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Category Archives: Featured news

Read the new parliamentary briefing

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Next Thursday, Parliament will hold a 3-hour Westminster Hall debate on Myalgic Encephalomyelitis treatment and research in a monumental victory for the ME community. In preparation for the debate, #MEAction UK volunteers prepared a parliamentary briefing along with three other charities - ME Association, Action for M.E., and the ME ...

Watch the Stanford Research Update on T-cells

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Dr. Mark Davis, Director of the Stanford Institute for Immunity, Transplantation, and Infection, talks about his work with T-cells to understand their role in ME/CFS and to determine if ME/CFS is an autoimmune disease. The Open Medicine Foundation (OMF) is funding the work of Dr. Davis into ME/CFS ...

#MEAction Scotland Speaks at Scottish Parliament Petitions Committee – Watch the Video

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#MEAction Scotland appeared before the Scottish Parliament Petitions Committee on June 7th to give evidence on its petition to review treatment of ME patients in Scotland.  Watch the hearing: Not all petitioners are called before the Parliament’s Petitions Committee, so the fact that #MEAction Scotland has been summoned is very encouraging. The petition has received 7,000 ...

Learn More About the UK Parliamentary Briefing

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A key briefing to help parliamentarians understand the issues facing people affected by M.E. has been co-authored by #MEAction UK, the ME Association, Action for M.E., and the ME Trust. Read the Parliamentary briefing.  Our collaboration on this was prompted by a discussion with the UK team responsible for the impact ...

UK MPS Secure Westminster Hall Debate on ME

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Mark your calendars! A 3-hour Westminster Hall debate on Myalgic Encephalomyelitis (ME) treatment and research has been scheduled for Thursday, 21st June, 1:30-4:30 p.m. The fight for a larger debate on ME has had cross party support with Carol Monaghan MP securing the debate, along with the support of five other ...

MPs Fight for House of Commons debate on ME in UK

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MPs across the parties in the U.K. came together today to argue the case for scheduling a debate about Myalgic Encephalomyelitis (ME) in the main chamber of the House of Commons. Watch the video below. Carol Monaghan MP joined five other MPs on June 5th to argue the merits of holding ...

Victory for ME Disability Claim – U.S. Court Upholds Plaintiff’s Lawsuit After Being Denied Disability

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Former Washington Post science reporter, Brian Vastag, won a federal lawsuit against Prudential Insurance after the insurance company dropped his short-term disability benefits and denied his bid for long-term ones. Vastag’s lawyers said that the ruling should make it harder for insurers to deny benefits to similar cases in the future ...

How Much Does the UK Dept. of Health Spend on ME?

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MP Carol Monaghan (Glasgow North West) had asked the UK Secretary of State for Health and Social Care how much it plans to allocate to biomedical research for Myalgic Encephalomyelitis in the current financial year?  In quotations below is the response from the Minister of State at the Department of Health and Social Care, Caroline Dinenage ...

U.S. Votes to Track ME/CFS on BRFSS Survey

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Back in March, we urged you to take action and inform your state health officials and departments to begin tracking ME/CFS as part of the their annually-conducted Behavioral Risk Factor Surveillance System (BRFSS). Many chronic health conditions are tracked using this system.  State health departments use the data collected to plan health ...

Thousands sign letter to be delivered to Francis Collins

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On May 24th, 2018, we delivered this 580-page LETTER to Francis Collins, with over 7,000 signatures, photos, and personal comments. We are demanding: A Diagnostic Test, Clinical Trials, and Treatments We asked Francis Collins to meet with us, and we need answers soon. We also sent this video plea to Francis Collins, demanding answers. (Warning: This ...