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Category Archives: Featured news

Degrees of Distance

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Many of us (housebound/bedbound) worry about dear ones who are sick, infirm, or struggling, esp. if we live afar. We feel not being there when we need to be, want to be, no matter what the circumstances, as failed fidelity, incurring a debt of love ...

Race, Ethnicity and M.E.: Why We Need to Build a More Inclusive Movement and Why it Matters.

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Values & Policy Initiative Learn more This article is part of our Values & Policy Initiative, a six-month long process for the community to come together to learn and discuss our core values, tactics and positions so that we are more unified in our work as a large, diverse community. This process will culminate in a statement of ...

Status Update On #MEAction’s Congressional Work

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#MEAction’s Congressional Committee team has been very busy this year. We want to give you a status update and alert you to an ongoing action you can pursue. Appropriations Since March of this year, #MEAction, in partnership with the Solve ME/CFS Initiative and MassME/CFS & FM Association, has been working to increase ...

Cochrane Analysis: What’s Here, What’s missing, Conclusions

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Exercise therapy for chronic fatigue syndrome Lillebeth Larun, Kjetil G Brurberg, Jan Odgaard-Jensen, and Jonathan R Price Editorial group: Cochrane Common Mental Disorders Group As of October 2, 2019, the Cochrane review of GET in ME has been re-issued after the evidence was reassessed. You can read the whole review and a quick ...

Join #MEAction’s Board of Directors

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#MEAction is building a global movement to fight for recognition, education and research so that one day, all people with ME will have access to compassionate, effective care. We are currently seeking patients, caregivers, and allies with one or more of the following experiences to join our Board of Directors: Have ...

Are you Disabled? How does ME fit into the Disabled People’s Movement?

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Values & Policy Initiative Learn more This article is part of our Values & Policy Initiative, a six-month long process for the community to come together to learn and discuss our core values, tactics and positions so that we are more unified in our work as a large, diverse community. This process will culminate in a statement of ...

Volunteer of the Month: An Ally of Many Talents

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Malcolm Bailey from the UK has bailed us out with his tech savvy skills on more than one occasion. We are so lucky to be able to rely on his dependable help for projects both small and large. As he describes it, " As a healthy ally I've done everything from ...

Why We Must Build Coalitions to Strengthen our Movement

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Values & Policy Initiative Learn more This article is part of our Values & Policy Initiative, a six-month long process for the community to come together to learn and discuss our core values, tactics and positions so that we are more unified in our work as a large, diverse community. This process will culminate in a statement of ...

Inside / Outside Activism: Why We Must Shout in the Streets and Sit at the Table.

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Values & Policy Initiative Learn more This article is part of our Values & Policy Initiative, a six-month long process for the community to come together to learn and discuss our core values, tactics and positions so that we are more unified in our work as a large, diverse community. This process will culminate in a statement of ...

ME Activist Testifies before EU Parliament

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Today Evelien Van Den Brink spoke powerfully and brilliantly to the Committee on Petitions in the European Parliament from her stretcher. Evelien laid out both an emotional and scientific appeal for biomedical funds for ME. She ended her appeal by saying “On behalf of all patients, I am asking you, please ...