NEWS

More than 79,000 comments were submitted—and every one must be reviewed by CMS.

#MEAction has submitted its official public comment to the Centers for Medicare and Medicaid Services (CMS) about their new Medicaid work requirements regulations. There are just a few more days for you to submit your own public comment before the deadline at 11:59pm EST on Friday, July 31st. You don’t need to be a policy expert to make your voice heard. Use our easy template to share your story. Please support our work to help us continue the fight to recognize ME and Long C

This has been a remarkable month for #MEAction and I wanted to share the news directly with you.We are closer than ever to getting the ME/CFS Research Roadmap funded.Building on the Congressional relationships we developed in May through our partnership with #NotJustFatigue, #MEAction met with six offices of members of the Labor-HHS Appropriations Subcommittee over the last two weeks to request $50 million in dedicated funding for the ME/CFS Research Roadmap. We have received

People with ME and Long Covid should be exempt from work requirements, period. Join our fight.

Communities living with energy-limiting, “invisible” chronic diseases are deeply concerned by the Centers for Medicare & Medicaid Services (CMS) interim final rule released last week that will make it even more difficult to receive exemptions from Medicaid work requirements than previously laid out in HR1 last fall. The interim rule will make the process of receiving work requirement exemptions more difficult for people with ME/CFS, Long COVID, and other infection-associated

Medicaid work requirements exemptions are being restricted

Nearly 4,000 of you signed our letter to Secretary Kennedy calling on HHS to protect Medicaid access for people with ME and Long COVID.

We built key relationships to protect Medicaid for ME and Long COVID. Now we need your help to keep going.

On May 12th, the ME/CFS and Long COVID community are gathering outside the Department of Health and Human Services to call on HHS policymakers to intervene before tens of thousands of people with the debilitating diseases of ME/CFS and Long COVID lose access to the healthcare they need to survive.

Join our fight to protect Medicaid for our community!

#MEAction is fighting to protect your Medicaid access. We’re taking action in 42 states and at the federal level to ensure ME/CFS and Long COVID are recognized and protected.

I don’t need to tell you that these are extraordinarily difficult times. Across the country, we’re witnessing devastating cuts, acts of injustice, and widespread attacks on human rights. It’s overwhelming, it’s frightening—and yet, in moments like this, our purpose becomes even more clear. We are here to protect and uplift our community, especially those most vulnerable.Right now, unprecedented reductions in healthcare funding threaten millions of Americans, including people

New Medicaid work rules will take effect at the end of 2026. Our care and support systems have long been rigged against disabled people, and these new paperwork rules will push even more sick people off the care and support they need.Please sign our letter to the HHS Secretary urging him to recognize people with ME/CFS and Long COVID as “medically frail” so that their access to Medicaid is protected.Why Medically Frail Congress has mandated that Medicaid recipients work 80 ho