Category Archives: Featured news

Is the Dutch Health Council really going to Ignore 10,000 signatures?

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Keep up-to-date on this issue by following the Twitter accounts @mecvsnieuws and @ME_gids More than 10,400 signatures for the Dutch petition ‘ME is not MU(P)S’ (Medically Unexplained (Physical) Symptoms) was presented to Prof. van Gool, president of the Dutch Health Council three weeks ago on September 18th. The petition aims to hold ...

A New Era for ME/CFS Research – SMCI’s Discovery Forum

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Announcing Discovery Forum 2017: A New Era in ME/CFS Research ...

Individual Community Symposium Talks Available on OMF YouTube Channel

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Watch individual presentations and Q&A from the Community Symposium on the Molecular Basis of ME/CFS ...

NIH announces centers for ME/CFS research

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The NIH announced the grants for three Collaborative Research Centers (CRC) and a Data Management Coordinating Center (DMCC) that will work together as a consortium for ME/CFS. These grants will be managed by National Institute of Allergy and Infectious Diseases and National Institute of Neurological Disorders and Stroke. The total cost of the ...
Parliament EDM 271 Urges NICE to Update Guideline on ME

Parliament EDM 271 Urges NICE to Update Guideline on ME

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UPDATE On 20th September, NICE overturned the original proposal and announced it would review its guideline on ME. This is great news but means we need to double our efforts to make sure that the new guideline is robust enough to protect and help people with ME for generations to come ...

As Summer Ends, A Warning to NIH

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Johanna Kaiser, a person with ME, sent this open letter over Labor Day to the director of the National Institutes of Health (NIH), Dr. Francis Collins, and the director of National Institute of Neurological Disorders (NINDS) ...

Tools to Help Children with ME/CFS Succeed

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New resources are available to help parents and educators provide accommodations and resources to help children succeed in school ...

First of its kind! Nevada delegation sends letter to NIH on ME/CFS

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On September 8th, Nevada's full Congressional Delegation sent a letter to Director Collins of the National Institutes of Health urging him to "strengthen and accelerate" its work on ME/CFS ...

Senate Appropriations Committee Recommends Restoring ME/CFS Funding

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On Sept. 7, the ME/CFS community breathed a sigh of relief as the Senate Appropriations Committee recommended restoring the $5.4 million Chronic Fatigue Syndrome program under the CDC ...

Did you see ME/CFS on PBS?

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A national, televised program on ME/CFS aired this month on the show, “The White House Chronicle,” with host Llewellyn King ...
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