#MEAction's Top 10 Accomplishments of 2025

This year has been hard- we know because we have been on the ground fighting for ME and Long COVID every single day. 

In 2025, #MEAction has accomplished a lot. Just take a look below.

1. Advocating for funding for the ME/CFS Research Roadmap: Secured a meeting with the NIH Director, and got the roadmap included in Congress’ draft appropriations language.
   

2. Helping Minnesotans with ME/CFS and Long COVID apply for home care support by launching the Minnesota Home Help Navigation Program.
   

3. Fighting to protect healthcare for our community: campaigning to protect Medicaid and Telehealth.
   

4. Supporting and building community through online support groups, workshops on grief, author Q&A’s, modified movement classes and caregiving workshops.
   

5. Making ME a household name in the press: dozens of press hits in Mother Jones, Medpage Today, STAT News, Vox and more.
   

6. Providing clinical support at the Mayo Clinic by developing and implementing a Pacing Narrative Study. The first paper using data from our Pacing Narrative Survey was published recently!
   

7. Educating medical school students by authoring a textbook chapter on ME/CFS. 
   

8. Featuring the amazing artists in our community through the Writer’s Guild partnership (won an award at the WGI gala!), Pillow Writers, artists salons, and our Severe ME Artists Project. 
   

9. Putting ME into the medical and university spotlight by leading workshops at Quinnipiac University. 
   

10. Creating guides for our community that help individuals in hospital settings, prepare for disability home visits and so much more. 

To do this work, we have to have funds to make it happen- and that’s just the truth. Donate today to help us fight for you in 2026!

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