Author: Courtney Alexander Miller

Help Simmaron Research AMPlify Therapies for ME!!

Simmaron Research is conducting a one-of-a-kind study to analyze data from ME/CFS patients who respond to treatments like Ampligen®, IVIG, and cidofovir, and we need your help funding this data analysis! Our goal is to publish peer-reviewed data to stimulate treatment trials and inform rigorous trial design ASAP!

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Positive Answers to Initial Questions re NIH Clinical Center Protocol

Editor’s note: This is a clarification on the NIH’s earlier, accidental release of the intramural study protocol, which listed the Reeves definition as the sole definition of the new study. Robert and Courtney’s summary of their conversation has been confirmed by multiple sources within the patient community, including #MEAction. Robert and I had a well-timed

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Help Simmaron Fund the Rise of ME/CFS Research!

Simmaron Powers Change in 2015! 2015 marks a powerful turning point for ME/CFS patients, and it’s all happening because of you! Patients, advocates and researchers have worked tirelessly to elevate our disease at the U.S. National Institutes of Health. On October 29, Dr. Francis Collins, Director of NIH, announced promising changes to the federal research

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NIH Funding for ME/CFS extramural research will increase

From Bob and Courtney Miller: We are excited to share news that the NIH has elevated its research approach to ME/CFS with important structural changes the patient community has been asking for. NIH announced today that ME/CFS will become housed in the National Institute for Neurological Diseases and Strokes, moving it out of the Office

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Letter to Burwell and Collins Demands Funding Equality

Uniting the ME/CFS community is not easy, but it has never been more important than right now. One thing we all agree on is the urgent need for vastly increased funding at the National Institutes of Health, our nation’s scientific research machine. When two federally funded reports told NIH that there was an “urgent need”

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