top of page
NEWS
Read the latest in ME news and campaigns—never miss a beat!
Search
United States


Writers Guild Initiative Writing Workshops: Apply Today
#MEAction is excited to announce we are partnering with the Writers Guild Initiative again to offer creative writing workshops for people with ME and Long COVID!
Apr 42 min read


#MillionsMissing 2025: Sending Out An SOS
For #MillionsMissing 2025, #MEAction is sending out an SOS.
Apr 22 min read


White House Halts Funding for Long COVID Grants
The White House has abruptly announced that it is terminating funding for NIH RECOVER grants studying Long COVID, effectively stopping 45 studies that were almost complete.
Mar 272 min read


Women’s History Month
I have been honored as I have watched our volunteers share what makes them powerful and who they see power in for Women’s History Month. I hope you will look back on what has been shared so far!
Mar 273 min read


Join the Fight for Medicaid & Telehealth
Where we stand with the federal administration massively cutting Medicaid and threatening to get rid of Telehealth extensions: we still have a long road ahead of us.
Mar 262 min read


Office of Long COVID at HHS Closing
Read the statement from Ian Simon, the head of the Long COVID Office at Department of Health and Human Services.
Mar 252 min read


Trump Cuts Funding for ME/CFS Centers at Columbia University
This devastating decision includes the loss of NIH funding for one of the nation’s few Collaborative Research Centers focused on ME/CFS.
Mar 202 min read


Volunteer’s Bakery Spreads ME Awareness + Raises Funds
#MEAction GA volunteer uses her Baby Deer Bakery to spread awareness for ME and help raise funds for #MEAction.
Mar 194 min read


Why I Joined a Stand Up for Science Rally
Why I joined more than 1,000 protesters at a Stand Up for Science rally in Madison, WI to fight for the funding of critical science.
Mar 122 min read


Press Release: Advocates Urge Administration to Reinstate Long COVID Advisory Committee
#MEAction and PLRC delivered a letter to HHS Secretary, Robert F. Kennedy, Jr. this past week, calling for him to reinstate the Long COVID Advisory Committee.
Mar 62 min read


Town Hall Summary
Tuesday’s Town Hall was powerful. It was wonderful to have such thoughtful speakers gather to consider the policies that will affect the disability and chronic illness communities the most.
Feb 282 min read


#MEAction’s Medical Flashcards Featured by CDC!
#MEAction's Anki Flashcards have been recommended by the CDCon its new ME/CFS page for medical students!
Feb 201 min read
Cochrane Collaboration Cancels Independent Analysis of Exercise Therapy Review for ME/CFS
#MEAction is raising the alarm about Cochrane Collaboration's sudden decision to abandon an independent analysis of the 2019 review of exercise therapy for ME/CFS.
Jan 244 min read


#MEAction Georgia: Voice of the Patient in Coordination with CDC & Emory School on Nursing
Back in September, #MEAction Georgia partnered with the CDC and Emory School of Nursing to host Voice of the Patient: A Panel Discussion with #MEAction Georgia.
Jan 84 min read


Home Test To Treat – Findings Summary
#MEAction and Body Politic collaborated last spring, with a new national telehealth program, Home Test to Treat. We are now able to share initial findings from the program!
Jan 71 min read


Exploring the Galaxies: Day In the Life of Our Community Engagement & Social Media Manager
We are now entering our 3rd #MEAction galaxy tour! Enjoy the journey as we share a typical day in the life of our Community Engagement and Social Media Manager, Holly Latham!
Dec 18, 20244 min read


We Are Fighting for YOU Everyday! Here’s How…
#MEAction is fighting for you, each and every day. We have undertaken so many incredible projects this year, but we need your support to keep the fight going!
Dec 17, 20242 min read
Exploring the Galaxies: Day In the Life of Our Director U.S Advocacy Director
We only have 17 days left for our End Of Year Fundraiser!
Dec 13, 20244 min read


Support Keeping Telehealth – Take Action Today!
Expanded telehealth coverage for Medicare is set to expire at the end of this year, December 31st!
Dec 11, 20242 min read


Exploring the Galaxies: Day in the Life of Activist & Volunteer Coordinator
Read about a day in the life of our Activist & Volunteer Coordinator, Shalida Dobbins!
Dec 5, 20243 min read
bottom of page





