NEWS

New York Magazine’s Intelligencer published an fallacious article last week about Long COVID and ME/CFS in which the author, Jeff Wise, paternalistically argues that graded exercise therapy (GET) and cognitive behavioral therapy (CBT) can successfully treat patients if only the ME and Long COVID communities were open to this possibility. Wise fails to acknowledge the long history of patients willingly undergoing these treatments at the guidance of their doctor, and the subseq

Taking BOLD ACTION with our press outreach has led to national media writing about ME.

At #MillionsMissing Scotland many MSPs pledged their support for people with ME, and now they have a chance to follow up on that commitment. And we need you to let them know about it! Sue Webber, MSP for Lothian, has put forward a motion that asks the Scottish Parliament to recognise the outcomes and recommendations of the stakeholder report on ME commissioned earlier this year - ​​including education of healthcare professionals and development of specialist services.Motions

On Wednesday 28th September, #MEAction Scotland led a successful #MillionsMissing demonstration outside the Scottish Parliament - the first time it’s been held in-person for three years. While it was in some ways a smaller event than #MillionsMissing Scotland was in 2018 and 2019, what it lacked in spectacle it made up for in engagement from politicians and the press.Approximately 120 people with ME, their friends and families joined #MEAction Scotland at the demonstration. A

Following the postponement of #MillionsMissing Scotland, the demonstration has been rescheduled to Wednesday 28th September.#MillionsMissing Scotland will now take place on Wednesday 28th September, from 12.30-2.30pm. We appreciate this isn’t a lot of notice but we are keen to build on the momentum the event has already gained and to hold it while it will still be in the minds of the MSPs who have been invited. All previous plans remain the same. This event will be a smaller,

The #MillionsMissing Scotland demonstration, due to take place on Wednesday 14th, has had to be postponed.Following the death of Her Majesty the Queen, the Scottish Parliament is suspended, which means we won't be able to achieve the aims of the event. We appreciate that it’s disappointing and apologise for any inconvenience caused, particularly to those of you who have been planning your journeys and managing your energy to make it.We're looking at new dates in the last week

Whether or not you can join us in person at this year’s #MillionsMissing, you can help to make it a success by emailing your MSP and asking them to come out, say hello and sign a pledge to support people with ME.#MEAction Scotland will be outside the Scottish Parliament to engage with as many MSPs as possible and make them aware of the need for specialist services that are accessible to every person with ME in Scotland.  MSPs have a duty to support and represent their constit

As we announced in February, the Scottish Government has committed to implementing the new NICE guideline for diagnosis and management of ME. The first step in the process was a Scottish stakeholder review, carried out externally by consultant Blake Stevenson. The report on the review was published in July and #MEAction Scotland supports its findings. We welcome the recommendations, which span healthcare education, service delivery and research. We’re extremely grateful to ev

After many, many months of writing, editing and revising, #MEAction Scotland is finally ready to launch its manifesto! Thank you to all...

After the recent RCGP Annual Primary Care Conference & Exhibition held in Glasgow, it seems appropriate to reflect on the impact of the conference on educating GPs about ME/CFS.

#MEAction Scotland appeared before the Scottish Parliament Petitions Committee on June 7th to give evidence on its petition to review treatment of ME patients in Scotland.

The Time for Unrest event at the Scottish Parliament on 30 th January was an opportunity to raise awareness of Myalgic Encephalomyelitis...

Press Release Details of the Event Millions Missing Edinburgh protest is being held from 1200-1400 on Friday 12th May outside the...