Category: Advocacy

Take the funding equality petition to the streets

The US funding equality petition has over 4,000 signatures. We still have a lot of work to do to get to our goal of 50,000 signatures nationwide. As we learned from the Dutch campaign, the only way to get to get large numbers is to take the petition into the streets.   Help us increase signatures for

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Help Action for ME Give Feedback to the House of Lords

Action for M.E. is submitting feedback to the United Kingdom’s House of Lords Select Committee on Equality Act The call for evidence covers a number of specific areas, so Action for ME is asking you to respond to a set of questions to help them form a response. Don’t worry if you aren’t able to

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Comment on the US NIH Strategic Plan

The US NIH requests public comments on their strategic plan The United States National Institutes of Health wants feedback from you on their proposed strategic plan for the next 5 years. Jennie Spotila at Occupy CFS explains why this is important: One of the major weakness of the plan is that it leaves all the

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U.S. Funding petition: help us target key states

  Is your senator a member of the Health, Education, Labor and Pensions (HELP) Committee? Do you have friends or family living in the following states?   SIGN AND SHARE YOUR STATE PETITION   ALASKA * COLORADO * CONNECTICUT * GEORGIA * ILLINOIS * KANSAS * KENTUCKY * MAINE * MARYLAND * MASSACHUSETTS * MINNESOTA

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CFSAC Meeting Welcomes Public Comments

The Chronic Fatigue Syndrome Advisory Committee (CFSAC) will hold a public meeting on Tuesday, August 18, 2015, from 9:00 a.m. until 5:00 p.m., ET and Wednesday, August 19, 2015, from 9:00 a.m. until 5:00 p.m., ET. Public comment may be provided in person, by telephone, or in written form.

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Behind the Numbers of the #MEAction Funding Equality Petition

Why $250,000,000 in research funding? The #MEAction flagship Funding Equality Petition is called “Tell Congress to Support Funding Equality for ME” because we’re asking the United States Congress increase NIH Research funding for Myalgic Encephalomyelitis / Chronic Fatigue Syndrome (ME/CFS) to $250 million per year. Most patients, doctors, and researchers in the ME/CFS community agree

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