NEWS

#MEAction is thinking of our community during these unpredictable times.You’re doing your best. Reaching out for help takes courage and vulnerability. You deserve to feed yourself and anyone you care for with dignity. Finding help isn’t charity. It’s survival, community, and resilience.Here are some resources to help keep your fridge stocked: Call 2-1-1 (just dial 211) for your zip code — they’re a free hotline linking to local food pantries, soup kitchens, and emergency food

This year has been hard- we know because we have been on the ground fighting for ME and Long COVID every single day. In 2025, #MEAction has accomplished a lot. Just take a look below.1. Advocating for funding for the ME/CFS Research Roadmap: Secured a meeting with the NIH Director, and got the roadmap included in Congress’ draft appropriations language.2. Helping Minnesotans with ME/CFS and Long COVID apply for home care support by launching the Minnesota Home Help Navigation

Join our social media campaign to advocate for Medicaid and ACA.

WGI Workshops start in November. Apply today!

Issue 2 features poems, stories, and essays by 28 writers who call themselves the Pillow Writers and share more than 100 pages of their poetry, fiction and essays.

The launch of the Minnesota Home Help Navigation Program is proof that advocacy works.

With the Minnesota Home Help Navigation Program now underway, here’s an inside look at the strategic choices in our patient-led playbook.

Meet #MEAction’s Newest Staff Member- Linda Pozen

Learn more about this year’s project

Share this message about #MillionsMissing with your own networks.

#MEAction Scotland will be outside Scottish Parliament in Edinburgh on Wednesday 14th May, from 12–2pm, calling on the Scottish Government to act on its promises.

#MEAction Georgia's Maggie Boxey gave a TEDx talk about her experience as a person with ME.

On May 12th, we're sending out an SOS to Congress to Save our Support Systems, our Science, and our Society.

#MEAction is excited to announce we are partnering with the Writers Guild Initiative again to offer creative writing workshops for people with ME and Long COVID!

Stuart Murdoch (Belle and Sabastian) will be interviewed by #MEAction Minnesota’s leader, Terri L Wilder, about his recently released novel, Nobody’s Empire.

For #MillionsMissing 2025, #MEAction is sending out an SOS.

I have been honored as I have watched our volunteers share what makes them powerful and who they see power in for Women’s History Month. I hope you will look back on what has been shared so far!

Where we stand with the federal administration massively cutting Medicaid and threatening to get rid of Telehealth extensions: we still have a long road ahead of us.

#MEAction GA volunteer uses her Baby Deer Bakery to spread awareness for ME and help raise funds for #MEAction.

Today is Long COVID Awareness day, and we want to lift up the importance of Long COVID advocacy. We ask you to share this video created by #MEAction volunteers today.