The #MEAction team will be taking memorial weekend off and will be out of the office until Tuesday!

Thank you for understanding!


Category Tag: Congress

Urgent – Contact Your Senators Now to Co-sponsor the ME/CFS Awareness Day Resolution

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Please contact your SENATORS and urge them to co-sponsor a ME/CFS Awareness Day Resolution NOW! Although the original co-sponsors would like to receive sign-ons as soon as possible and ideally by COB Wed, May 8th, they’re willing to accept co-sponsors up until the passage of the bill, targeted for this Fri, 5/10. Senators Markey ...

Ask Your Senators to Increase Funding for ME Research and Education

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    ***UPDATE: THIS ACTION IS NOW OVER*** Senator Markey is currently asking for support from his fellow Senators for TWO requests that can increase funding for ME! These requests would include: 1) Request $9.9 million for ME programs at the CDC (Labor-HHS committee) 2) Add ME to the Peer-Reviewed Medical Research Program (Defense committee) What our ...

#MEAction Welcomes U.S. Advocacy Manager

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We at #MEAction are so excited to welcome Erin Roediger as our new U.S. Advocacy Manager! We are thrilled that with Erin’s wealth of healthcare advocacy, volunteer coordination, and electoral campaign experience, we will be able to expand our congressional outreach program in concert with our partner organizations - the Solve ...

Learn how to Lobby Congress: Read our Toolkit

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Since its inception three years ago, the #MEAction Congressional team has worked hard to build relationships with members of Congress in order to gain their support for investing in biomedical research and clinical care for myalgic encephalomyelitis. Now, the Congress team has created a comprehensive manual for activists who want to ...

U.S. Congress Introduces Resolution for ME

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Yesterday, the U.S. Congress introduced a resolution in the Senate to show support for research and medical education for Myalgic Encephalomyelitis (ME) ...

#MEAction Volunteer of the Month: Congressional Advocate

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    The success of #MEAction - to achieve health equity for people with myalgic encephalomyelitis - is in the hands of hundreds of volunteers around the world who commit themselves to a vision, and give as much energy as their bodies allow to make it a reality. The work is ongoing, ...

URGENT Congressional Action: Ask your House Rep. to sign letter for ME

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  URGENT Congressional Action! Ask your House representative to sign a letter that inserts favorable language for ME into the House Appropriations Committee report on the FY18 budget.  Deadline to sign: Tues., April 4th. Contact your House rep. today! See instructions for calling and emailing below. ~ U.S. House Representatives Zoe Lofgren and Anna Eshoo have agreed ...

Congress delays vote on American Health Care plan – Act now

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Please note: #MEAction welcomes submissions from all contributors regarding issues that affect the health care of people living with Myalgic Encephalomyelitis. This action reflects the viewpoint of the individual submitter and not necessarily of #MEAction. We welcome all submissions regarding the American Health Care Act. #MEAction is a non-partisan organization, and is not affiliated ...

Join the webinar tomorrow: 6 Ways to Maximize Your Congressional Impact.

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Join SolveCFS for their first advocacy webinar on "6 ways to maximize your congressional impact." Thurs., March 2, 10-11 a.m. PST SMCI Advocacy and Engagement Manager, Emily Taylor, will lead the webinar, which is the first in Solve's advocacy webinar series: "Power to the Patients." To register for the free webinar, go here: ...

Urgent: Take part in the US Congressional Call to Action

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#MEAction reported recently that the #MillionsMissing protests led to a number of meetings with government officials, including a meeting with Assistant Secretary for Health and Human Services Karen DeSalvo, and several meetings with congressional representatives. Continued work from the Congressional team at #MEAction has yielded fruit. We are proud to announce that ...