Day: September 7, 2018

How To Protest HHS with #MEAction

We will protest the U.S. Department of Health and Human Service virtually, on social media, on Friday, Sept. 14th. We have canceled the in-person protest in Washington, D.C. due to the fact that a hurricane is headed for that area on Thursday. We will reschedule the Washington, D.C. protest for a later date. Our virtual protest on Friday,

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HHS Secretary Kills CFSAC!

If you were on the CFSAC committee, you awoke to the following email in your inbox yesterday morning: Good morning, I’d like to personally extend my gratitude to you for serving as a member of the Chronic Fatigue Syndrome Advisory Committee (CFSAC).Your input as a subject matter expert in myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) has

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Scottish Liberal Democrats will Vote on Motion for ME

At the Scottish Liberal Democrats conference this Saturday in Dunfermline, party member Emma Walker will present a motion about Myalgic Encephalomyelitis (ME), focussing on the need for biomedical research and the removal of Graded Exercise Therapy (GET) and Cognitive Behavioural Therapy (CBT) as treatments for ME in Scotland. If it passes, it will become Liberal

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Enrolling: Cornell Brain Imaging

Cornell Center for Enervating Neuroimmune Disease aims to collect brain images (MRSs) from individuals with ME to study oxidative stress and neuroinflammation. Dr. Dikoma Shungu hopes to identify possible biomarkers for ME as well as add to the overall understanding of the disease. Who: Cornell Center for Enervating Neuroimmune Disease is collecting information from both ME patients

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