North Carolina State Chapter

About

#MEAction North Carolina focuses on support and advocacy for those with ME and other post infection complex illness. We re-launched in spring 2023 with new lead Tony Marks, new Facebook moderator Josie Jestis, and new Twitter account manager Elly Brosius.

We welcome members and volunteers throughout NC and neighboring states with a wide variety of lived experience, interests, concerns, talents to share, and/or connections with state government officials. Whether you feel like a pro or you’ve never been to a support group meeting or called an elected official, we need and want you.

As COVID continues to be with us, it threatens to increase the number of North Carolinians with ME/CFS significantly. Circulating SARS-CoV-2 makes it all the more imperative that all states takes action to address ME/CFS and long covid.

Our purpose is to grow a North Carolina coalition of people with ME, similar complex-chronic illnesses, and allies to organize actions, develop outreach, and form a community. ME is a serious condition that has disabled many, cost billions to our economy, and has disrupted family life. We endeavor to help each other cope, to get help for the #MillionsMissing from their schooling, work, hobbies, and life goals.

Our Wins

May 2023: Member Brooke Keaton speaks on National Mall at #MillionsMissing Press Conference

Video: https://www.youtube.com/watch?v=HuyeHvM8Usc

Text: https://medium.com/@sonora.smile/good-afternoon-18c8fa159b0c

Covid Long Haulers Protest in DC: “Pandemics are Chronic” As the COVID-19 public health emergency ends, patients rally for a cure https://www.psychologytoday.com/za/blog/patient-revolution/202305/covid-long-haulers-protest-in-dc-pandemics-are-chronic

In the press

Feb 2023:

“16% of all North Carolinians have long COVID. Here’s an updated guide to the condition.”
https://www.newsobserver.com/news/coronavirus/article272327133.html

Dec 2022:

Features team lead Tony Marks (Pinehurst) and member Brooke Keaton (Charlotte):

“Amid the trials of long COVID, glimmers of hope at UNC clinic:
Some North Carolinians have endured COVID and its long-haul aftermath for two harrowing years. A clinic at UNC keeps up with cutting-edge research and tailored therapies in hopes of finding solutions.”

https://www.northcarolinahealthnews.org/2022/12/05/long-covid-trials/

Dec 2021:

” Charlotte woman still battling COVID-19 symptoms a year after initial diagnosis
Brooke Keaton and her family had COVID-19 last winter.
She never expected symptoms would linger for an entire year.”

https://www.wcnc.com/article/news/health/coronavirus/charlotte-woman-long-covid-19-symptoms-changed-her-life/275-cbc5897c-5d8f-47e2-8fa0-a391d7e6ed26

Upcoming meetings

Monthly support and advocacy meetings are on the 2nd Thursday of the Month at 12pm ET.

For more information including video conference link and call-in numbers please look on the #MEAction Events calendar for our upcoming call and join details!

Contact

Need more information before the next meeting? Find us here:

#MEAction NC Facebook Group
https://www.facebook.com/groups/1517330131691668

Twitter : @MEActionNC
https://twitter.com/MEActionNC

Email: [email protected]

Facebook public page: https://www.facebook.com/profile.php?id=100092724490911