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Category Archives: Australia

Australia: Mason Foundation Explores Funding ME and CFS Biobank

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Most of Australia’s medical research funding for ME and CFS comes from the Mason Foundation, who are currently looking at whether they will fund a biobank or a patient registry for Myalgic Encephalomyelitis and/or chronic fatigue syndrome samples. Recently the Mason Foundation updated stakeholders on the decision-making process. This is important ...

It’s Not “All in My Head”: Living with a Misdiagnosed Disability Five Years on. Volume Three

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Read Volume One and Volume Two.  Day #5 cont’d. My partner and I hit a point of exhaustion. From him having the flu, my turn in symptoms and the lack of wheelchair friendly locations, creating your own fun on a holiday is an easy concept when your cup is full but both our ...

Who is advising the Australian government on ME and CFS research and treatment guidelines?

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Australian research is underfunded and the government’s clinical guidelines are outdated so the Australian government's ME and CFS advisory committee is welcomed. It provides an important opportunity to call on the government to fund biomedical research and to give Australian doctors desperately needed clinical guidance. However, there are mixed perspectives ...

Just Invisible: Medical Access Issues for Homebound/Bedridden People

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Australian Ricky Buchanan has written a much-needed report about the issues facing bedbound and homebound people in getting access to medical care ...

The Global Impact of #MillionsMissing

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The impact of #MillionsMissing 2018 was phenomenal. Protestors took to the streets in 100 countries across the world with demonstrations taking place in North America, South America, Europe, the United Kingdom, South Africa and Asia. Along with people taking action from home, there was a total of 300 visibility actions. More ...

Australian Parliament Recognises Urgent Need for Biomedical Research for ME

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The Myalgic Encephalomyelitis (ME) and chronic fatigue syndrome (CFS) patient and research communities are delighted the Australian parliament officially recognise the urgent need for biomedical research in the field, passing a motion in the Senate to mark International ME and CFS Awareness Day ...

Australia Announces a New ME/CFS Advisory Committee

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Australia's National Health and Medical Research Council (NHMRC), the Australian equivalent of the NIH, has announced the establishment of an ME/CFS Advisory Committee to advise NHMRC's CEO, Professor Anne Kelso, on current needs for research into ME/CFS, as well as clinical guidance on the diagnosis and treatment of the illness ...
graph showing differences in activin

Australian scientists publish study showing potential biomarker for ME

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Scientists in Canberra and Melbourne have just published a study claiming to have found that activin B is a biomarker for Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS). Participants with ME/CFS were recruited using the Canadian Consensus Criteria ...

Australia University will Study Effects of Xbox on Physical Activity in ME/CFS Patients

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The University of South Australia will begin a research study that looks at how active video gaming can increase physical activity in adults with Chronic Fatigue Syndrome/Myalgic Encephalomyelitis. The study has no set research criteria, despite studies that show 2 out of 5 patients are misdiagnosed with CFS/ME in Australia ...

Australian government seeking expert advice on ME and CFS research grants

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Australian Senator Scott Ludlam asked about the progress of proposals to research ME and CFS and what can be done to educate GPs to prevent harmful treatments ...