The Minnesota Department of Health's Long COVID program has been saved from elimination!

Sick and disabled people are protesting today, Monday, May 12th at the Capitol to tell Congress that forcing chronically ill people to work in order to keep their Medicaid healthcare will only make our country sicker and more reliant on government services. 

We cannot allow our elected officials to harm chronically ill and disabled people with rampant cuts. This is yet another SOS moment for people in our community.

We reached 7,000 signatures on our last letter. This time, our goal is 10,000. Please sign the letter today and share it with your friends and family.

Share this message about #MillionsMissing with your own networks.

#MEAction has been hard at work connecting individuals to their elected officials to talk about the ME/CFS Research Roadmap, Medicaid, and telehealth.

#MEAction Georgia's Maggie Boxey gave a TEDx talk about her experience as a person with ME.

On May 12th, we're sending out an SOS to Congress to Save our Support Systems, our Science, and our Society.

#MEAction is excited to announce we are partnering with the Writers Guild Initiative again to offer creative writing workshops for people with ME and Long COVID!

For #MillionsMissing 2025, #MEAction is sending out an SOS.

The White House has abruptly announced that it is terminating funding for NIH RECOVER grants studying Long COVID, effectively stopping 45 studies that were almost complete.

I have been honored as I have watched our volunteers share what makes them powerful and who they see power in for Women’s History Month. I hope you will look back on what has been shared so far!

Where we stand with the federal administration massively cutting Medicaid and threatening to get rid of Telehealth extensions: we still have a long road ahead of us.

Read the statement from Ian Simon, the head of the Long COVID Office at Department of Health and Human Services.

This devastating decision includes the loss of NIH funding for one of the nation’s few Collaborative Research Centers focused on ME/CFS.

#MEAction GA volunteer uses her Baby Deer Bakery to spread awareness for ME and help raise funds for #MEAction.

Why I joined more than 1,000 protesters at a Stand Up for Science rally in Madison, WI to fight for the funding of critical science.

#MEAction and PLRC delivered a letter to HHS Secretary, Robert F. Kennedy, Jr. this past week, calling for him to reinstate the Long COVID Advisory Committee.

Tuesday’s Town Hall was powerful. It was wonderful to have such thoughtful speakers gather to consider the policies that will affect the disability and chronic illness communities the most.

#MEAction's Anki Flashcards have been recommended by the CDCon its new ME/CFS page for medical students!