top of page
NEWS
Read the latest in ME news and campaigns—never miss a beat!
Search
Chronically Ill Community Responds to CMS Ruling on Medicaid
Communities living with energy-limiting, “invisible” chronic diseases are deeply concerned by the Centers for Medicare & Medicaid Services (CMS) interim final rule released last week that will make it even more difficult to receive exemptions from Medicaid work requirements than previously laid out in HR1 last fall. The interim rule will make the process of receiving work requirement exemptions more difficult for people with ME/CFS, Long COVID, and other infection-associated
5 days ago3 min read
We’re furious: Last-minute changes to defining medical frailty
Medicaid work requirements exemptions are being restricted
Jun 43 min read
4,000 Voices Heard by HHS. Here's What Comes Next.
Nearly 4,000 of you signed our letter to Secretary Kennedy calling on HHS to protect Medicaid access for people with ME and Long COVID.
May 202 min read
We Made Real Progress at #MillionsMissing — Here's What's Next
We built key relationships to protect Medicaid for ME and Long COVID. Now we need your help to keep going.
May 142 min read
#MEAction Urges HHS to Exempt ME/CFS and Long COVID Communities from Medicaid Work Requirements
On May 12th, the ME/CFS and Long COVID community are gathering outside the Department of Health and Human Services to call on HHS policymakers to intervene before tens of thousands of people with the debilitating diseases of ME/CFS and Long COVID lose access to the healthcare they need to survive.
May 83 min read
#MEAction Sends Letter to Dr. OZ Urging for Medicaid Protection
Join our fight to protect Medicaid for our community!
Apr 282 min read
#MEAction Sends Letter to 42 States Urging Recognition of ME/CFS and Long COVID as Serious Medical Conditions
#MEAction is fighting to protect your Medicaid access. We’re taking action in 42 states and at the federal level to ensure ME/CFS and Long COVID are recognized and protected.
Mar 132 min read
When Care is Threatened, Community is Our Strength
I don’t need to tell you that these are extraordinarily difficult times. Across the country, we’re witnessing devastating cuts, acts of injustice, and widespread attacks on human rights. It’s overwhelming, it’s frightening—and yet, in moments like this, our purpose becomes even more clear. We are here to protect and uplift our community, especially those most vulnerable.Right now, unprecedented reductions in healthcare funding threaten millions of Americans, including people
Jan 222 min read
Freakin' Frail Campaign
New Medicaid work rules will take effect at the end of 2026. Our care and support systems have long been rigged against disabled people, and these new paperwork rules will push even more sick people off the care and support they need.Please sign our letter to the HHS Secretary urging him to recognize people with ME/CFS and Long COVID as “medically frail” so that their access to Medicaid is protected.Why Medically Frail Congress has mandated that Medicaid recipients work 80 ho
Dec 12, 20251 min read
bottom of page