×

#MEAction UK

<< Return to all actions

Current UK calls to action

 Follow up on the ME debate. Send your MP an email thanking them for attending the House of Commons debate on ME on January 24th. You can also send them a summary of what happened if they didn’t attend using our online tools here
Support our UK work Suppport our UK work. Support and grow our UK work by donating to our UK fundriaser! #MEAction’s vision for the next few years is of powerful, local organising and outreach that is networked and coordinated for national and global impact. Donate now.

How to get involved

To get more involved in advocacy, education, and outreach in the UK, contact uk@meaction.net. You can also join a local Facebook group. Or, make an appointment to talk to a community organizer if you have questions about how best to get involved.


Create an action | Launch a petition | Start an event | Join a groupTalk to us

Tools

Latest UK News & Actions

ME Services in the UK Not Fit for Purpose

/ by / 3 Comments
A recent survey conducted by #MEAction UK found that UK specialist myalgic encephalomyelitis (ME) services are not fit for purpose. Areas investigated included: Management strategies Experience attending a clinic Cognitive behavioural therapy (CBT) Activity management   The survey was conducted to provide ... Read More
NICE Call for Evidence response #MEAction UK

NICE Called for Evidence: Read #MEAction UK’s Response

/ by / 1 Comment
The National Institute for Health and Care Excellence (NICE) are re-writing their guidelines on ME. As part of this they issued a call for evidence relating to three topics. #MEAction UK has now submitted our full response, collecting studies, surveys ... Read More
Background of papers with graphs and charts, overlayed by text reading "Take the ME call for evidence survey"

Your experience of ME/CFS services – Take the survey by #MEAction UK

/ by / 0 Comment
The National Institute for Health and Care Excellence (NICE) are updating their guidelines on ME. As part of this they have published a call for evidence about 3 topics. #MEAction UK has put together the following survey to provide further ... Read More
NICE Call for Evidence 2019

NICE Call for Evidence on ME guidelines

/ by / 0 Comment
The National Institute for Health and Care Excellence (NICE) have put out a call for evidence in relation to the ongoing update of their ME/CFS guidelines, due to be published in October 2020. This is an opportunity to ensure that ... Read More

NICE drag their feet on stopping the harm caused by GET and CBT

/ by / 0 Comment
As part of our ongoing advocacy work, #MEAction UK has been campaigning for the National Institute for Clinical Excellence (NICE) to update the current ME guidelines. Updated ME/CFS guidelines are due to be published in October 2020. However in the meantime, ... Read More

UK fundraiser seeking your ME stories

/ by / 0 Comment
Ellie Rushton, Birmingham UK, is setting out on a rather unique fundraising adventure. For the next six months (September to February) she will be attempting to do 1000 reps of bodyweight exercises every, single, day. Ambitious indeed! But what does it ... Read More

Why people with ME need healthy allies

/ by / 0 Comment
On Sunday 29th of September, my husband, David, and our daughter, Rosslyn, are taking part in the Great Scottish Run 10K to raise money for #MEAction UK. As friends of #MEAction volunteer Emma Shorter and her family, David and Rosslyn have ... Read More

Greater London Authority Unrest screenings to raise awareness of ME

/ by / 0 Comment
The Greater London Authority’s offices have held two Unrest screenings over the past few months to raise awareness of myalgic encephalomyelitis (ME). The screenings, held for staff, took place at Union Street and City Hall, and were part of ME ... Read More
Gigi riding a mobility scooter.

Gigi Update: Lewisham Hospital Removes Gigi’s Pain Medication, Leaving Her in Rising Pain

/ by / 0 Comment
An update on Gigi’s situation: Gigi’s family are launching an urgent appeal to find lawyers to bring their daughter, 17, home from Children's Ward in Lewisham Hospital, London. Her family is desperate to bring her home, but the hospital has ... Read More

A petition cloaked in the respectability of research

/ by / 0 Comment
#MEAction UK has written a letter with regards to a survey that states it is to protect specialist CFS/ME services in the UK. We do not recommend people fill in this survey. It is written in such a way that it ... Read More