NEWS

The Scottish Government published the updated Scottish Good Practice Statement (SGPS) on ME-CFS on 28th February 2023. The decision to update the Scottish Good Practice Statement, originally published in 2010, was a result of the Scottish stakeholder review of the 2021 NICE guideline on ME/CFS, and its recommendations for implementing the guideline in Scotland. The intention was to use this document as the vehicle to bring Scottish guidance in line with the NICE guideline for

Calls for immediate public release of RECOVER's clinical trial design

#MEAction Colorado’s first legislative effort in Colorado began with an ME/CFS day declaration in the Colorado Legislature on February 25, 2020. Representative Alex Valdez read into the legislative record a proclamation about the presence of and deleterious effects of ME in Colorado. This effort was relatively easy to accomplish and consisted of finding a representative willing to do it. One of our #MEAction CO members lived in his district and Valdez responded by gladly doin

#MEAction and Mayo Clinic win SIDM for diagnostic and treatment improvement at Mayo Clinic Rochester for people with ME/CFS!

#MEAction has written to the NIH expressing our deep concern over the RECOVER Initiative.

After many, many months of writing, editing and revising, #MEAction Scotland is finally ready to launch its manifesto! Thank you to all...

After the recent RCGP Annual Primary Care Conference & Exhibition held in Glasgow, it seems appropriate to reflect on the impact of the conference on educating GPs about ME/CFS.

Press Release Details of the Event Millions Missing Edinburgh protest is being held from 1200-1400 on Friday 12th May outside the...