We only have 17 days left for our End Of Year Fundraiser! Time is flying by! We still have about $100,000 to raise to reach our goal. That is a heavy lift, but we know each donation can make a difference. Can you donate today to help #MEAction Go Boldly through 2025? Donate Today! Now
Volunteers from #MEAction Scotland and Long Covid Scotland talked to over 60 MSPs (Members of the Scottish Parliament) at an Information Stall in the Scottish Parliament from 5th-7th November. Ben Macpherson MSP for Edinburgh Northern and Leith sponsored the stall on behalf of #MEAction Scotland as we aimed to make MSPs aware of the desperate
To: Andrew Gwynne, Under Secretary of State for Public Health and Prevention Subject: Treatment of Very Severe ME email [email protected] Dear Andrew Gwynne, Thank you for being an ally to people with ME (myalgic encephalomyelitis) and Long Covid and committing to ensuring publication of the DHSC ME/CFS Delivery Plan without more delay. We trust your
In the next few weeks, candidates will be knocking on doors seeking votes for the upcoming UK Election. It’s important that candidates from all parties are made aware of the challenges facing people with ME and Long Covid. It can be a little daunting to be unprepared so here are some questions you might want
In Judith Woods’ Comment piece on 2nd February 2024, ‘28-year-old Lauren Hoeve died by euthanasia – to a degree, I understand her pain’ she boldly asserts that a great deal of Lauren’s anguish was ‘psychological’. The writer then belittles the immense pain suffered by people with severe ME, as Lauren did from 2019, as she
Both the UK and Scotland branches of #MEAction will start using updated figures for the prevalence of ME, based on a recent US survey. Unfortunately, all prevalence estimates for ME are of limited accuracy. This is due to a range of factors including, but not limited to, uncertainty around diagnosis, lack of confidence among healthcare
We are writing to express our deep concerns about a segment featured on an episode of Dragons’ Den, which aired on BBC1 on Jan 18th 2024. The episode in question showcased a product “Acu Seeds” that had a back story where the entrepreneur said she “believed they had aided in her recovery of ME/CFS”. This
Medical education resources on ME Thank you for taking an interest in myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS). This page brings together a range of resources to help you keep up-to-date on the latest recommendations and support your patients. CPD Module and Podcast: Learn About ME This free, CPD-accredited learning module aims to support GPs and
As a charity we were pleased to be able to submit a longer response than is possible using the online survey. Below is the text as submitted to the DHSC. (PDF version available here) This response is submitted by #MEAction Scotland, the Scottish arm of #MEAction UK, a not for profit organisation. Our response is
As a charity we were pleased to be able to submit a longer response than is possible using the online survey. Below is the text as submitted to the DHSC. (PDF Version available here) Introduction This response is submitted on behalf of #MEAction UK, a not for profit organisation operating in all regions of the
