August 2, 2016

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Day: August 2, 2016

Quick Update: #MillionsMissing Meeting with Dr. DeSalvo

August 2, 2016 6 Comments

Last week, MEAction announced that Jen Brea, Terri Wilder, Carol Head, Jennie Spotila, and Mary Dimmock would be meeting with Dr. Karen DeSalvo, Assistant Secretary of Health on August 1. The purpose of that meeting, which happened yesterday, was to impress upon Dr. DeSalvo how woefully inadequate HHS’s response to this disease has been and

SMCI Engaged with NIH Officials to Further Appropriate ME/CFS Funding

August 2, 2016 2 Comments

On May 24, 2016, the National Institutes of Health (NIH) released the first ever Request for Information (RFI) regarding ME/CFS, requesting submissions addressing new research strategies for the disease. Solve ME/CFS Initiative (SMCI) submitted a unique and pointed response to this RFI in the form of an imitation funding announcement.