ME & Long COVID patients need telemedicine prescribing flexibility
March 31, 2023
3 Comments
DEA should amend its proposed rule to ensure access to care
Category: Long Covid
NIH Must Not Overlook Evidence of Exercise Harm
March 22, 2023
4 Comments
Long COVID Exercise study must address safety, efficacy concerns.
MEAction questions Long COVID exercise study’s safety, efficacy
March 6, 2023
2 Comments
Calls for immediate public release of RECOVER’s clinical trial design
Infection-associated chronic disease experts needed at ARPA-H
November 22, 2022
1 Comment
Congress launched ARPA-H (the Advanced Research Projects Agency for Health) this past March to focus on high-risk, high-reward research projects with the goal to solve intractable health problems. As ARPA-H is in the process of hiring its first cohort of program managers, #MEAction and a coalition of chronic disease advocacy groups have published an open
Long COVID’s U.S. Economic Impact Est. $140-$600 Billion Annually
October 7, 2022
No Comments
Post-viral conditions like ME/CFS provide guidance for estimating the economic impact of Long COVID.
#MillionsMissing Press Hits are Rolling In!
September 20, 2022
No Comments
The press hits are rolling in! The media showed up in a big way yesterday to cover our #MillionsMissing protest in front of the White House. One day after President Biden declared the “pandemic is over,” our community was at the gates of the White House to send Biden a message that a pandemic of chronic
LONG COVID and ME/CFS Activists Plan Civil Disobedience Protest at White House on Sept. 19
September 13, 2022
2 Comments
The LONG COVID and ME/CFS community are planning a protest in front of the White House this Monday, Sept. 19th at 12 p.m. ET to demand that the Biden administration declare Long COVID and ME/CFS a national emergency. #MEAction is organizing a protest of people sick and disabled from Long COVID and myalgic encephalomyelitis /
Dept. of Labor hosts dialogue on Long COVID in the workplace
July 22, 2022
1 Comment
The U.S. Department of Labor (DOL) has opened a national online dialogue on “Understanding and Addressing the Workplace Challenges Related to Long COVID.” The online dialogue is a text-based forum that will remain open for posting ideas and voting and commenting on those ideas until August 10th. In addition to people with Long COVID, #MEAction
#DisabilityPrideMonth: Listen to The Century Foundation’s podcast Off-Kilter
July 20, 2022
No Comments
As part of #DisabilityPrideMonth, The Century Foundation’s podcast Off-Kilter has been hosting a series of conversations featuring Disability Economic Justice Collaborative* members and other leaders from the disability community. #MEAction board member Ryan Prior is a guest on the two-part Off-Kilter ADA 2022 Special that dives “into the picture for the millions of Americans now
Top 10 ME/CFS Recommendations for the Long COVID National Research Action Plan
June 29, 2022
1 Comment
#MEAction has been hard at work continuing to advocate to the Department of Health and Human Services (HHS) on behalf of people with ME and Long COVID since our last update in May. HHS has been directed by the White House to play a leading role in coordinating the response to Long COVID and associated