Tag: science

OMF Receives $1 million Donation for ME/CFS Research

The Open Medicine Foundation received a $1 million anonymous pledge to escalate Dr. Ron Davis’s systems biology approach with Robert Phair, PhD, at the ME/CFS Collaborative Research Center at Stanford University.  This will expand the search for and testing of their “metabolic trap” hypothesis, and will enable Dr. Davis to hire an additional scientist with

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Open Medicine Foundation Announces Harvard Collaborative Research Center

Today, the Open Medicine Foundation announced that it had funded a new ME/CFS Collaborative Research Center at Harvard under Ron Tompkins and Wenzhong Xiao, to the tune of $1.8 million dollars. The Center will include with Massachusetts General Hospital (MGH), Brigham and Women’s Hospital, and Beth Israel Deaconess Medical Center. There are two main goals

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Dimmock, Mirin & Jason: Estimating disease-burden in the US

Yesterday, Mary Dimmock, Arthur Mirin and Leonard Jason published a hallmark study in disease burden in myalgic encephalomyelitis. Why is funding so low? Funding for ME/CFS is arguably the lowest per patient for any major disease in the United States, averaging to about $5 per patient per year.  Compare this to multiple sclerosis, an illness

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#MEAction Network UK's polling results for the proposed MEGA study

Last week, we asked for your thoughts on the proposed MEGA study. The poll ran for 5 days and 154 of you lent your voice to the concerns raised by many. Here are the results of the vote: “The study must include severely and moderately affected patients.” 140 of 154 voted this. (90.9%) “Those researchers/advisors

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Scientists find clues into cognitive dysfunction in chronic fatigue syndrome

A unique pattern of immune molecules in the cerebrospinal fluid of people with myalgic encephalomyelitis/chronic fatigue syndrome have been discovered, providing insights into the basis for cognitive dysfunction –frequently described by patients as ‘brain fog’– as well as new hope for improvements in diagnosis and treatment. Read more here

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