CDC Funding Update from SMCI
October 18, 2015
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SMCI Meets with Senate Appropriations Staff The Solve ME/CFS Initiative has posted an
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Neurology Now writes about CFS
October 12, 2015
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Neurology Now on CFS Neurology Now recently posted an article targeted at neurologists with the headline “Beyond Tired: Is chronic fatigue syndrome a real medical condition? Yes, according to a report from the Institute of Medicine, which urges physicians to treat it accordingly.” The piece is primarily focused on the IOM report and its suggested
UK CMRC conference on October 13 and 14
October 11, 2015
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UK CMRC conference to be livestreamed on 13 and 14 October Parts of this year’s UK CFS/ME Research Collaborative (CMRC) international conference, which will be held in Newcastle on Tuesday the 13th and Wednesday the 14th of October, will be livestreamed by the charity Action for ME. The conference has a full two-day agenda of
Push to change ME/CFS NICE guideline
October 10, 2015
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Minutes just released for the 15 July 2015 meeting of the cross-charity Forward-ME group record a discussion with Dr Martin McShane of NHS England on getting him to recommend that the NICE guideline on ME/CFS should be revised. The guideline, which should be based on the best available scientific evidence, and which is followed by
The Atlantic publishes a nuanced push for public funding
October 9, 2015
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The Tragic Neglect of Chronic Fatigue Syndrome With a surprisingly broad-ranging and detail-rich article by Olga Khazan entitled “The Tragic Neglect of Chronic Fatigue Syndrome,” The Atlantic became the latest national publication to inform its readers about the severity of disease impact, dearth of medical understanding and treatment, lack of public awareness, and abysmally low
CFSAC – to be or not to be
September 22, 2015
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CFSAC- Let’s Take Action ME community members were caught off guard when the proposed 2016 Senate appropriations bill zeroed out CDC funding for CFS research. Several advocates scrambled to address this and their efforts to be heard appear to have paid off. But scrambling is not something ME advocates can, or should do. Health- and resource-
Validity of Chronic Fatigue Syndrome bolstered by research
September 17, 2015
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Written by Brent Handel Originally published in The Lawyers Weekly June 26 2015 issue, reprinted with permission Chronic fatigue syndrome/myalgic encephalomyelitis, commonly referred to as ME/CFS, is characterized by profound fatigue, cognitive dysfunction, sleep abnormalities, autonomic manifestations, pain, and other symptoms that are made worse by exertion of any sort. For decades, plaintiffs’ personal injury
Study shows immune differences in moderate and severe CFS/ME
September 17, 2015
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New Australian study shows immune difference in moderate and severe patients. It may lead to a test based on these markers.
This Video Could Save your Life
September 13, 2015
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The Use of Patient Blogs as a Care Resource Thanks to Greg Crowhurst for his incredibly kind review of my presentation on his blog and for giving permission for me to share his review on the #MEAction site: “My heart goes out to anyone newly diagnosed with “ME”, Myalgic Encephalomyelitis, for you are instantly thrown
An interview with lead singer of Belle and Sebastian – on life with M.E.
September 12, 2015
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Stuart Murdoch talking openly about his experiences of M.E., Los Angeles, August 2015 “This is a pop band that sprang out of infirmity.” Stuart Murdoch in a great article from The Guardian December 2014 “Critics love Belle and Sebastian, they always have.” Daily Post September 2015 The Solve ME/CFS Initiative has managed to produce some