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NEWS
Read the latest in ME news and campaigns—never miss a beat!
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Let’s Use Spooky Season To Advocate for Medicaid & the ACA
Join our social media campaign to advocate for Medicaid and ACA.
Oct 211 min read
Advocacy Works: Fighting for ME/CFS and Long COVID in Minnesota
The launch of the Minnesota Home Help Navigation Program is proof that advocacy works.
Sep 172 min read
Inside Our Playbook: 6 Strategic Choices Behind Our Minnesota Pilot
With the Minnesota Home Help Navigation Program now underway, here’s an inside look at the strategic choices in our patient-led playbook.
Sep 173 min read
Guiding Minnesotans Living with Long COVID & ME/CFS to Secure In-Home Help
Pilot program offers free support for Minnesotans with energy-limiting illness
Sep 32 min read
New Staff Introduction: Linda Pozen
Meet #MEAction’s Newest Staff Member- Linda Pozen
Sep 32 min read
Celebrating A Big Senate Win
#MEAction has been working hard with #NotJustFatigue to advocate for the ME/CFS Research Roadmap and it has paid off! The Senate Appropriations Committee included the roadmap in their report!
Aug 11 min read
Minnesota’s Long COVID Funding Saved from Elimination
The Minnesota Department of Health's Long COVID program has been saved from elimination!
Jun 113 min read
Millions Missing Scotland 2025 raises a red alert
On Wednesday 14th May 2025, #MEAction Scotland held Millions Missing Scotland outside the Scottish Parliament in Edinburgh.
Jun 12 min read
Research Roadmap Petition
We reached 7,000 signatures on our last letter. This time, our goal is 10,000. Please sign the letter today and share it with your friends and family.
May 71 min read
Share This SOS Image On Your Socials
Share this message about #MillionsMissing with your own networks.
Apr 281 min read
Millions Missing Scotland 2025: Red alert for ME
#MEAction Scotland will be outside Scottish Parliament in Edinburgh on Wednesday 14th May, from 12–2pm, calling on the Scottish Government to act on its promises.
Apr 275 min read
SOS: Save our Science
It’s time to send out our SOS signal if we want to have funded research.
Apr 116 min read
#MillionsMissing 2025: Sending Out An SOS
For #MillionsMissing 2025, #MEAction is sending out an SOS.
Apr 22 min read
White House Halts Funding for Long COVID Grants
The White House has abruptly announced that it is terminating funding for NIH RECOVER grants studying Long COVID, effectively stopping 45 studies that were almost complete.
Mar 272 min read
Join the Fight for Medicaid & Telehealth
Where we stand with the federal administration massively cutting Medicaid and threatening to get rid of Telehealth extensions: we still have a long road ahead of us.
Mar 262 min read
Volunteer’s Bakery Spreads ME Awareness + Raises Funds
#MEAction GA volunteer uses her Baby Deer Bakery to spread awareness for ME and help raise funds for #MEAction.
Mar 194 min read
Long COVID Awareness Day
Today is Long COVID Awareness day, and we want to lift up the importance of Long COVID advocacy. We ask you to share this video created by #MEAction volunteers today.
Mar 142 min read
Why I Joined a Stand Up for Science Rally
Why I joined more than 1,000 protesters at a Stand Up for Science rally in Madison, WI to fight for the funding of critical science.
Mar 122 min read
MEAction Scotland publishes 2024 Impact Statement
Read #MEAction Scotland's 2024 Impact Statement.
Mar 121 min read
Press Release: Advocates Urge Administration to Reinstate Long COVID Advisory Committee
#MEAction and PLRC delivered a letter to HHS Secretary, Robert F. Kennedy, Jr. this past week, calling for him to reinstate the Long COVID Advisory Committee.
Mar 62 min read
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