MEAction Staff are Fighting for Your Medicaid!
MEAction staff are working hard to educate policymakers and the wider community about how changes to Medicaid policy could impact the ME/CFS and Long COVID communities.
Upcoming: MEAction’s Advocacy Director, Ben HsuBorger, has been invited to join as a panelist for a Grassroots webinar on Nov. 16th about “the impact of medical frailty exemptions on people with disabilities and older adults.”
Ben will discuss how people who are considered “medically frail” could be exempt from Medicaid’s work requirements, what that process will look like, and the challenges of protecting vulnerable communities like ours.
Join the Grassroots Webinar on Nov. 16th at 3 p.m. ET.
And, in case you missed it, MEAction’s Advocacy Manager, Therese Russo, joined MassME’s 2026 Annual Meeting to share about MEAction’s Frail & Furious campaign, which is organizing people across states to advocate for Medicaid access for people with ME/CFS, Long COVID, and other infection-associated chronic conditions (IACCs).
Therese discussed the “medical frailty” exemption; and shared about MEAction’s work with state Medicaid leaders and community members, and ways you can take part in the campaign.
Watch the Presentation
Join the Fight to Protect Our Medicaid!
There are many ways to join our work fighting to protect Medicaid for our communities. Here are our top 3:
Email MEAction with contacts at your state’s Department of Health so we can reach the right decision makers. Send tips to advocacy@meaction.net.
Advocate for Medicaid access at your state’s stakeholder meeting! States are holding meetings and webinars about work requirement implementation this fall. Visit this page - and click the link for your state to find out more. If you plan to attend a meeting, see our community campaign brief for talking points. Then, tell us about how the meeting went so we can track advocacy happening across the country.
Come to your state chapter’s meeting! Find your state or regional chapter meeting on this event page. Are you in a state without a chapter but want to get involved? Email advocacy@meaction.net.
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