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#MEAction & Mayo win Grant for Diagnostic Improvement

  • Writer: #MEAction
    #MEAction
  • Sep 22, 2022
  • 3 min read

Amazing news! #MEAction and Mayo Clinic applied for a grant together from the Society to Improve Diagnosis in Medicine to transform the diagnostic and treatment process at Mayo Clinic Rochester for people with ME/CFS!


After several preliminary discussions between our Director of Scientific and Medical Outreach, Jaime Seltzer, and Dr. Stephanie Grach and Dr. Ravindra Ganesh of Mayo Clinic, we decided to embark on an exciting project together: applying for SIDM’s annual seed grant to improve diagnostic quality and reduce harm from diagnostic error. 


And we were successful! #MEAction and Mayo Clinic won the grant together!


Our Team:


Dr. Stephanie Grach, MD

Dr. Ravindra Ganesh, MD

Dir. Jaime Seltzer, MS


#MEAction and Mayo Clinic will collaborate to produce the following:


  1. A CME course using patient advocate and medical expertise to educate clinicians on the signs, impact, and management of chronic complex diseases like ME/CFS and Long COVID. The video for the CME will be embedded within a pre- and post-test consisting of case- and confidence-based questions to assess both objective and subjective learner improvement.


  2. In partnership, we will create a dedicated webpage for the project. This will include:


    1. the video/CME, a collaborative, case-based intervention, written and produced by #MEAction and Mayo staff


    2. a diagnostic algorithm with management recommendations, including referral to the Mayo Clinic Chronic Fatigue Syndrome Clinic, on AskMayoExpert.


      AskMayoExpert is the primary point-of-care clinical knowledge resource utilized and curated by clinicians across Mayo Clinic. Each page provides clinical overviews with information on diagnosis and treatment through clinical algorithms known as care process models; a designated topic expert; guidelines and resources, including patient education; and clinical trials. Accuracy of care at Mayo Clinic, including diagnosis and treatment recommendations, has been shown to improve with use of AskMayoExpert compared to other web-based resources.


    3. resources for patients, including an informative handout to share with their medical provider.


The algorithm and information will be accessible to all Mayo Clinic providers and external subscribers, meaning that any medical provider anywhere will be able to access the content. While some AskMayoExpert pages are proprietary, we will ensure ours may be scaled and replicated at other institutions, providing a direct means of assessing and educating any provider. The information will stay accessible beyond the initial implementation, supporting long-term education and practices for years to come.


Collage of healthcare and educational logos, including St. John's, Nationwide, Yale, Mayo Clinic, and Harvard, on a white background.
Logos of all the DxQI Grantee Organizations

In addition to our work funded by the grant, we have also created new, up-to-date Mayo landing pages for ME/CFS. These pages are currently going through the approval process.



Accurate, timely diagnosis & treatment means everything for people with ME/CFS




Jennie Ward-Robinson, PhD, MPH, Chief Executive Officer, SIDM. She wears glasses, and a patterned jacket and pearl necklace. Light blue background, warm and professional mood.

Jennie Ward-Robinson,

PhD, MPH

Chief Executive Officer, SIDM

“Inaccurate or delayed diagnoses are the most common, catastrophic, and costly of all medical errors. The DxQI Seed Grant Program is designed to stimulate innovation in the field of diagnostic quality, an area where practice improvement activity is lagging. Through engaging health professionals and patients in creating, developing and testing promising interventions, the program unleashes the ingenuity of the healthcare community and directs that energy to addressing this issue.”​

Through this project, #MEAction and Mayo Clinic will improve the care and health outcomes of patients with often post-infectious disease by providing clinicians with new knowledge to reduce barriers to diagnosis and, simultaneously, a permanent tool to guide providers in management for all future encounters.


Our work is made possible thanks to your support. If you value this work, please consider making a donation today.



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