Category Archives: Research

The ME/CFS Biomarker Rollercoaster

/ by / 4 Comments
Biomarkers are a holy grail for ME/CFS because they have the potential to help diagnose disease, track disease progression or progress and help inform which treatments might help. The need for biomarkers is immense and researchers will identify many possible ones. It is encouraging that there have been more possible biomarker reports ...

Impact of proposed NIH and CDC cuts on ME Research

/ by / 0 Comment
How would the proposed NIH and CDC Budget Cuts affect ME research? News organizations recently reported that President Donald Trump’s administration has asked the House and Senate to approve budget cuts for 2017 of $1.232 billion for the National Institutes of Health (NIH) and $314 million for the Centers for Disease ...

Engaging People with ME as Partners in the CRCs

/ by / 0 Comment
The National Institute of Health’s RFA for ME/CFS Collaborative Research Centers breaks new ground. For the first time, the funding agency is strongly encouraging researchers “to establish partnerships with patients groups and solicit their input” as part of their research plan. #MEAction assembled a team of volunteers to assist researchers in ...

Calcium channel ion defects: research from Australia’s Griffith Uni.

/ by / 4 Comments
Researchers from Queensland’s Griffith University recently identified a dysfunctional cell receptor in the immune system of people with Chronic Fatigue Syndrome (CFS). Fifteen people meeting the Fukuda criteria for CFS were studied, against 25 controls. Considering the small size of the study, the results cannot be considered definitive ...

SF Bay Area: Get Stanford Some Healthy Controls!

/ by / 2 Comments
If you live in the San Francisco Bay Area, or know any others who do, please consider asking them to donate blood to the Stanford Genome Technology Center as a healthy control. The blood will be used for multiple purposes, including in Ron Davis's ME/CFS research.  If you know individuals ...

Letter to NIH: End the Insult

/ by / 19 Comments
A person with ME for more than 38 years wrote this pointed letter to the National Institute of Health, calling its leaders to act with urgency and correct their gross neglect of people suffering with ME ...

NIH answers questions about research centers for ME

/ by / 6 Comments
Want to know more about the research centers and data center being planned for ME/CFS by the National Institute of Health (NIH)? Directors at the NIH discussed the research centers and answered questions from people with ME along with researchers in a phone call on Feb. 2. The NIH will provide ...

Drastic changes to Ampligen clinical trial hurts ME patients – sign the petition to fight it

/ by / 2 Comments
Patients in the Ampligen clinical trial are asking for community help to protest changes that will force many to stop getting this medicine. Please sign our petition urging Hemispherx to put ME patients first, always ...

Funding for U.S. research centers falls way short

/ by / 6 Comments
Government funding for research centers and a data management center for ME/CFS has been made public, and the amount of funding allocated is infuriatingly small. The National Institute of Health (NIH) plans to issue two Requests for Application (RFAs) in January to fund 2-3 collaborative research centers and a data management ...

Epic Measures: How One Man Changed the World (and Possibly ME/CFS and FM As Well)

/ by / 0 Comment
Chronic fatigue syndrome (ME/CFS) and fibromyalgia (FM) have a long, long way to go before they get the attention and resources they deserve. It would take a heroic leap to quickly achieve what people with these diseases deserve and what the diseases themselves - given their economic costs / burdens ...
Menu