Category: Science

#MEAction Blue Ribbon Fellowship Opens at Bateman Horne

Bateman Horne center is re-opening applications for the #MEAction Blue Ribbon Clerkship. Please read below, the application has changed.    Announcing a clinical clerkship opportunity for first year medical students, med-peds, internal medicine and family practice residents.   We are delighted to announce the #MEAction Blue Ribbon fellowship at the Bateman Horne Center (BHC) with

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Demystifying the Diagnostic Criteria for ME and Related disease

  Additions and corrections Initially we stated that ICC requires three months before diagnosis; this was in error. ICC specifies that the disease can be diagnosed immediately. This has been corrected in the text and within the pdf comparing criteria. One reader pointed out a very useful misconception regarding different criteria for different purposes, which

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Meet the Scientist: Dr. Dane Cook

Dane Cook is Professor of Kinesiology at the University of Wisconsin and Director of the March Center for Research in Exercise and Movement. He is also a member of the US. National Institute of Neurological Disorders and Stroke Council Working Group for ME/CFS Research Roster. How did you get involved with the area of ME research? My first

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ME Services in the UK Not Fit for Purpose

A recent survey conducted by #MEAction UK found that UK specialist myalgic encephalomyelitis (ME) services are not fit for purpose. Areas investigated included: Management strategies Experience attending a clinic Cognitive behavioural therapy (CBT) Activity management [maxbutton id=”23″ url=”http://www.meaction.net/wp-content/uploads/2019/10/Your-experience-of-ME-services-Survey-report-by-MEAction-UK.pdf” text=”Read the survey report here” ]   The survey was conducted to provide evidence to the National

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NICE Called for Evidence: Read #MEAction UK’s Response

The National Institute for Health and Care Excellence (NICE) are re-writing their guidelines on ME. As part of this they issued a call for evidence relating to three topics. #MEAction UK has now submitted our full response, collecting studies, surveys and data from multiple sources. [maxbutton id=”23″ url=”http://www.meaction.net/wp-content/uploads/2019/10/MEAction-submission-to-the-NICE-ME-CFS-call-for-evidence-consultation.pdf” text=”Read the full submission” ]   #MEAction

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Cochrane Analysis: What’s Here, What’s missing, Conclusions

Exercise therapy for chronic fatigue syndrome Lillebeth Larun, Kjetil G Brurberg, Jan Odgaard-Jensen, and Jonathan R Price Editorial group: Cochrane Common Mental Disorders Group As of October 2, 2019, the Cochrane review of GET in ME has been re-issued after the evidence was reassessed. You can read the whole review and a quick summary by

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Cochrane Releases Problematic Review on ME/CFS

The revised Cochrane Review on ME/CFS was released today, October 2, 2019. We will share a more in-depth analysis shortly.  However, we must immediately emphasize that #MEAction does not support graded exercise therapy due to serious risk of harms to people with ME, and that we are deeply concerned about the conclusions of this review. 

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Patient Registry is the Key to Achieving Big Data for M.E.

We were excited to see #MEAction’s Director of Scientific and Medical Outreach, Jaime Seltzer, give a talk about “Big Data and myalgic encephalomyelitis (ME)” yesterday at Stanford University.  Researchers and clinicians have gathered at Stanford to discuss the latest and ongoing research into ME for the Third Annual Working Group Meeting on the Molecular Basis

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Attend the 3rd Annual Community Symposium on Molecular Basis of ME/CFS – Register to Attend or Watch

Stanford University is holding its 3rd Annual Community Symposium on the Molecular Basis of ME/CFS at Stanford University on Saturday, Sept. 7, 2019, sponsored by the Open Medicine Foundation. Patients, caregivers and the community are encouraged to join the community symposium to learn about the most current research, and to meet the scientists and clinicians in person. Registration closes on Aug.

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Researchers, Clinicians and Patients: Submit a Manuscript on ME to WORK Journal

Researchers, patients and clinicians are invited to submit a manuscript for consideration in a special issue of WORK: A Journal of Prevention, Assessment and Rehabilitation (IOS Press), which will focus exclusively on the area of myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS). Submissions are due Sept. 13, 2019. Scope The focus of this special edition is to examine how

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