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Actions you can take now to advance the fight for health equality:

Tell Columbia University in NYC to uninvite Danish physician, Per Fink, from an upcoming psychosomatic conference, as he promotes his unscientific claim that ME is a psychosomatic disease. Sign the petition.
Tell your medical providers to watch Unrest for CE credit! There are 3 ways that you can do this – read more!
Individuals who were lied to and misrepresented by Netflix’s Afflicted include (left to right): Jake, Pilar, Jamison, Jake & Bekah, Jill & Janine Urge Netflix to remove the docuseries, Afflicted, from its site. More than 40 writers, activists, artists, filmmakers, physicians and scientists have written an open letter expressing deep concern about Afflicted’s unethical treatment of its subjects, and the series many factual errors and omissions. Join in solidarity and sign the petition.
Contact your U.S. House and Senate representatives to support a resolution and hearing for ME. 
We are working on some important actions to further support for ME/CFS in the Senate and in the House, but we need your help to reach out to your representatives to let them know this action is important to their constituents. Take these actions now: 

Support people with ME in Norway! Sign the petition calling for the resignation of the National Advisory Unit on chronic fatigue syndrome/ myalgic encephalomyelitis (CFS/ME), which is promoting a biopsychosocial model of the disease. Everyone is encouraged to sign. Read more.
Participate in research studies on ME. Read about the studies that are looking to enroll people with ME.
Donate: to support #MEAction’s movement-building and advocacy work.

Read more about recent U.S. actions involving the NIH, CDC, HHS and FDA.


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Join the fight against stigma and pseudoscience in New York

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This weekend, the New York State Psychiatric Institute is hosting a conference on psychosomatic illness at Columbia University Medical Center -- and they invited Per Fink to speak.  If you have watched Unrest, you know that Fink’s clinic was responsible for the involuntary institutionalization of Karina Hansen, a Danish young ...

Mobilize your Medical Providers to Watch Unrest for Credit

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We are so thrilled to announce that US healthcare providers – including doctors, nurses, pharmacists, therapists and social workers – can now watch Unrest and receive continuing education credits through the American Medical Women’s Association and Indiana University School of Medicine, in partnership with #MEAction. Healthcare providers can attend a live, continuing education ...
young white woman in group of protestors turns head to look into camera. Holds a sign "Millions Suffering!"

Per Fink is coming to US this week! Here’s 3 actions you can take

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The Danish physician, Per Fink, is traveling to the United States to speak about his unscientific and dangerous idea that myalgic encephalomyelitis (ME) is a psychosomatic illness. Per Fink has been invited to speak at a psychosomatic conference at Columbia University in New York City on Saturday, Oct. 20th. Columbia University will reward medical providers who come to hear Per ...

Meet with your MP about ME – Our Toolkit shows you how!

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Advocates at #MEAction UK are working hard to engage Members of Parliament in the fight for appropriate clinical care and investment in biomedical research for ME. Gaining MPs support in lobbying for change is vital to our success. So whether you are a person with ME, their carer, friend, family ...

Stop Per Fink from Spreading Misinformation about ME: Sign the Petition

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The Danish physician, Per Fink, is traveling to the United States to speak about his unscientific and dangerous idea that myalgic encephalomyelitis (ME) is a psychosomatic illness. Per Fink has been invited to speak at a psychosomatic conference at Columbia University in New York City on Oct. 20th. Columbia University will reward medical providers who come to hear Per Fink ...

Take the NYU Research Survey about your ME Experience

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I’m a researcher at NYU interested in the experiences of people with ME/CFS in the U.S ...

Notes from FFAME Sept. 2018 Call

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Hi: Greetings from FFAME, Friends, Family and Allies of ME/CFS (Myalgic Encephalomyelitis/Chronic Fatigue Syndrome), Welcome: Join us for our second on-line phone or computer meeting. We will be meeting monthly, the first Saturday of the month unless another time is suggested. You can listen in or speak up SATURDAY OCT. 6, 4pm EST, ...

Sign Norway’s Petition: Demand Resignation of Advisory Board Promoting Biopsychosocial Model

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* Nina E. Steinkopf is a ME patient activist and author of the blog www.melivet.com. The petition is addressed to the Norwegian Ministry of Health and Care Services and below is an English translation – for our international supporters. Everyone is encouraged to sign the petition. The management for the National Advisory Unit on ...
Individuals who were lied to and misrepresented by Netflix’s Afflicted include (left to right): Jake, Pilar, Jamison, Jake & Bekah, Jill & Janine

Open Letter Demands Removal of Netflix’s “Afflicted” – Sign the Petition

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On September 18th, more than 40 writers, activists, artists, filmmakers, physicians, and scientists came together to write an open letter to Netflix to request that Afflicted be immediately removed from the service. "We are deeply concerned about its unethical treatment of its subjects and its many factual errors and omissions," states ...

How To Protest HHS with #MEAction

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We will protest the U.S. Department of Health and Human Service virtually, on social media, on Friday, Sept. 14th. We have canceled the in-person protest in Washington, D.C. due to the fact that a hurricane is headed for that area on Thursday. We will reschedule the Washington, D.C. protest for a later date ...

NIH UPDATE: COLLINS WILL MEET WITH #MEACTION REPRESENTATIVES!

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The persistent dedication of our community to fight for our lives continues to yield results. We are pleased to announce #MEAction has secured a meeting with Dr. Francis Collins, Director of the National Institutes of Health (NIH), to discuss the demands our community sent to him in a letter this ...

Stop CDC from Hiring Shoddy Contractor for ME Treatment Guidelines!

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PETITION UPDATE (Tuesday, September 11, 2018) The CDC has posted an updated, competitive bid solicitation for the development of federal treatment guidelines for ME. The community outcry, and over 8,000 petition signatures, protesting the previous rigged, sole-source contract got the CDC's attention. Yet the solicitation is still only open through Thursday, September ...