Last week, #MEAction had its first planning call for the May 25th #MillionsMissing protest. The protest, with the theme #MillionsMissing, brings attention to the millions of people with ME/CFS missing from their work, their families, and their lives, and the millions of dollars missing from research funding. To show this invisible illness, we are asking
On 20 April, the UK’s General Medical Council (GMC) imposed limits on the medical license of Dr Nigel Speight, well known for his work in protecting children with ME/CFS against inappropriate psychological intervention and removal from their families. The limits come after a complaint from Esther Crawley, medical advisor to the Association of Young People with ME.
Paige is a recent graduate from NC State University with a degree in biomedical engineering. She was diagnosed with POTS five years ago and has been inspired to make a difference for those living with chronic illness. Paige started a disability transportation service at her university and plans to use those collaborative skills as Deputy
Adriane Tillman is a writer, journalist, traveler, thinker, lover of art, dance and books. Adriane graduated with degrees in literature and Russian language. She worked as a newspaper journalist for five years, and now consults in marketing and copywriting. She has lived in many places across the US and beyond. She grew up in Cincinnati,
We would like to welcome Jaime to our team at #MEAction as our new managing editor. With an MS, a freelance writing career, and a current teaching position in organic chemistry at the graduate level, Jaime comes to us with a background in writing, education, and science. An active member of Phoenix Rising for over
Please join us in San Francisco, or send us your photo. Help us all to be seen and heard!
Meet the Scientists: Meet Dr Sarah Knight, looking at brain scans for neurological markers in children and adolescents with ME/CFS (Canadian Consensus Criteria).
We wanted to take this opportunity to announce to the community that #MEAction USA has decided to formally leave the US Action Working Group (USAWG). We will definitely continue to collaborate with many of its members and welcome them, and all organizations and individuals in the community, to use this platform to share their work and
In essence, the NIH is posting an open call for research scientists with proposals that may fall under the purview of the original grant for the NIH’s intramural ME/CFS study.
On March 21st, the brave Bolivian AKIPerDis protestors began their 265 mile journey by wheelchair through the Andes mountains to capital La Paz to demand equality and livable disability pensions. The group has already come face-to-face with adversity in many of its forms in the roughly 100 miles that they’ve traveled since the 21st of March. Amidst death
