Author: Adriane Tillman

Europe gears up for its third #MillionsMissing Day of Action

Europe is gearing up for its third #MillionsMissing Day of Action set for May 12th, which is the international day of awareness for Myalgic Encephalomyelitis (ME).   Organizers from #MillionsMissing groups across Europe are working together to share ideas and prepare for their awareness events in Norway, Belgium, Germany, the Netherlands, France, Denmark, Iceland, Spain,

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Video: How to protect American healthcare

Housing Works is mobilizing people who want to fight for health care. Housing Works provided this webinar last month on how to protect and improve healthcare in the U.S. using a tactic called “bird-dogging.”

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South Africa: Investigative news channel features ME & #MillionsMissing

The South African investigative journalism program Carte Blanche has aired a well-researched segment featuring the struggle of the ME community around the world. An article about women suffering with ME in South Africa accompanies the video. The segment includes footage from the #MillionsMissing protest in September. The ME/CFS Foundation South Africa was behind getting the program

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Stanford team announces update on ME/CFS research

A research team at Stanford gave an update yesterday on some of the breakthroughs its team has made in understanding the metabolic cycles that are not working properly in people with ME/CFS that might be at the heart of the disease. Ronald W. Davis, PhD, made the announcement via YouTube. Davis directs the CFS Research Center

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Canada uses “bird-dogging tactics” to force meeting with health minister

Toronto: #MillionsMissing activists attended their federal health minister’s “meet-and-greet” on Jan. 14th to ask the health minister to respond publicly to their request that she announce Myalgic Encephalomyelitis (ME) is a biological – and not psychological – illness. This tactic to pin down an official with a specific question in a public venue is called

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NIH answers questions about research centers for ME

Want to know more about the research centers and data center being planned for ME/CFS by the National Institute of Health (NIH)? Directors at the NIH discussed the research centers and answered questions from people with ME along with researchers in a phone call on Feb. 2. The NIH will provide $30 million over the

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US: Family testifies about CDC's harmful recommendations at CFSAC

A member of the Shaw family reads their testimony during the comment period at the January CFSAC meeting: Good afternoon. I have had untreated ME/CFS for 38 years. Our testimony today is on the topic of the Center for Diseases Control’s (CDC) CFS group. The 2015 National Academy of Medicine report characterizes post-exertional malaise, or

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US: Read Terri Wilder's CFSAC Testimony

  The CFS Advisory Committee (CFSAC) provides advice and recommendations to the Secretary of Health and Human Services (HHS) through the Assistant Secretary for Health on issues related to myalgic encephalomyelitis and chronic fatigue syndrome (ME/CFS). The committee meets twice-yearly, and recently met Jan. 12-13, 2017.  #MEAction activist, Terri Wilder, spoke during the comment period at

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Update: the ongoing work of #MillionsMissing

  Momentum continues from the #MillionsMissing campaign that was born last May. Activists took to the streets worldwide in 11 cities in May –  and in 25 cities in September – to protest their government’s neglect of people with ME. While the posters are now stored away, activism has continued behind the scenes in follow-up

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#MillionsMissing Holland gets the ear of the Minister of Health

#MillionsMissing Holland has made its voice heard in the House of Representatives.   House of Representatives member Linda Voortman has filed questions about ME based on the protest demands with Holland’s Minister of Health, Welfare and Sport, Edith Schippers. In the letter, Voortman asks the minister of health if she is willing to provide more

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