Dear New York Community- We need urgent action now to persuade New York Governor Kathy Hochul to sign our ME/CFS bill into law! Take action now! Thanks to you and the #MEAction community, bill A7712B/S6928B, which provides for a myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) education and outreach program in New York, finally passed both the New York State Assembly and Senate. Last Wednesday, June 22nd, the bill was delivered to Governor Kathy Hochul, and she now

Learn more about temperature dysregulation in this month's #FacetsofME feature.

After taking #MEAction's photography workshop with photographer Lucia Doynel for #MillionsMissing, Terra Dumont produced these stunning photos as a glimpse into her life as someone living with ME/CFS. Terra spread this experience over 7 days, focusing on a different theme each day. See her wonderful work and accompanying commentary below.

The U.S. Department of Labor’s Office of Disability Employment Policy (ODEP) has updated the information on ME/CFS provided at its Job Accommodation Network website to align with the most current CDC guidance. This action will help workers and employers find accurate information on ME/CFS and combat stigma and improve workplace outcomes.At #MEAction’s recent meeting with ODEP we notified them that their informational resource on “Chronic Fatigue Syndrome” was out of date and

Welcome to April’s #FacetsOfME where we will focus on loneliness and how this illness affects our need for connection and relationships.

Learn more about cognitive dysfunction in this months #FacetsofME feature.

When discussing the facets of ME, it seems almost impossible to start with anything other than post-exertional malaise (PEM).

When discussing the facets of ME, it seems almost impossible to start with anything other than post-exertional malaise (PEM).

#MEAction has written to the NIH expressing our deep concern over the RECOVER Initiative.

Experts at the #MEAction briefing linked long COVID to myalgic encephalomyelitis (ME) and urged NIH to research both conditions together.

A new education module designed to teach healthcare professionals about ME has been released. Send the new module to your GP, using our email template.

Over the last many months, social media platforms like Twitter, Facebook, and YouTube have been  flooded with disinformation  about COVID-19. We wanted to make you aware of the problem, equip you with tools for how to recognize and respond to disinformation, and enlist your help keeping our community safe. According   to   numerous   reports , much of this disinformation comes from organized campaigns by domestic groups or foreign governments. They rely on a mix of fake acco

We’re incredibly pleased to announce that we not only met but exceeded our initial goal of sending 6,000 postcards out into the world!

After many, many months of writing, editing and revising, #MEAction Scotland is finally ready to launch its manifesto! Thank you to all...

After the recent RCGP Annual Primary Care Conference & Exhibition held in Glasgow, it seems appropriate to reflect on the impact of the conference on educating GPs about ME/CFS.

We're thrilled to welcome Jaime Seltzer as our Director of Scientific and Medical Outreach.

#MEAction Scotland appeared before the Scottish Parliament Petitions Committee on June 7th to give evidence on its petition to review treatment of ME patients in Scotland.

The Time for Unrest event at the Scottish Parliament on 30 th January was an opportunity to raise awareness of Myalgic Encephalomyelitis...

Press Release Details of the Event Millions Missing Edinburgh protest is being held from 1200-1400 on Friday 12th May outside the...