Patient Support


The resources below are for educational purposes only. Any diagnosis or treatment undertaken should be done under the supervision of a licensed doctor. #MEAction is not liable for patients’ treatment decisions.

Get Diagnosed

Here are four criteria to help you determine whether or not you may have ME or ME/CFS. If you suspect you may have ME, there are many specialists around the world who can help you rule out other conditions and get an accurate diagnosis. Many doctors are not educated about ME. If you cannot see a specialist, the below may be useful information to share with your doctor.  

 

Find a Doctor

Find a specialist near you using our global directory.

 

Learn about treatments

There are no approved treatments for ME, but here is an extensive, crowdsourced list of “off-label” treatments patients have tried.

 

Get peer support

If you are looking to find a new doctor, seek advice, or become more engaged with the patient community, here are a few resources:

Virtual support groups

  • #MEAction also runs a regular, virtual support group that you can dial into by telephone or video chat. Meet and connect with other patients, share your experience, make friends! Visit our events page to find an upcoming video chat.

Local support groups

  • Search our global directory to find a local support group near you.

Online forums

  • Phoenix Rising – The largest ME/CFS discussion forum on the web, covering a wide range of topics from advocacy to treatment to patient support.
  • My Patient Match – A forum and tool to track symptoms and treatments, it matches you with patients who have similar symptoms to you.

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