Take action

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Four things you can do to advance the fight for health equality:

  1. Sign the MEAction letter to Francis Collins to increase investment in ME research (Global)
  2. Ask Congress or Parliament to support people with ME. Using our one-click software, it’ll only take a few seconds. Contact Congress now (US-only). In the UK, urge your Member of Parliament to sign EDM 1247.
  3. Sign these petitions: Global petition | NIH petition (US only) | Scottish petition (Global). Australians: join the letter writing campaign! Instructions here.
  4. Donate: to support #MEAction’s movement-building and advocacy work

Create an action | Launch a petition | Start an event | Join a group

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The NIH Plan for ME is Dismal

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Occupy M.E. describes the NIH's current plan to address the crisis of Myalgic Encephalomyelitis as "do a little and wait." Blogger Jennie Spotila describes the agency's plan, which was found buried in the NIH 2019 budget request sent to Congress, as follows: NIH is going to wait for the new Collaborative ...

Calling all Patients: Fill Out the Research Survey about PEM

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DePaul University is asking the patient population to fill out a survey to better understand the effects of post-exertional malaise (PEM) in people with Myalgic Encephalomyelitis and Chronic Fatigue Syndrome. The patient community aided in the development of this questionnaire to more accurately define and measure abnormal responses to physical and/or ...

UK Call to Action: Ask Your MP To Sign EDM 1247!

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  If you are in the UK, please email your MP asking them to sign Early Day Motion 1247. What is an EDM? Early day motions (EDMs) are motions submitted for debate in the House of Commons for which no day has been fixed. As there is no specific time allocated to EDMs very ...

Sign MEAction’s Letter to Francis Collins

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On May 12th, the #MillionsMissing will protest in over 100 cities worldwide, demanding real investment in research funding and clinical education for myalgic encephalomyelitis (ME) from our government. Below is a plan for rigorous, immediate action from the US National Institutes of Health. We are asking everyone to sign –patients, ...

How to Protest Virtually with the #MillionsMissing on May 12th

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Join the protest from your home. Here are several ways to take action ...

Sign the Scottish Petition for ME – anyone can sign

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    Please support our petition! #MEAction Scotland volunteers have submitted a petition to the Scottish Parliament. Anyone from any country can sign! The petition calls on the Scottish Government to undertake a review of the treatment of people with ME in Scotland. The aims of the petition can be summarised as follows: ...

The Power of the Shoe

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    Shoes have been a powerful, unifying symbol for #MillionsMissing since the first global protest in 2016. Demonstrations across the world have displayed rows of shoes to represent what people are missing from their lives due to myalgic encephalomyelitis. The haunting image of rows of shoes symbolizing the effect of this ...

Action Alert: Ask Francis Collins Anything this Friday at 2pm EST

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  The National Human Genome Research Institute (NHGRI) will launch the National DNA Day Reddit "Ask Me Anything" (AMA) Series on Friday, April 20 at 2pm EST. Genomics experts will answer questions at the Reddit Science community forum, "/r/Science". A Reddit AMA is an opportunity to ask interesting individuals questions about anything ...

Sharing UNREST through Library Donations

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  Activism doesn’t always have to take place in government offices or with signs and shouting; it can take place in quiet libraries. Library systems are the target of Cindy Downey’s efforts to make Jen Brea’s documentary Unrest accessible to all. Downey, of British Columbia’s Okanagan Valley, donated copies of Unrest to ...

Call-to-Action: Urge your State Health Department to Track ME!

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Urge your state health department to track myalgic encephalomyelitis/ chronic fatigue syndrome! Call-to-Action: Please email your state health department and request they track ME/CFS (we have provided the email script for your convenience). A national conference will take place mid-April where states will decide which diseases to track as part of its ...

Urgent Congressional Action! Ask your Rep. to Sign Letter for ME/CFS

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URGENT Congressional Action! Please take this opportunity to call and email your House representative today to request they sign a letter that inserts favorable language about Myalgic Encephalomyelitis / Chronic Fatigue Syndrome (ME/CFS) into the House Appropriations Committee report for the FY19 budget. The deadline for your representative to sign the ...