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#MEAction UK

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Current UK calls to action

This report analyses a survey conducted by #MEAction UK in response to a call for evidence from the National Institute for Health and Care Excellence (NICE) in August 2019.

View the full report here
Sample email for constituents to invite their MPs to join the APPG on ME
Encourage your MP to jon the All-Party Parlliamentary Group (APPG) on ME, led by Carol Monaghan MP. Find a sample email here and email your MP.
Support our UK work Suppport our UK work. Support and grow our UK work by donating to our UK fundriaser! #MEAction’s vision for the next few years is of powerful, local organising and outreach that is networked and coordinated for national and global impact. Donate now.
How to get involved

To get more involved in advocacy, education, and outreach in the UK, contact uk@meaction.net. You can also join a local Facebook group. Or, make an appointment to talk to a community organizer if you have questions about how best to get involved.

Create an action | Launch a petition | Start an event | Join a group | Talk to us
Tools
MM 2019 UK Leaflet
Email sample for MPs to join the APPG on ME
ME UK Factsheet
UK toolkit: How to meet with your MP
ME Debate Parliamentary Briefing
#MEAction ME/CFS Research Summary (2017)
Latest UK News & Actions
APPG on ME AGM

Next Steps for the APPG on ME in the UK

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#MEAction and the ME Association are both delighted that Carol Monaghan (MP for Glasgow North-West) has re-established a new All-Party Parliamentary Group (APPG) on ME. This is a parliamentary initiative for which the ME Association will be providing secretariat support ... Read More
Take ME Seriously

Another No from NICE – Take ME Seriously

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As publication of new ME guidelines are delayed, NICE once again refuse to take action to mitigate the harmful recommendations that still stand in the existing guideline. Join us as we send them a giant card and tweet them so ... Read More
UK Parliament #MEAction UK

New APPG on ME for the UK – Meeting

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Following the success of the last parliamentary debates on myalgic encephalomyelitis (ME), Carol Monaghan MP is reviving the All-Party Parliamentary Group (APPG) on ME. After well attended Westminster Hall and House of Commons debates with cross-party support, Carol Monaghan MP ... Read More
#MEAction Dynamic Dashboard

How did your local ME service perform?

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Earlier this year #MEAction UK wrote, distributed and analysed a survey in response to The National Institute for Health and Care Excellence (NICE) releasing a call for evidence as they rewrite the ME guideline. Our full report from that survey ... Read More

A Trial of ME – Elizabeth’s Story

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This is me, my story, I am one of the millions missing. I may not look ill to you, but if you see me, it will be because I am having a ‘good’ day because I am well enough to ... Read More

UK General Election Guide Now Available

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The UK is set to go to the polls on 12 December 2019. #MEAction UK has prepared a guide ahead of the General Election with information on how to register for voting, different ways of voting (postal, proxy, etc), information ... Read More

ME Services in the UK Not Fit for Purpose

/ / 3 Comments on ME Services in the UK Not Fit for Purpose
A recent survey conducted by #MEAction UK found that UK specialist myalgic encephalomyelitis (ME) services are not fit for purpose. Areas investigated included: Management strategies Experience attending a clinic Cognitive behavioural therapy (CBT) Activity management The survey was conducted to ... Read More
NICE Call for Evidence response #MEAction UK

NICE Called for Evidence: Read #MEAction UK’s Response

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The National Institute for Health and Care Excellence (NICE) are re-writing their guidelines on ME. As part of this they issued a call for evidence relating to three topics. #MEAction UK has now submitted our full response, collecting studies, surveys ... Read More
Background of papers with graphs and charts, overlayed by text reading "Take the ME call for evidence survey"

Your experience of ME/CFS services – Take the survey by #MEAction UK

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The National Institute for Health and Care Excellence (NICE) are updating their guidelines on ME. As part of this they have published a call for evidence about 3 topics. #MEAction UK has put together the following survey to provide further ... Read More
NICE Call for Evidence 2019

NICE Call for Evidence on ME guidelines

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The National Institute for Health and Care Excellence (NICE) have put out a call for evidence in relation to the ongoing update of their ME/CFS guidelines, due to be published in October 2020. This is an opportunity to ensure that ... Read More
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