#MEAction UK

Current UK calls to action

	Follow up on the ME debate. Send your MP an email thanking them for attending the House of Commons debate on ME on January 24th. You can also send them a summary of what happened if they didn’t attend using our online tools here
	Take the survey for NICE. NICE is rewriting the UK ME guidelines. As part of this process, the Forward-ME Group, of which #MEAction UK is a member, has prepared a questionnaire to provide additional evidence on cognitive behavioural therapy (CBT) and graded exercise therapy (GET) to NICE. The new guideline is expected to be published in October 2020. Take the survey here.
	Suppport our UK work. Support and grow our UK work by donating to our UK fundriaser! #MEAction’s vision for the next few years is of powerful, local organising and outreach that is networked and coordinated for national and global impact. Donate now.

How to get involved

To get more involved in advocacy, education, and outreach in the UK, contact uk@meaction.net. You can also join a local Facebook group. Or, make an appointment to talk to a community organizer if you have questions about how best to get involved.

Create an action | Launch a petition | Start an event | Join a group | Talk to us

Tools

ME UK Factsheet

UK toolkit: How to meet with your MP

ME Debate Parliamentary Briefing

#MEAction ME/CFS Research Summary (2017)

Latest UK News & Actions

Amazing Look@ME fundraiser in the UK!

February 28, 2019 / by Georgina Bednar / 2 Comments

On 3rd, February 2019, Look@ME held a supper quiz in North London to raise awareness for myalgic encephalomyelitis (ME). Look@ME is a committee of family and friends coming together to raise awareness for ME. Over 200 people attended this special dinner and ... Read More

Announcing #MillionsMissing 2019! Join us!

February 26, 2019 / by #MEAction / 4 Comments

Listen to the article: We are thrilled to announce #MillionsMissing 2019! This May, we will take to the streets - or demonstrate from our beds - to show the world we are here, we are the #MillionsMissing, we will continue to ... Read More

Proud Accessible Activism: The ME Debate Virtual Demonstration

February 1, 2019 / by #MEAction / 0 Comment

Throughout history, activism and campaigning have been a driving force for positive change across the world. From civil rights to LGBTQ rights and more. However much of this has been inaccessible to large swathes of the disability community. For the ME ... Read More

Historic Parliamentary Debate Shaped by People with ME

January 25, 2019 / by #MEAction / 8 Comments

Listen to the article: On Thursday 24th January 2019 a historic debate took place. Over 40 MPs from across the political divide sat in the House of Commons to debate a motion on myalgic encephalomyelitis (ME), with 27 making impassioned contributions ... Read More

The Effects of Graded Exercise Therapy and Positive Thinking on a Young Girl with ME

January 23, 2019 / by Adriane Tillman / 9 Comments

Listen to the article: Exercise protocols prescribed for myalgic encephalomyelitis (ME) were powerful enough for Cherry to ignore the physiological realities of her disease. Cherry is now 100 percent bedridden. When 16-year-old Cherry from North London began the treatment prescribed for ... Read More

Join the virtual demonstration in support of the ME debate!

January 22, 2019 / by #MEAction / 3 Comments

Listen to this article on #MEAction’s Soundcloud here On Thursday afternoon, 24th January, MPs from all parties will be debating a motion put forward by Carol Monaghan MP in the House of Commons. The motion covers biomedical research funding, the suspension ... Read More

What can you do before this Thursday’s ME debate?

January 22, 2019 / by #MEAction / 2 Comments

Listen to this article on #MEAction’s Soundcloud here This Thursday 24th January, myalgic encephalomyelitis (ME) will be discussed in the main chamber of the House of Commons, as Members of Parliament from all Parties debate a motion on ME put forward ... Read More

UK Parliament will debate ME in historic House of Commons debate

January 21, 2019 / by #MEAction / 0 Comment

UK PARLIAMENT WILL DEBATE ME IN HISTORIC HOUSE OF COMMONS DEBATE FOR IMMEDIATE RELEASE Parliament has announced that it will debate the treatment and funding of patients with myalgic encephalomyelitis (ME), a debilitating and serious, multi-systemic disease. The ME debate will take ... Read More

Stuart Murdoch’s open letter ahead of the ME Debate

January 20, 2019 / by Stuart Murdoch / 4 Comments

Stuart Murdoch is the lead singer of Belle and Sebastian. He has had ME for 28 years and he has kindly shared with us this open letter to the UK government ahead of the ME debate on Thursday, 24th January ... Read More

Take Action Now! The UK debate on ME has been granted

January 17, 2019 / by #MEAction / 6 Comments

Listen to this article on #MEAction’s Soundcloud here We are delighted that Carol Monaghan MP has managed to secure a debate in Parliament on Thursday afternoon, 24th January. This debate has been confirmed by the Backbench Business Committee and will take ... Read More

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