We’re fighting to raise awareness. We’re fighting for equal investment in research and access to care. And we need your help! Here’s how to get involved.

Support & Advocacy Groups

Take action for our friends and loved ones with ME.

Friends, Family and Allies for ME: FFAME (Friends, Family, and Allies for ME) is a network of individuals who are friends, family, or otherwise allies to people with ME. FFAME has two aims – to support caregivers of people with ME, and to bring healthy allies into the advocacy work.

Living with ME Support Group: Join the Living with ME Support Group on Facebook to learn about the disease from people who have ME.

All recommended groups: #MEAction Friends, Family and Allies | #MEAction Global | #MillionsMissing | Time for Unrest | #MEAction USA |#MEAction UK |#MEAction Network Australia |Join a local advocacy group | View all Facebook groups

Talk to a Community Organizer

What to learn more about getting involved with #MEAction? Need support for your advocacy work? Want to discuss an idea for a new initiative? Sign up for a 15-minute appointment with Ben HsuBorger, #MEAction’s community organizer.



We are always looking for patient volunteers and healthy ME allies to join our team. If you are interested in helping, please get in touch via this form.



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