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MEDICAID​​

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​​​This is a very SCARY time for healthcare! We are people with ME/CFS and Long COVID that unite against the Medicaid cuts and ACA Premium increases. The $1 trillion in Medicaid cuts will harm the most vulnerable, and the ACA premium hikes will steal affordable healthcare from tens of millions of Americans. 

 

NOW is the time time call your Congress Member as our government is shut down in a stand-off over these healthcare changes. Congressional staff keep track of the number of calls and emails they receive in support or opposition to issues!  CLICK BELOW for our call script. 

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TAKE ACTION ON MEDICAID ORGANIZED BY ENERGY EXPENDITURE

We understand if you don't have the spoons to call your Congress Member! Below are ways to take action organized by battery level! 

LEVEL 0: Empty battery!​​​

Self-care and rest are acts of resistance. Stay with us. Join in if and when your body safely allows. You are important! Your continued existence is critical.

LEVEL 1: Share or interact with posts on social media that are sharing these actions or telling stories. (Lightest exertion)

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Many Disability organizations are sharing actions right now. Please share any posts by #MEAction about this issue as well. Ask your networks to join in!

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LEVEL 2: Email your senators and house representative

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Use current actions offered by the following orgs. 
 

  1. Caring Across Generations

  2. The ARC

  3. Write your own email. Find your members of Congress here.

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LEVEL 3: Call your Senators/House Members​​​​​​​

 

* Find your congressperson here. It will have their DC phone numbers but you can look for their local office numbers as well.​

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HERE'S WHAT TO SAY​

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For People with ME or Long COVID:

 

** NOTE: IF LEAVING A VOICEMAIL: Please leave your full street address to ensure your call is tallied.

 

"Hello, my name is [NAME]. I'm a constituent from [STREET NAME in CITY/TOWN, ZIP CODE]. I'm calling about Medicaid and ACA premiums, and urge [SENATOR'S NAME] to protect people with chronic illnesses from losing their healthcare. I live with a highly debilitating chronic illness known as ME/CFS - which affects half of the Long COVID community. 75 percent of our community are too sick and disabled to work. 

 

Millions of Americans depend on Medicaid and the ACA to survive. I urge you to reverse the cuts to Medicaid, and extend the premium tax credits for ACA. 

 

[Provide any personal details about your experience with Medicaid and ACA, if applicable.] 

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Thank you."

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For CAREGIVERS:

 

** NOTE: IF LEAVING A VOICEMAIL: Please leave your full street address to ensure your call is tallied.

 

"Hello, my name is [NAME]. I'm a constituent from [STREET NAME in CITY/TOWN, ZIP CODE]. I'm calling about Medicaid and ACA premiums, and urge [SENATOR'S NAME] to protect people with chronic illnesses from losing their healthcare. I am a caretaker to a [child / partner / spouse, etc] with ME/CFS, which is a highly debilitating chronic illness that affects half of the Long COVID community. 75 percent of people with ME/CFS are too sick and disabled to work. 

 

Millions of Americans depend on Medicaid and the ACA to survive. I urge you to reverse the cuts to Medicaid, and extend the premium tax credits for ACA.

 

[Provide any personal details about your experience with Medicaid and ACA, if applicable.] 

 

Thank you."

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LEVEL 4: Share your story

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From Caring Across Generations toolkit: 

 

Your story is powerful, and storytelling is the most effective way to move Members of Congress who are considering cuts and harms to Medicaid and other care programs. You can make it personal, be specific, and focus on what Medicaid means to your life and the lives of your loved ones. Does it mean you get the support you need to stay in your home? Does it mean you have coverage for your health care needs and provide you access to treatment? Does Medicaid cover your parents’ home care? Don’t be afraid to be emotional about how hard it is to give and receive care because of our patchwork system, and how much worse it would be if Medicaid was cut.

 

You can share these stories on social media, with your Congressional representatives, to your state representatives and Governor, and in local press, through op-eds, letters to the editor, and interviews with reporters interested in health care and care broadly.

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LEVEL 5: Make a visit to your local Congressional offices. (Highest exertion)

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Instructions to request a visit from Caring Across Generations toolkit:

 

To set up a meeting with staff for your representatives, check who your federal representatives are at Congress.gov by putting in your address. You can either ask for a meeting over email or over the phone! 

 

Here’s a sample script to request a meeting:

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Hi! My name is [NAME], and I’m a constituent of [SENATOR] from [TOWN or CITY]. As your constituent, I am deeply concerned about the cuts to Medicaid passed by the House. I would like to talk to the office about why Medicaid is a crucial part of my life.

 

Is there a time that would be good for a Health staff member to meet with me? 

 

Thank you,

[YOUR NAME, CITY or TOWN]

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For more information, see our Protect Medicaid 2025 Toolkit.

We also collaborate with other orgs that have actions you can take.  

 

Caring Across Generations: 

Email: https://go.caringacross.org/a/no-cuts-protect-medicaid

Call: https://go.caringacross.org/a/call-congress-no-medicaid-cuts-budget

 

AAPD: https://aapd.quorum.us/campaign/125225

 

The ARC has a state by state fact sheet that could be helpful: https://thearc.org/resource/medicaid-data-points-by-state/


If you prefer to join a phone bank, People’s Action has one here: https://www.mobilize.us/peoplesaction/event/759686/

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