Category Archives: Research

Ron Davis Gets Standing Ovation

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August 12 was an amazing day at OMF’s Community Symposium on the Molecular Basis of ME/CFS at Stanford University ...

FITNET trial criticised in Behavioural Sciences journal

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Severe ME patients publish paper questioning central findings of Dutch CBT/GET trial ...

Scientists gather for ME/CFS symposium this Saturday: Watch online!

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Influential scientific researchers in the ME/CFS community will come together this Saturday, Aug. 12 for a one-day community symposium focused on the molecular basis of ME/CFS at Stanford University Palo Alto, California. Register here to join the livestream and be part of the conversation. View the agenda here. (DVDs can also be ...

Update on the NIH Research Funding totals from SMCI

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The Solve ME/CFS Initiative is disappointed to report that the projected estimates for FY 17 are being reported at lower numbers than expected ...

Jennie Spotila: NIH’s management of conflict of interest

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EDITOR'S NOTE: This reporting is written by Jennie Spotila Next week, the NIH will convene a peer review panel to evaluate and score the applications submitted under the Data Center and Collaborative Research Center RFAs. NIH's management of conflict of interest is key to understanding who is - and who is ...
David Tuller: "I am committed to seeing this effort through to the end"

Tuller on PACE Investigation Plans: Not Beholden to Anyone

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#MEAction sat down with David Tuller recently for a wide-ranging discussion about the crowdfunding effort to help him continue his PACE investigations, the devastating stories he has heard from patients around the world, the poor media coverage of the PACE Trial flaws, and the ideal end result of all of the work ...

Passionate Pragmatist: Carol Head and the Fight for ME/CFS Equality: The SMCI Pt. I

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One of my deeply held personal values is that ALL people must be treated  respectfully…I have found that respectful, highly knowledgeable, forceful advocacy language that expresses the desperate needs of our community is the most effective. But please do not mistake my professional, respectful demeanor as anything less than a ...

The ME/CFS Biomarker Rollercoaster

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Biomarkers are a holy grail for ME/CFS because they have the potential to help diagnose disease, track disease progression or progress and help inform which treatments might help. The need for biomarkers is immense and researchers will identify many possible ones. It is encouraging that there have been more possible biomarker reports ...

Impact of proposed NIH and CDC cuts on ME Research

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How would the proposed NIH and CDC Budget Cuts affect ME research? News organizations recently reported that President Donald Trump’s administration has asked the House and Senate to approve budget cuts for 2017 of $1.232 billion for the National Institutes of Health (NIH) and $314 million for the Centers for Disease ...

Engaging People with ME as Partners in the CRCs

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The National Institute of Health’s RFA for ME/CFS Collaborative Research Centers breaks new ground. For the first time, the funding agency is strongly encouraging researchers “to establish partnerships with patients groups and solicit their input” as part of their research plan. #MEAction assembled a team of volunteers to assist researchers in ...
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