July was a big month for scientific research in ME! Many of the most well-known researchers and clinicians had papers this month including Klimas, Lipkin, Hornig, Levin, Peterson, Montoya, Julie Newton, Broderick, and Marshall-Gradisnik. There were studies in epigenetics, NK cell function, the HPA axis, robots for schoolchildren with ME, and a few interesting critiques
#MEAction sent two representatives, Beth Mazur and Jaime Seltzer, to attend the 2018 Dysautonomia International Conference in Nashville last month. This was an opportunity for our community to join forces and gain insight regarding the commonalities in triggers, symptoms, diagnoses, and methods of treatment between ME and dysautonomia. Dysautonomia refers to diseases that affect the
Dr Ron Davis and his team at the Stanford Genome Technology Center have received a large research grant from the National Institutes of Health (NIH) that will fund research for 5 years at $500,000 a year and will involve 15 collaborators, 9 of which have never worked in the ME/CFS field before. The research will focus on
The Center for Solutions for ME/CFS is seeking applications for the Community Advisory Committee. The deadline is Monday, July 9. Apply here: CAC application, available in Google Forms. The Center for Solutions for ME/CFS (CfS for ME/CFS) is a multi-institutional, inter-disciplinary research center dedicated to understanding the biology of ME/CFS, and developing diagnostic tests and methods for
Most of Australia’s medical research funding for ME and CFS comes from the Mason Foundation, who are currently looking at whether they will fund a biobank or a patient registry for Myalgic Encephalomyelitis and/or chronic fatigue syndrome samples. Recently the Mason Foundation updated stakeholders on the decision-making process. This is important because if a biobank
Dr. Mark Davis, Director of the Stanford Institute for Immunity, Transplantation, and Infection, talks about his work with T-cells to understand their role in ME/CFS and to determine if ME/CFS is an autoimmune disease. The Open Medicine Foundation (OMF) is funding the work of Dr. Davis into ME/CFS.
Thanks to your generous support of our Indiegogo campaign, #MEAction is adding a new team member! We’re thrilled to welcome Jaime Seltzer as our Director of Scientific and Medical Outreach. She will work with ME clinicians and researchers in order to facilitate engagement with the patient community and the public, inspire new scientists and clinicians
The Open Medicine Foundation (OMF) is proud to announce that it has funded $1.8 million for the establishment of a new ME/CFS Collaborative Research Center at the Harvard Medical School affiliated hospitals, which includes Massachusetts General Hospital (MGH), Brigham and Women’s Hospital, and Beth Israel Deaconess Medical Center. The new Harvard Center will be led
The Open Medicine Foundation received a $1 million anonymous pledge to escalate Dr. Ron Davis’s systems biology approach with Robert Phair, PhD, at the ME/CFS Collaborative Research Center at Stanford University. This will expand the search for and testing of their “metabolic trap” hypothesis, and will enable Dr. Davis to hire an additional scientist with
The Open Medicine Foundation (OMF) is continuing to fund the ME/CFS Collaborative Research Center at Stanford. These are the projects currently underway: T cells and immunology Michael Sikora, in collaboration with Mark Davis, PhD, Lars Steinmetz, PhD, and Ron Davis, PhD, at Stanford University, will examine the role of T cells and immune-related genes in ME/CFS.
