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Category Archives: Featured news

The heart of ME? Lipkin’s Collaborative Probes the Impact of Exertion

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Simon McGrath is the author of the ME/CFS Research Review blog. The hallmark symptom of ME/CFS is post-exertional malaise (PEM), a prolonged, grim and disproportionate response to exertion. While Dr W. Ian Lipkin’s NIH-funded Collaborative – the Center for Solutions for ME/CFS – is focusing primarily on how problems in patients’ gut ...

Calling all Family, Friends and Allies – Join the Movement to Support People with ME

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You may have watched your friend or relative struggle with myalgic encephalomyelitis (ME) unsure of what is happening or how you can help. #MEAction is supporting a new project called FFAME - Family, Friends and Allies for ME - to build a network of support for family, friends, caregivers and ...

The Microbiome Hypothesis: Lipkin’s Collaborative, Part 1

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Author of the ME/CFS Research Review blog, Simon McGrath, has written an article about Dr W. Ian Lipkin's theory that the body’s response to changes in the gut could be what’s driving ME/CFS for at least some patients. A gut reaction is the problem in ME/CFS – that’s the main idea being pursued ...

Netflix Docuseries “Afflicted” is Terrible

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We anxiously awaited the release of Netflix's docuseries, "Afflicted," on Aug. 10 and are appalled by the dismissive, psychosomatic lens through which the patients are ultimately portrayed. The casting director had said that the “intention is to look at these experiences through a compassionate lens and give voice to those struggling ...

Watch Jen Brea’s Powerful Award Speech from the 2018 NOW Conference

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At the National Organization for Women (NOW) conference held this past July, #MEAction's co-founder and voluntary executive director, Jennifer Brea, was awarded the Victoria J. Mastrobuono Award for Women's Health for her work championing the cause of people with myalgic encephalomyelitis through #MEAction, and her documentary film, Unrest. The award is given annually to ...

July 2018 — Research Roundup

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July was a big month for scientific research in ME!  Many of the most well-known researchers and clinicians had papers this month including Klimas, Lipkin, Hornig, Levin, Peterson, Montoya, Julie Newton, Broderick, and Marshall-Gradisnik.  There were studies in epigenetics, NK cell function, the HPA axis, robots for schoolchildren with ME, ...

Amplifying the Voices of Seniors with ME – Join the Group!

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By Moderator, Bob Gawron  |  Contributions by members, Linda Morganstern and Nancy K Wood Several months ago, I approached #MEAction and Jen Brea about creating a Facebook group for Seniors.  The idea was enthusiastically received and the group was created.  In a very short period of time we have grown to over ...

Honoring those with Severe ME on Aug. 8

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Photo of the Caged Bird who writes about her experiences living with severe ME here. Today, August 8th, marks Severe Myalgic Encephalomyelitis (ME) Day of Understanding and Remembrance. It is a day to remember and honor the 25 percent of ME patients who are housebound or bedbound, and those who have ...

Volunteer of the Month: A Builder of Community

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We want to honor volunteer Holly L. this month for her dedication to building an engaged, informed community for people with myalgic encephalomyelitis through her work managing the #MEAction TN Facebook Group, and the Pregnancy and Parenting with ME Facebook Group. Holly also works behind-the-scenes to keep the #MEAction Facebook page up-to-date with ...

#MEAction UK Activist Speaks at the International Deaf & Disabled People’s Solidarity Summit

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Article written by Sian Leary and Nathalie Wright | Photo credit: Paula Peters On 22nd July, Deaf and Disabled people from around the world gathered in East London in solidarity to discuss countering oppression and coordinating resistance, especially in the light of austerity and the rise of the far right.   Nathalie Wright ...