Based on your responses to our polls on social media, we’ll be screening a double feature of Spiderman: Into the Spiderverse & Fargo on the eve of Thanksgiving, Wednesday, November 25th. Into the Spiderverse will begin at 1 PT / 4 ET and Fargo will begin at 3:30 PT / 6:30 ET. *Notes about both …
Friendsgiving Community Movie Party – Into the Spiderverse & Fargo! Read More »
Join #MEAction Maryland on the 3rd Tuesday of each month at 1 pm EST for our monthly support call! This monthly call will focus on creating support and community for pw/ME. This will be a space to connect with fellow pw/ME, exchange helpful resources, and feel heard and understood in a safe and supportive environment. …
Join the Louisiana ME community for their #MillionsMissing 2021 Virtual Event! This will be an opportunity to join together as a community, share our stories, and discuss ways to take action. We can’t wait to see you there.Here is the link to join the virtual event:
Join the Colorado ME community for their #MillionsMissing 2021 Virtual Event! This will be an opportunity to join together as a community, share our stories, and discuss ways to take action. We can’t wait to see you there.Our event will be a town hall style event where there are speakers from within our community and …
Update: slide deck for town hall The U.S. Centers for Disease Control and Prevention (CDC) published a notice of request for public comments on its systematic review draft report for diagnosis and treatment of ME/CFS which will remain open until August 16, 2021. To learn more about the CDC draft evidence review and #MEAction advocacy …
#MEAction Town hall on CDC draft evidence review of ME/CFS treatments Read More »
Attend #MEAction town hall meeting on Monday, August 9th for a Q&A on our draft response to the CDC systematic evidence review for ME/CFS treatments. -----------------Meeting URLhttps://bluejeans.com/422344930/2884 Meeting ID422 344 930 Participant Passcode2884 Want to dial in from a phone?Dial one of the following numbers:+1.408.317.9253 (US (Primary))Enter the meeting ID and passcode followed by #------------------- …
Town Hall Q&A on #MEAction response to CDC Review Read More »
Please join us for our 2 monthly meetings. We meet on the 2nd Thursday for support and discussion of treatments, and on the 3rd Thursday to work on our advocacy projects. Zoom: tinyurl.com/meactionaz Call in: (602) 753-0140Meeting ID: 949 275 8687Passcode: 4455 The purpose of the support meeting is to provide support to Arizona people …
Please join us for the monthly Advocacy working group meeting. We now meet on the 3rd Thursday to work on our advocacy projects. The purpose of the advocacy meeting is to provide project updates, coordinate volunteers, and work together on current projects. Together, we make a difference. Arizona advocates, we need you there! Zoom: tinyurl.com/meactionaz …
#MEAction and and six other ME/CFS organizations had submitted a proposal to the National Center of Health Statistics (NCHS) to fix the coding of ME/CFS in the US International Classification of Diseases (ICD-10-CM).You can read more about our proposal in articles we've published here and here. Or you can find all the information at our …
NCHS ICD-10-CM Coordination and Maintenance Committee meeting Read More »
NIH ME/CFS Advocacy CallJoin the webinar: https://nih.zoomgov.com/j/1616894211?pwd=ZUlYdld1UHBEYStzU2JiTHZFRDc1UT09Passcode: 816676Pre-registration is not required.From: https://www.nih.gov/mecfs/eventsSee our list of questions submitted in advance to the Trans-NIH ME/CFS Working Group.https://www.meaction.net/wp-content/uploads/2021/10/NIH-telebriefing-questions-Oct-2021.pdf
Please join us for the monthly California #MEAction support and informational meeting. The purpose of the meeting is to bring together Californians who have ME, along with their family and friends, to discuss their concerns, let out their feelings, exchange information, and develop advocacy strategy. Especially in these times, many of us are at loose …
Everyone is welcome to join us for our monthly planning meeting and contribute or just listen in! We meet on the 4th Friday of the month from 10 -11:30 am MT. Click the website link below to join by computer. Or, join by phone: Dial +1.408.317.9253 if you’re in the US +44.203.608.5256 for UK +61.2.8103.4256 …
