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#MEAction UK

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Current UK calls to action
  • Urge your MP to attend Parliament Debate. A 3-hour Westminster Hall debate on Myalgic Encephalomyelitis (ME) treatment and research has been scheduled for Thursday, 21st June, 1:30-4:30 p.m. We need to encourage as many of our MPs as possible to attend. Contacting your MP has never been easier with this new tool. Simply enter your postal code below to get started. Contact your MP now.
  • Urge your MP to sign EDM 1247 recognising Myalgic Encephalomyelitis (ME) Awareness Week, the work being done by campaigners and charities to highlight ME as a physical condition, and acknowledging the detrimental effects of the PACE trial. Contact your MP now.
  • Support our #MEAction UK fundraiser to hire an on-the-ground organiser for advocacy, campaigns and medical outreach.

How to get involved

To get more involved in advocacy, education, and outreach in the UK, contact uk@meaction.net. You can also join a local Facebook group. Or, make an appointment to talk to a community organizer if you have questions about how best to get involved.


Create an action | Launch a petition | Start an event | Join a group | Talk to a community organizer

Latest UK News & Actions

Westminster Hall debate could a ‘turning of the tide’ for ME

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Today was a turning of the tide for Myalgic Encephalomyelitis (ME) as 26 MPs attended a Westminster Hall debate on treatment and research for ME.  MPs called for the immediate removal of Graded Exercise Therapy (GET) from the NICE guidelines, as patients ... Read More

Read ‘Invest in ME’s’ Parliamentary Briefing

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UK charity Invest in ME has written a briefing for the 21 June Westminster Hall debate that calls for £20 million in funding for biomedical research for five years. The briefing also provides an excellent summary of the disease and ... Read More

Two things to do ahead of Thursday’s Parliament debate

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A 3-hour Westminster Hall debate on Myalgic Encephalomyelitis (ME) treatment and research has been scheduled for Thursday, 21st June, 1:30-4:30 p.m (You'll be able to watch the live stream here). We want to encourage as many of our MPs as possible ... Read More

Read the new parliamentary briefing

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Next Thursday, Parliament will hold a 3-hour Westminster Hall debate on Myalgic Encephalomyelitis treatment and research in a monumental victory for the ME community. In preparation for the debate, #MEAction UK volunteers prepared a parliamentary briefing along with three other ... Read More

UK: Urge your MP to attend the 21st June debate on ME

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A 3-hour Westminster Hall debate on Myalgic Encephalomyelitis (ME) treatment and research has been scheduled for Thursday, 21st June, 1:30-4:30 p.m. We need to encourage as many of our MPs as possible to attend. Contacting your MP has never been ... Read More

#MEAction Scotland Speaks at Scottish Parliament Petitions Committee – Watch the Video

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#MEAction Scotland appeared before the Scottish Parliament Petitions Committee on June 7th to give evidence on its petition to review treatment of ME patients in Scotland.  Watch the hearing: Not all petitioners are called before the Parliament’s Petitions Committee, so the fact that #MEAction Scotland ... Read More

Learn More About the UK Parliamentary Briefing

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A key briefing to help parliamentarians understand the issues facing people affected by M.E. has been co-authored by #MEAction UK, the ME Association, Action for M.E., and the ME Trust. Read the Parliamentary briefing.  Our collaboration on this was prompted by ... Read More

UK MPS Secure Westminster Hall Debate on ME

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Mark your calendars! A 3-hour Westminster Hall debate on Myalgic Encephalomyelitis (ME) treatment and research has been scheduled for Thursday, 21st June, 1:30-4:30 p.m. The fight for a larger debate on ME has had cross party support with Carol Monaghan MP ... Read More

MPs Fight for House of Commons debate on ME in UK

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MPs across the parties in the U.K. came together today to argue the case for scheduling a debate about Myalgic Encephalomyelitis (ME) in the main chamber of the House of Commons. Watch the video below. Carol Monaghan MP joined five other ... Read More

Scottish Action – Urge your MSP to Support Petition for ME

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by Kim Gurav and Susan Cole #MEAction Scotland volunteers have been called before the Scottish Parliament’s Petitions Committee on Thursday, 7th June to give evidence on their petition to review treatment of ME patients in Scotland. The petition has received 7,000 ... Read More