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#MEAction and Solve ME/CFS Gear Up for Major Congressional Push

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#MEAction and Solve ME/CFS Initiative are gearing up for a major congressional action for ME/CFS in Washington, D.C. from May 16 to 18. If you would like to join us in Washington, D.C. for meetings, let us know by April 4th so that we can make the necessary meeting arrangements with ...

URGENT Congressional Action: Ask your House Rep. to sign letter for ME

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  URGENT Congressional Action! Ask your House representative to sign a letter that inserts favorable language for ME into the House Appropriations Committee report on the FY18 budget.  Deadline to sign: Tues., April 4th. Contact your House rep. today! See instructions for calling and emailing below. ~ U.S. House Representatives Zoe Lofgren and Anna Eshoo have agreed ...
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Support Tom’s London Marathon campaign for ME Research U.K.

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On 23rd April, Tom Whittingham is running the London Marathon for ME Research UK. Watch and share his fundraising and awareness video ...

URGENT: Call your U.S. congressperson: Sign the letter to stop NIH cut

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President Trump is proposing to cut the National Institutes of Health (NIH) budget by $6 billion - or about one-fifth of the total agency budget. A cut to the NIH budget will almost certainly impact funding for biomedical research into Myalgic Encephalomyelitis (ME). Bipartisan members of Congress are circulating a letter that opposes ...
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Donate Your Brain to Find a Cure for ME/CFS

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One of the best ways to advance research toward finding answers about neurologic disorders is through post-mortem brain donation - and the U.S. National Institutes of Health (NIH) reports an urgent need for donations from patients who’ve suffered with Myalgic Encephalomyelitis/ Chronic Fatigue Syndrome (ME/CFS). Arranging in advance to donate ...

Europe gears up for its third #MillionsMissing Day of Action

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Europe is gearing up for its third #MillionsMissing Day of Action set for May 12th, which is the international day of awareness for Myalgic Encephalomyelitis (ME).   Organizers from #MillionsMissing groups across Europe are working together to share ideas and prepare for their awareness events in Norway, Belgium, Germany, the Netherlands, ...
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Host a dinner to fundraise for ME/CFS researchers

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“Dining for Dollars” is a fund raising idea from the AIDS era and we hope to spread the idea by posting the results of our own dinner held this past weekend ...
Health minister Jane Philpott, right, held a meet and greet at the Markham District Veterans Association building. Scott Simpson,left, and Jeffrey Smith, centre with hat, are part of a planned protest. Protesters want more funding and a change of thinking towards neurological illness ME myalgic encephalomyelitis. Jan 15, 2016

Canada uses “bird-dogging tactics” to force meeting with health minister

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Toronto: #MillionsMissing activists attended their federal health minister’s “meet-and-greet” on Jan. 14th to ask the health minister to respond publicly to their request that she announce Myalgic Encephalomyelitis (ME) is a biological - and not psychological - illness. This tactic to pin down an official with a specific question in ...

Video: How to protect American healthcare

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Housing Works is mobilizing people who want to fight for health care. Housing Works provided this webinar last month on how to protect and improve healthcare in the U.S. using a tactic called "bird-dogging." ...
SHAPE Lab Tech(Oscar Ortiz) draws blood from a Army soldier(Karla Bayles).

SF Bay Area: Get Stanford Some Healthy Controls!

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If you live in the San Francisco Bay Area, or know any others who do, please consider asking them to donate blood to the Stanford Genome Technology Center as a healthy control. The blood will be used for multiple purposes, including in Ron Davis's ME/CFS research.  If you know individuals ...
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Join the webinar tomorrow: 6 Ways to Maximize Your Congressional Impact.

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Join SolveCFS for their first advocacy webinar on "6 ways to maximize your congressional impact." Thurs., March 2, 10-11 a.m. PST SMCI Advocacy and Engagement Manager, Emily Taylor, will lead the webinar, which is the first in Solve's advocacy webinar series: "Power to the Patients." To register for the free webinar, go here: ...
Ed Markey, Senator from Massachusetts

Thank Senator Markey for promising to help ME patients

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On Thursday, Feb. 23, I attended a packed town hall meeting in Northampton, Massachusetts with my U.S. senator, Ed Markey (D-MA). Around 1,400 constituents were present in both the main auditorium and the overflow room where the event was live streamed. I was one of the few who got to ...

 

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