We’re fighting to raise awareness. We’re fighting for equal investment in research and access to care. And we need your help! Here’s how to get involved.
Join the Community
Friends, Family and Allies for ME:FFAME (Friends, Family, and Allies for ME) is a network of individuals who are friends, family, or otherwise allies to people with ME. FFAME aims to bring healthy allies into the advocacy work. Join our Facebook Group, and participate in periodic calls. Email us anytime with questions or to join the email list at FFAME@meaction.net.
For Caregivers: #MEAction has launched a Caregivers Support Group dedicated to the experience and needs of caregivers of people with ME. We have active discussions on our Facebook Group and host monthly video-conferencing calls. Email us anytime with questions or to join the email list at firstname.lastname@example.org.
Sign your name. We already have campaigns underway lobbying our representatives to address the crisis of ME. You can take immediate action by signing a petition or contacting your representative with our current requests. (We already have drafted the email for you – all you have to do is personalize the text, sign your name and send. See our list of current actions.)
Engage in our projects. Contribute to MEpedia – a crowd-sourced encyclopedia about ME.
Subscribe to our email list and receive information about advocacy action alerts you can help support and other ways to get involved.
Volunteer. We are always looking for patient volunteers and healthy ME allies to join our team and contribute your expertise and skills. If you are interested in helping, please get in touch via this form.
Learn more about our work. Make an appointment to speak with our community organizer or email us at email@example.com.