 12th to once again demand change for people with Myalgic Encephalomyelitis (ME). Five cities in the UK are hosting #MillionsMissing rallies - with London taking a stance before the department of health for the third ...

Contact your local journalist about #BedFest

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Invite a journalist to cover the story of #BedFest in which artists with Myalgic Encephalomyelitis from all over the world have come together - many of them bed or homebound - to express themselves and showcase their music, art and poetry. Share the #BedFest website with your journalist - a living gallery and concert hall of ...

Teach-In: Non-Violent Direct Action

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If you missed the teach-in last week on Non-Violent Direct Action with Terri Wilder and Alexis Danzig, check out the webinar here ...

Global Call-to-Action: Help secure the World Health Organisation’s Classification of ME & CFS

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Urgent call to action! We need all hands on deck for a simple, but important task! The World Health Organisation (WHO) is reviewing its International Classification of Disease (ICD) for its upcoming 11th edition (ICD-11). There has been enormous concern about what was going to happen to how ME & ...

Impact of proposed NIH and CDC cuts on ME Research

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How would the proposed NIH and CDC Budget Cuts affect ME research? News organizations recently reported that President Donald Trump’s administration has asked the House and Senate to approve budget cuts for 2017 of $1.232 billion for the National Institutes of Health (NIH) and $314 million for the Centers for Disease ...

Musician with ME produces EP from her bed

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#MEAction is working with musician Kaeley Pruitt-Hamm to re-release her music video, “Believe Her,” to showcase the broader face of the ME community.   Send in a still photo or 5-second clip of yourself in bed holding a sign that says #BelieveME or #BelieveHer by April 30th. We will include these ...

Support Tom’s London Marathon campaign for ME Research U.K.

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On 23rd April, Tom Whittingham is running the London Marathon for ME Research UK. Watch and share his fundraising and awareness video ...

#MEAction and Solve ME/CFS Gear Up for Major Congressional Push

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#MEAction and Solve ME/CFS Initiative are gearing up for a major congressional action for ME/CFS in Washington, D.C. from May 16 to 18. If you would like to join us in Washington, D.C. for meetings, let us know by April 4th so that we can make the necessary meeting arrangements with ...
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