Covid-19 Resources for People with ME


#MEAction UK

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Current UK calls to action

This report analyses a survey conducted by #MEAction UK in response to a call for evidence from the National Institute for Health and Care Excellence (NICE) in August 2019.

View the full report here

Sample email for constituents to invite their MPs to join the APPG on ME
Encourage your MP to jon the All-Party Parlliamentary Group (APPG) on ME, led by Carol Monaghan MP. Find a sample email here and email your MP.
Support our UK work Suppport our UK work. Support and grow our UK work by donating to our UK fundriaser! #MEAction’s vision for the next few years is of powerful, local organising and outreach that is networked and coordinated for national and global impact. Donate now.

How to get involved

To get more involved in advocacy, education, and outreach in the UK, contact You can also join a local Facebook group. Or, make an appointment to talk to a community organizer if you have questions about how best to get involved.

Create an action | Launch a petition | Start an event | Join a groupTalk to us


Latest UK News & Actions
NICE guidelines suspended until further notice

NICE suspend work on new ME guidelines

The National Institute of Health and Care Excellence (NICE) have suspended work on all guidelines currently in development due to the Covid-19 pandemic, including their update of the ME/CFS guideline, originally due to be published October 2020 and recently delayed ... Read More
APPG ME 2020 meeting March

APPG on ME: Biomedical Research Meeting

The All-Party Parliamentary Group (APPG) on ME held its first meeting on March 3, where biomedical research was discussed. Twenty MPs attended or sent staff to hear about the urgent need for biomedical research, following its inaugural AGM in January ... Read More

Send your stories for London #MillionsMissing

Exciting News for 2020! #MillionsMissing London is in Parliament Square on 13th May. London will play host to a major demonstration aimed at highlighting the plight of ME sufferers across the globe. London #Millions Missing is thrilled to announce that ... Read More
Medical Education Event London #MEActionUK

Invite your Doctor to learn about ME – Medical Education Event in London

March 11 Update: After thoughtful deliberation, we have made the difficult but necessary decision to postpone our Medical Education event in London, originally due to take place on April 1 at the LSHTM. We know how much this means to ... Read More

Postcards to Doctors Featured Artist: Emily Lawton

We are so excited that the Postcards to Doctors Initiative sent more than 6,000 postcards to physicians across the United States! We’d like to take this opportunity to recognize one of #MEAction’s Postcards to Doctors amazing artists, Emily Lawton. After ... Read More

Next Steps for the APPG on ME in the UK

#MEAction and the ME Association are both delighted that Carol Monaghan (MP for Glasgow North-West) has re-established a new All-Party Parliamentary Group (APPG) on ME. This is a parliamentary initiative for which the ME Association will be providing secretariat support ... Read More
Take ME Seriously

Another No from NICE – Take ME Seriously

As publication of new ME guidelines are delayed, NICE once again refuse to take action to mitigate the harmful recommendations that still stand in the existing guideline. Join us as we send them a giant card and tweet them so ... Read More
UK Parliament #MEAction UK

New APPG on ME for the UK – Meeting

Following the success of the last parliamentary debates on myalgic encephalomyelitis (ME), Carol Monaghan MP is reviving the All-Party Parliamentary Group (APPG) on ME. After well attended Westminster Hall and House of Commons debates with cross-party support, Carol Monaghan MP ... Read More
#MEAction Dynamic Dashboard

How did your local ME service perform?

Earlier this year #MEAction UK wrote, distributed and analysed a survey in response to The National Institute for Health and Care Excellence (NICE) releasing a call for evidence as they rewrite the ME guideline. Our full report from that survey ... Read More

A Trial of ME – Elizabeth’s Story

This is me, my story, I am one of the millions missing. I may not look ill to you, but if you see me, it will be because I am having a ‘good’ day because I am well enough to ... Read More