Category Archives: Featured news

IL. House of reps shows support for ME

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The plight of people living with Myalgic Encephalomyelitis (ME) was heard in Illinois this week. The parent of a young daughter with ME, Amy Mooney, worked with her state representative, Michael J. Zalewski, to introduce a state resolution that recognizes ME as a tragic, disabling disease, and that commits to improving the availability ...

“Unrest” premieres in Copenhagen to major media coverage

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There is one more screening of Unrest at the CPH:DOX film festival on March 24th, and then Unrest heads to the RiverRun International Film Festival in Winston-Salem on March 31st. Unrest made its international and European premiere in Copenhagen, Denmark at CPH:DOX, one of the leading festivals for documentary film in the ...

Julie Rehmeyer: Hope and Despair in Through the Shadowlands

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Recently, #MEAction sat down with Julie Rehmeyer to discuss her new book Through the Shadowlands, her op-ed in the New York Times with David Tuller, and next steps. What made you embark on a project like Through the Shadowlands? I’m a writer, and it was a big experience I was going through, ...

The Cut

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Are you prepared for an 18% reduction in ME spending? I’m not. For one thing, the first year of funding for the new Collaborative Research Centers is set aside in this year’s budget. But all bets are off going forward. Like many other RFAs, the one for ME Centers explicitly states, ...

Coming Out of the Closet

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Obviously, I still have not integrated the sick person I am with my self-concept. In my heart, I aspire to be an adventurer. In my brain, I am a popcorn popper of plans and temptations. In reality, I can do one activity and, on a good day, maybe two, but ...

Calcium channel ion defects: research from Australia’s Griffith Uni.

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Researchers from Queensland’s Griffith University recently identified a dysfunctional cell receptor in the immune system of people with Chronic Fatigue Syndrome (CFS). Fifteen people meeting the Fukuda criteria for CFS were studied, against 25 controls. Considering the small size of the study, the results cannot be considered definitive ...
Health minister Jane Philpott, right, held a meet and greet at the Markham District Veterans Association building. Scott Simpson,left, and Jeffrey Smith, centre with hat, are part of a planned protest. Protesters want more funding and a change of thinking towards neurological illness ME myalgic encephalomyelitis. Jan 15, 2016

Canada uses “bird-dogging tactics” to force meeting with health minister

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Toronto: #MillionsMissing activists attended their federal health minister’s “meet-and-greet” on Jan. 14th to ask the health minister to respond publicly to their request that she announce Myalgic Encephalomyelitis (ME) is a biological - and not psychological - illness. This tactic to pin down an official with a specific question in ...
Dr.-Rowe

Free Webinar with Dr. Peter Rowe, director of Chronic Fatigue Clinic

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Solve ME/CFS Initiative (SMCI)'s first webinar of the year, "A Clinical Approach to ME/CFS in Adolescents and Young Adults," will be held with Peter Rowe, M.D. next Thursday, March 17, 2017. To register for the free webinar, go here: https://attendee.gotowebinar.com/register/7209349689868350723 ...

NIH funding: What will this mean for ME/CFS research at Columbia’s CII?

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If the Center for Infection and Immunity (CII) team is successful with its RFA application proposal, this funding would clearly help the institution to become a Collaborative Research Center, and would help to fund the analysis work involved in the Monster study - albeit slowly. If you've missed it, this ...

Letter to NIH: End the Insult

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A person with ME for more than 38 years wrote this pointed letter to the National Institute of Health, calling its leaders to act with urgency and correct their gross neglect of people suffering with ME ...
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