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Category Archives: United Kingdom

UK: More than 250 GPs Attended ME Workshop at the RCGP Conference

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A week after the recent RCGP Annual Primary Care Conference & Exhibition held in Glasgow on the 4th – 6th October, it seems appropriate to reflect on the impact of the conference on educating GPs about myalgic encephalomyelitis (ME). The RCGP Conference is the must-attend event of the year for GPs ...

Meet with your MP about ME – Our Toolkit shows you how!

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Advocates at #MEAction UK are working hard to engage Members of Parliament in the fight for appropriate clinical care and investment in biomedical research for ME. Gaining MPs support in lobbying for change is vital to our success. So whether you are a person with ME, their carer, friend, family ...

UK: ME gets Attention at General Practitioners Conference

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Volunteers from #MEAction Scotland will attend the annual conference of the Royal College of General Practitioners (RCGP) in Glasgow this year from 4th to 6th October! Forward ME, an umbrella group of UK charities and voluntary organisations, is hosting a stand in the conference exhibition centre. A workshop on myalgic ...

UK Coordinator Joins #MEAction Team

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#MEAction is thrilled to welcome aboard UK Coordinator, Espe Moreno, for the UK coordinator position this fall. Based in London, Espe previously worked for the Time for Unrest impact campaign in the UK, overseeing social media, screening events, and various advocacy efforts. Espe is a marketing, film and communications professional ...

#MEAction UK Activist Speaks at the International Deaf & Disabled People’s Solidarity Summit

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Article written by Sian Leary and Nathalie Wright | Photo credit: Paula Peters On 22nd July, Deaf and Disabled people from around the world gathered in East London in solidarity to discuss countering oppression and coordinating resistance, especially in the light of austerity and the rise of the far right.   Nathalie Wright ...

NICE Guideline for ME: #MEAction UK Responds to Second Draft Scope

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The National Institute for Health and Care Excellence (NICE) is in the process of updating its guideline for Myalgic Encephalomyelitis by October 2020. #MEAction UK has issued a response to the second draft scope for the ME/CFS Guideline.  The scope is a document which will provide the framework for the new ...

What next for the NICE guidelines?

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Parliament Plays NICE #MEAction UK was thrilled to watch the longest ever UK parliamentary debate about ME on 21st June, after working so hard alongside so many others to make it happen. The three hour debate in Westminster Hall about treatment and research reflected a seismic shift in political understanding of ME ...

Volunteer of the Month: a Scottish Trio

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This month we want to honor the work of three women with #MEAction Scotland - Emma Shorter, Kim Gurav and Janet Sylvester -  who have done an incredible job advocating for people with myalgic encephalomyelitis. The partnership began last January when Kim and Janet wanted to organise a screening of Unrest, which ...

Next steps: a letter to our community

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Hi everyone, I just wanted to take a moment to comment on some of the confusion and concern of these last few weeks and offer some steps forward to help clarify how #MEAction works, what our core value are, and how we plan to make concrete our policy positions going forward. We ...

Westminster Hall debate could be a ‘turning of the tide’ for ME

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Today was a turning of the tide for Myalgic Encephalomyelitis (ME) as 26 MPs attended a Westminster Hall debate on treatment and research for ME.  MPs called for the immediate removal of Graded Exercise Therapy (GET) from the NICE guidelines, as patients have consistently reported being harmed from attempting to undergo this ...