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Category Archives: Germany

Announcing #MillionsMissing 2019! Join us!

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Listen to the article:   We are thrilled to announce #MillionsMissing 2019! This May, we will take to the streets - or demonstrate from our beds - to show the world we are here, we are the #MillionsMissing, we will continue to fight for our demands for people with myalgic encephalomyelitis (ME) ...

A Year in Review: Celebrating the 2018 Achievements of Our Community

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2018 has been a big year at #MEAction!  Thank you to all of you who have put forth immense efforts to improve the lives of people with myalgic encephalomyelitis (ME). #MEAction has grown over the past year in leaps and bounds, and we cannot wait to do more. We will not end ...

Community Roundup – Telling Our Story to the World

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Across the globe, we are pursuing creative projects across all mediums to tell the world about myalgic encephalomyelitis (ME). In our fall roundup, you'll be inspired reading about the work and accomplishments of some of our community heroes. Support the #MEAction community by donating to our #GivingTuesday campaign this Tuesday, Nov. 27  where ...

Sept & Oct — Research Roundup

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The end of September was a whirlwind! Between the CDC's website work, the CDC's awarding of a sole contract, the planning sessions for the NIH meeting, and the Stanford symposium, there wasn't much time to devote to breaking down the science.  If you'd like to see a quick run-down of ...

The Global Impact of #MillionsMissing

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The impact of #MillionsMissing 2018 was phenomenal. Protestors took to the streets in 100 countries across the world with demonstrations taking place in North America, South America, Europe, the United Kingdom, South Africa and Asia. Along with people taking action from home, there was a total of 300 visibility actions. More ...

Dr. Nahle’s Webinar Provides Overview of Current Research

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The Solve ME/CFS Initiative (SMCI) hosted a webinar December 15 in which Zaher Nahle, PhD, MPA, summarized research in which they are participating or supporting. Nahle is the Vice President for Research and Scientific Programs at SMCI. Nahle began by listing the problems associated with ME’s perception, funding, and research.  “The ...

Global: RSVP for #MillionsMissing around the world!

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Want to get involved, but aren't sure how to proceed?  Here is a living document you can use to determine where protests are happening near you, how to register, and who to contact to learn about the #MillionsMissing protests happening around the world. Canada Elizabeth Sanchez and Scott Simpson : millionsmissingcanada@gmail.com Germany ...

#MillionsMissing in the News

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The #MillionsMissing protest gained worldwide attention in the form of national and local press, including an excellent piece by Rivka Solomon that was first picked up by STAT, a national publication, and then by Business Insider and The Week.  London's protest was covered by The Evening Standard; and several local ...

Autoantibodies found in subset of CFS patients

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A new German study published in Brain, Behavior, and Immunity by Loebel, et al. has found that Chronic Fatigue Syndrome* may be an infection-triggered autoimmune disease, at least in a subset of patients studied. Samples from a large cohort (n=268) in Berlin and a smaller sample of patients treated with Rituximab (n=25) were ...

Recapping ME Awareness Day – May 12th, 2015

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While ME awareness day does not garner the attention that other illness do, patients and advocates are working hard to bring light to the issues. EmpowerHer summarizes the inspiring actions and events that took place this year: Monuments were lit up around the world including Peace Bridge in the United States, and ...