NEWS

Like you, we have been watching horrors unfold especially in Minnesota. We have been checking on our #MEAction Minnesota community and sending all our love and support. This situation is heartbreaking and sickening. We’ve heard your requests to find ways to help, so we’ve created a campaign with disability activist partners so you can contact congress, sign an open letter, and share on social media. We also highlight resources and groups on the ground that you can support. IC

I don’t need to tell you that these are extraordinarily difficult times. Across the country, we’re witnessing devastating cuts, acts of injustice, and widespread attacks on human rights. It’s overwhelming, it’s frightening—and yet, in moments like this, our purpose becomes even more clear. We are here to protect and uplift our community, especially those most vulnerable.Right now, unprecedented reductions in healthcare funding threaten millions of Americans, including people

Good news: Congress has extended Telehealth until January 31,2026 as part of a deal to end the government shutdown.This is not a permanent solution. So, we must continue to put pressure on Congress to make telehealth for Medicare permanent. Join #MEAction in putting pressure on Congress to make Telehealth for Medicare permanent! Call your Member now using our call script, and tell Congress to stop messing around with your healthcare!For people with ME and Long COVID, Teleheal

This year has been hard- we know because we have been on the ground fighting for ME and Long COVID every single day. In 2025, #MEAction has accomplished a lot. Just take a look below.1. Advocating for funding for the ME/CFS Research Roadmap: Secured a meeting with the NIH Director, and got the roadmap included in Congress’ draft appropriations language.2. Helping Minnesotans with ME/CFS and Long COVID apply for home care support by launching the Minnesota Home Help Navigation

Join our social media campaign to advocate for Medicaid and ACA.

The launch of the Minnesota Home Help Navigation Program is proof that advocacy works.

With the Minnesota Home Help Navigation Program now underway, here’s an inside look at the strategic choices in our patient-led playbook.

Pilot program offers free support for Minnesotans with energy-limiting illness

Meet #MEAction’s Newest Staff Member- Linda Pozen

#MEAction has been working hard with #NotJustFatigue to advocate for the ME/CFS Research Roadmap and it has paid off! The Senate Appropriations Committee included the roadmap in their report!

The Minnesota Department of Health's Long COVID program has been saved from elimination!

On Wednesday 14th May 2025, #MEAction Scotland held Millions Missing Scotland outside the Scottish Parliament in Edinburgh.

We reached 7,000 signatures on our last letter. This time, our goal is 10,000. Please sign the letter today and share it with your friends and family.

Share this message about #MillionsMissing with your own networks.

#MEAction Scotland will be outside Scottish Parliament in Edinburgh on Wednesday 14th May, from 12–2pm, calling on the Scottish Government to act on its promises.

It’s time to send out our SOS signal if we want to have funded research.

For #MillionsMissing 2025, #MEAction is sending out an SOS.

The White House has abruptly announced that it is terminating funding for NIH RECOVER grants studying Long COVID, effectively stopping 45 studies that were almost complete.

Where we stand with the federal administration massively cutting Medicaid and threatening to get rid of Telehealth extensions: we still have a long road ahead of us.

#MEAction GA volunteer uses her Baby Deer Bakery to spread awareness for ME and help raise funds for #MEAction.