Tag: activism

#MillionsMissing Will Take to the Streets on May 12th – Join Them!

The #MillionsMissing are taking to the streets in 17 cities across the world on Friday, May 12th to once again demand change for people with Myalgic Encephalomyelitis (ME). Five cities in the UK are hosting #MillionsMissing rallies – with London taking a stance before the department of health for the third time. Norway will demonstrate

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Contact your local journalist about #BedFest

Invite a journalist to cover the story of #BedFest in which artists with Myalgic Encephalomyelitis from all over the world have come together – many of them bed or homebound – to express themselves and showcase their music, art and poetry. Share the #BedFest website with your journalist – a living gallery and concert hall of art by people with

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Impact of proposed NIH and CDC cuts on ME Research

How would the proposed NIH and CDC Budget Cuts affect ME research? News organizations recently reported that President Donald Trump’s administration has asked the House and Senate to approve budget cuts for 2017 of $1.232 billion for the National Institutes of Health (NIH) and $314 million for the Centers for Disease Control and Prevention (CDC).

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Global Call-to-Action: Help secure the World Health Organisation's Classification of ME & CFS

Urgent call to action! We need all hands on deck for a simple, but important task! The World Health Organisation (WHO) is reviewing its International Classification of Disease (ICD) for its upcoming 11th edition (ICD-11). There has been enormous concern about what was going to happen to how ME & CFS are classified in the new edition. It’s crucial that we take action now!

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Musician with ME produces EP from her bed

#MEAction is working with musician Kaeley Pruitt-Hamm to re-release her music video, “Believe Her,” to showcase the broader face of the ME community.   Send in a still photo or 5-second clip of yourself in bed holding a sign that says #BelieveME or #BelieveHer by April 30th. We will include these clips of people with

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#MEAction and Solve ME/CFS Gear Up for Major Congressional Push

#MEAction and Solve ME/CFS Initiative are gearing up for a major congressional action for ME/CFS in Washington, D.C. from May 16 to 18. If you would like to join us in Washington, D.C. for meetings, let us know by April 4th so that we can make the necessary meeting arrangements with your legislators. Sign up here.

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URGENT Congressional Action: Ask your House Rep. to sign letter for ME

  URGENT Congressional Action! Ask your House representative to sign a letter that inserts favorable language for ME into the House Appropriations Committee report on the FY18 budget.  Deadline to sign: Tues., April 4th. Contact your House rep. today! See instructions for calling and emailing below. ~ U.S. House Representatives Zoe Lofgren and Anna Eshoo have agreed to sponsor

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URGENT: Call your U.S. congressperson: Sign the letter to stop NIH cut

President Trump is proposing to cut the National Institutes of Health (NIH) budget by $6 billion – or about one-fifth of the total agency budget. A cut to the NIH budget will almost certainly impact funding for biomedical research into Myalgic Encephalomyelitis (ME). Bipartisan members of Congress are circulating a letter that opposes this cut, and, instead,

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