×

#MEAction UK

<< Return to all actions

Current UK calls to action

 Follow up on the ME debate. Send your MP an email thanking them for attending the House of Commons debate on ME on January 24th. You can also send them a summary of what happened if they didn’t attend using our online tools here
Support our UK work Suppport our UK work. Support and grow our UK work by donating to our UK fundriaser! #MEAction’s vision for the next few years is of powerful, local organising and outreach that is networked and coordinated for national and global impact. Donate now.

How to get involved

To get more involved in advocacy, education, and outreach in the UK, contact uk@meaction.net. You can also join a local Facebook group. Or, make an appointment to talk to a community organizer if you have questions about how best to get involved.


Create an action | Launch a petition | Start an event | Join a groupTalk to us

Tools

Latest UK News & Actions

Meet the #MEAction Staff: Espe Moreno

/ by / 0 Comment
I am delighted to be part of the series in which you are getting to know the #MEAction staff! My name is Espe and I am #MEAction's UK Coordinator. I am so honoured to be a part of the staff at ... Read More
People travelled from all over Scotland to attend #MillionsMissing Glasgow

Hundreds gather for #MillionsMissing Glasgow

/ by / 0 Comment
#MillionsMissing Glasgow on 12 May, 2019, was a huge success, and took place in glorious sunshine which is fairly unusual for this Scottish city! A crowd of around 400, many of whom had travelled from across Scotland, heard people with ... Read More

Enrolling: EDS Genetics Study

/ by / 0 Comment
What: The Ehlers-Danlos Syndrome (EDS) Society is recruiting individuals to participate in a genetic evaluation study. ME/CFS and EDS have a range of similarities and overlap. EDS is a connective tissue disorder in which musculoskeletal pain, joint pain/hypermobility, and fragile skin ... Read More

We are building a movement at #MEAction UK. Join us!

/ by / 0 Comment
#MillionsMissing - organised by #MEAction - has been such a successful campaign this year, and we thank everyone in the ME community for your part in this. At #MEAction UK we are building a movement. We’ve grown #MillionsMissing, a campaign for ... Read More

#MillionsMissing from ME: Your Stories

/ by / 0 Comment
Myalgic encephalomyelitis (ME) is a debilitating, chronic disease that steals so much from the person. We received heart felt stories from around the globe chronicling journeys with ME. This week we touched on parenting, aging, marginalization, and careers. Today we ... Read More

Career and Loss for People with ME

/ by / 1 Comment
Myalgic encephalomyelitis (ME) is a debilitating, chronic disease that steals so much from people’s lives. People with ME may struggle with their identity through the loss or great change in their careers. Below are stories of individuals who found their ... Read More
#MillionsMissing in Edinburgh

Q&A with #MillionsMissing UK Organisers

/ by / 0 Comment
On Thursday 18th April, #MEAction UK held a conference call with organisers of #MillionsMissing event past and present from across the UK. There are already events planned for 2019 in all 12 UK regions, with over 25 events in the UK Claire ... Read More
Calculator on top of graph paper with pen to the right

CBT and GET survey results published by Forward-ME Group

/ by / 0 Comment
In January 2019, a survey investigating the impact of graded exercise therapy (GET) and cognitive behavioural therapy (CBT) for people with ME, CFS or PVFS diagnoses in the UK was made available online. It was intended to provide up-to-date data ... Read More

GET and CBT are not safe for ME – summary of survey results

/ by / 0 Comment
Listen to the recording:  #MEAction UK Lay Summary of the 2019 Forward ME Group CBT & GET Survey Topline findings A new patient survey of 2274 respondents has confirmed that graded exercise therapy (GET) is harming a large majority of people with ME ... Read More

A response to Dr. Mark Porter’s article about ME in The Times

/ by / 1 Comment
Last week, Dr. Mark Porter wrote an article in The Times under the headline, “Treatment for chronic fatigue syndrome is a complicated matter.” The following comments are intended as constructive criticism of that article, with the hope that they will ... Read More