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Category Tag: Congress

U.S. Congress Introduces Resolution for ME

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Yesterday, the U.S. Congress introduced a resolution in the Senate to show support for research and medical education for Myalgic Encephalomyelitis (ME) ...

#MEAction Volunteer of the Month

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    The success of #MEAction - to achieve health equity for people with myalgic encephalomyelitis - is in the hands of hundreds of volunteers around the world who commit themselves to a vision, and give as much energy as their bodies allow to make it a reality. The work is ongoing, ...

Join SMCI on Capitol Hill for ME/CFS Advocacy Day

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The Solve ME/CFS Initiative’s second annual ME/CFS Advocacy Day is May 15th in Washington, D.C. Registration is recommended by April 1st ...

Urgent Congressional Action! Ask your Rep. to Sign Letter for ME/CFS

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URGENT Congressional Action! Please take this opportunity to call and email your House representative today to request they sign a letter that inserts favorable language about Myalgic Encephalomyelitis / Chronic Fatigue Syndrome (ME/CFS) into the House Appropriations Committee report for the FY19 budget. The deadline for your representative to sign the ...

Thank Senator Markey for Sponsoring the Congressional ME Briefing

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Back in February 2017, Senator Ed Markey (D-MA)  publicly announced at a packed town hall meeting that he would advocate for ME. A few short months later, he did just that! His first act as an ME advocate was to sponsor a Congressional Briefing on Capitol Hill on May 18th ...

URGENT Congressional Action: Ask your House Rep. to sign letter for ME

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  URGENT Congressional Action! Ask your House representative to sign a letter that inserts favorable language for ME into the House Appropriations Committee report on the FY18 budget.  Deadline to sign: Tues., April 4th. Contact your House rep. today! See instructions for calling and emailing below. ~ U.S. House Representatives Zoe Lofgren and Anna Eshoo have agreed ...

Congress delays vote on American Health Care plan – Act now

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Please note: #MEAction welcomes submissions from all contributors regarding issues that affect the health care of people living with Myalgic Encephalomyelitis. This action reflects the viewpoint of the individual submitter and not necessarily of #MEAction. We welcome all submissions regarding the American Health Care Act. #MEAction is a non-partisan organization, and is not affiliated ...

Join the webinar tomorrow: 6 Ways to Maximize Your Congressional Impact.

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Join SolveCFS for their first advocacy webinar on "6 ways to maximize your congressional impact." Thurs., March 2, 10-11 a.m. PST SMCI Advocacy and Engagement Manager, Emily Taylor, will lead the webinar, which is the first in Solve's advocacy webinar series: "Power to the Patients." To register for the free webinar, go here: ...

Congress is home & hosting public meetings

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U.S. House and Senate members are home in their districts for the month of February. Many will be holding public town hall meetings, tele-town meetings (via phone) or events this month. It’s a great opportunity to speak directly to your congressperson at a public gathering about the urgent need of congressional ...

Urgent: Take part in the US Congressional Call to Action

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#MEAction reported recently that the #MillionsMissing protests led to a number of meetings with government officials, including a meeting with Assistant Secretary for Health and Human Services Karen DeSalvo, and several meetings with congressional representatives. Continued work from the Congressional team at #MEAction has yielded fruit. We are proud to announce that ...