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Category Archives: Featured news

Columbia University Irving Medical Center: Participate in the creation of a mobile app for those with ME through an online survey

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Who: Doctors from Columbia Medical center are interested in creating a mobile app called “my ME/CFS” for those with Myalgic Encephalomyelitis (ME). What: A survey that would provide information to doctors that are aiming to create this application; the app would provide a place for individuals with ME to report on ...

A loss to the ME community: Jonas Blomberg

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You can listen to this article read aloud by visiting #MEAction's Soundcloud here. It is with a heavy heart that we announce the sudden passing of Jonas Blomberg. Blomberg was an Emeritus Professor at the Department of Medical Sciences, Clinical Microbiology at Uppsala University in Sweden, active in scientific and medical research: one ...

HOMELESS: How AMMES is Keeping People with ME in their Homes

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Listen to the article:   Erica Verrillo is President of the American ME and CFS Society (AMMES) | Photo by ALACHUA COUNTY /Flickr CC BY 2.0 Years ago, Dr. Bell made the observation that many people currently living in cars most likely had chronic fatigue syndrome (CFS). (The acronym myalgic encephalomyelitis (ME/CFS) was ...

HUGE Event for ME in Boston

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Follow Rivka Solomon on Twitter: @RivkaTweets "Now that's the kind of event that gives hope. Real hope. Tangible, actionable hope. It's infuriating that the standard of "care" for #Millions Missing is mostly built on disinformation. This kind of event is how we change this mad injustice." - @RichardVallee on Twitter Every now and ...

Apply to Attend the NIH Conference with a Scholarship from #MEAction!

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#MEAction is currently accepting applications from medical students and practicing medical professionals to attend the National Institutes of Health meeting on myalgic encephalomyelitis (ME) research on April 4th-5th, 2019 in Bethesda, MD. The application is due at 5 p.m. EST on February 22nd. The goal of the meeting is to showcase high-quality studies to better understand the state of ...

Historic Parliamentary Debate Shaped by People with ME

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Listen to the article:  On Thursday 24th January 2019 a historic debate took place. Over 40 MPs from across the political divide sat in the House of Commons to debate a motion on myalgic encephalomyelitis (ME), with 27 making impassioned contributions on behalf of their constituents. Together they unanimously passed this motion: “That ...

The Effects of Graded Exercise Therapy and Positive Thinking on a Young Girl with ME

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Listen to the article:  Exercise protocols prescribed for myalgic encephalomyelitis (ME) were powerful enough for Cherry to ignore the physiological realities of her disease. Cherry is now 100 percent bedridden. When 16-year-old Cherry from North London began the treatment prescribed for her myalgic encephalomyelitis (ME) in 2013, she was able to ...

Register Now for ME/CFS Advocacy Week 2019!

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Listen to the article:  #MEAction and Solve ME/CFS Initiative (SMCI) are excited to announce a joint partnership for ME/CFS Advocacy Week & DC Lobby Day 2019!  The week of meetings with representatives, call-in actions and online events will take place from Monday, April 1 to Sunday, April 7th. The keystone event, Lobby Day 2019, ...

How to Represent ME at the Women’s March

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#MEAction Colorado is organizing a small cohort to join the Women’s March in Denver this Saturday, Jan. 19th. (See details.) We plan to walk the shorter, ADA-friendly route with empty wheelchairs displaying signs that say, “Too ill to be here,” listing names of Colorado people who cannot participate due to ...

Are You a Young Person Affected by ME? How do you Visualize Health Equity? Join a National Contest

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The U.S. National Academy of Medicine (NAM) is holding a contest for young people (ages 5 to 26) to submit art, music, writing, videos, dance, etc. related to social determinants of health equity. This is an excellent opportunity for youth with Myalgic Encephalomyelitis (ME) - and their friends and siblings - ...