#MEAction’s emphasis on campaigning, and philosophy that the biggest changes would come from forcing institutions with power to listen, resonated with me.
Play Play Play Previous Next Join #MEAction’s Campaign to Tell those with Long COVID to #StopRestPace Preliminary studies are now showing that nearly half of people with Long COVID are presenting with ME/CFS. Myalgic encephalomyelitis (ME), also known as chronic fatigue syndrome (CFS), is triggered by infection in up to 80% of cases. Other viral infections have
#MEAction Scotland submitted their petition to the Scottish Parliament in May 2018. In June, Emma Shorter, #MEAction Scotland’s volunteer leading the petition, made a powerful speech to the Petitions Committee describing the desperate need for support for people with ME in Scotland.
The Mayo Clinic recently removed harmful recommendations of Graded Exercise Therapy (GET) and Cognitive Behavioral Therapy (CBT) for myalgic encephalomyelitis (ME) from their website, a win for people with ME and their families. The site still contains problematic language and misleading information, but this recent change could help many individuals seeking care for their ME. For
What a Summer for Advocacy and Education! We know the summer isn’t over yet, but A LOT has been happening with ME advocacy and education in the United States and the United Kingdom, and we want to make sure you are up to date, in the loop, and ready for next steps! National Institutes of Health (NIH)
#MEAction UK has written a letter of complaint to Good Morning Britain in response to recent statements from Dr Hilary Jones on the programme, regarding the rehabilitation of long COVID patients. In his interview with Kate Garraway yesterday, Dr Jones recommended graded exercise as a strategy for those recovering from COVID-19. There is now a
Countries #MEAction USA We cover a lot of ground in the US. State chapters, federal agencies, medical education, and more! Learn about our work and our team. Learn More #MEAction UK In the UK, we focus on NICE, Parliament, #MillionsMissing and medical education. Learn about our programs and campaigns, and stay up to date on
Last week was inspiring and eventful! We had a huge turn-out for our US Advocacy Meeting about the National Institutes of Health’s (NIH) response to long Covid and ME, we co-hosted and organized a seminar for those with long Covid with amazing organizations and activists, #MEAction UK wrote an open letter to the National Institute for Health
#MEAction UK have once again written to the National Institute for Health and Care Excellence (NICE) imploring them to act to safeguard people with ME from harm, after their recent statement cautioning that the recommendation of graded exercise therapy should not be assumed to apply to patients with post-COVID symptoms. Development and publication of the new ME/CFS
#MEAction in the news #MEAction media resources: Press releases | Photos | Videos | Primer for Reporting on ME | Contact General Media Resources: What is ME? | Images Illustrating ME/CFS | Films and books about ME Email [email protected] for more information. There has been a tidal shift in the media’s interest in post-viral illness
