#MEAction UK

<< Return to all actions

Current UK calls to action
UK Parliamentary Advocacy Contact your MP. #MEAction has developed a toolkit to give you the basic tools to help you to feel comfortable meeting with your Member of Parliament (MP). We want every single MP in the country to meet with a constituent, to learn how their life has been affected by ME and find out what they can do to help. Access the toolkit now.
Urge your MP to sign EDM 1247 recognizing Myalgic Encephalomyelitis (ME) Awareness Week, the work being done by campaigners and charities to highlight ME as a physical condition, and acknowledging the detrimental effects of the PACE trial. Contact your MP now
Support our #MEAction UK fundraiser to hire an on-the-ground organiser for advocacy, campaigns and medical outreach.

How to get involved

To get more involved in advocacy, education, and outreach in the UK, contact uk@meaction.net. You can also join a local Facebook group. Or, make an appointment to talk to a community organizer if you have questions about how best to get involved.

Create an action | Launch a petition | Start an event | Join a group | Talk to us


Latest UK News & Actions

UK: More than 250 GPs Attended ME Workshop at the RCGP Conference

/ by / 0 Comment
A week after the recent RCGP Annual Primary Care Conference & Exhibition held in Glasgow on the 4th – 6th October, it seems appropriate to reflect on the impact of the conference on educating GPs about myalgic encephalomyelitis (ME). The RCGP ... Read More

Meet with your MP about ME – Our Toolkit shows you how!

/ by / 0 Comment
Advocates at #MEAction UK are working hard to engage Members of Parliament in the fight for appropriate clinical care and investment in biomedical research for ME. Gaining MPs support in lobbying for change is vital to our success. So whether ... Read More

UK: ME gets Attention at General Practitioners Conference

/ by / 2 Comments
Volunteers from #MEAction Scotland will attend the annual conference of the Royal College of General Practitioners (RCGP) in Glasgow this year from 4th to 6th October! Forward ME, an umbrella group of UK charities and voluntary organisations, is hosting a ... Read More

UK Coordinator Joins #MEAction Team

/ by / 0 Comment
#MEAction is thrilled to welcome aboard UK Coordinator, Espe Moreno, for the UK coordinator position this fall. Based in London, Espe previously worked for the Time for Unrest impact campaign in the UK, overseeing social media, screening events, and various ... Read More

#MEAction UK Activist Speaks at the International Deaf & Disabled People’s Solidarity Summit

/ by / 3 Comments
Article written by Sian Leary and Nathalie Wright | Photo credit: Paula Peters On 22nd July, Deaf and Disabled people from around the world gathered in East London in solidarity to discuss countering oppression and coordinating resistance, especially in the light of ... Read More

NICE Guideline for ME: #MEAction UK Responds to Second Draft Scope

/ by / 2 Comments
The National Institute for Health and Care Excellence (NICE) is in the process of updating its guideline for Myalgic Encephalomyelitis by October 2020. #MEAction UK has issued a response to the second draft scope for the ME/CFS Guideline.  The scope is ... Read More

What next for the NICE guidelines?

/ by / 8 Comments
Parliament Plays NICE #MEAction UK was thrilled to watch the longest ever UK parliamentary debate about ME on 21st June, after working so hard alongside so many others to make it happen. The three hour debate in Westminster Hall about treatment and ... Read More

Volunteer of the Month: a Scottish Trio

/ by / 3 Comments
This month we want to honor the work of three women with #MEAction Scotland - Emma Shorter, Kim Gurav and Janet Sylvester -  who have done an incredible job advocating for people with myalgic encephalomyelitis. The partnership began last January when ... Read More

Next steps: a letter to our community

/ by / 11 Comments
Hi everyone, I just wanted to take a moment to comment on some of the confusion and concern of these last few weeks and offer some steps forward to help clarify how #MEAction works, what our core value are, and how ... Read More

Westminster Hall debate could be a ‘turning of the tide’ for ME

/ by / 35 Comments
Today was a turning of the tide for Myalgic Encephalomyelitis (ME) as 26 MPs attended a Westminster Hall debate on treatment and research for ME.  MPs called for the immediate removal of Graded Exercise Therapy (GET) from the NICE guidelines, as patients ... Read More