Category Archives: Country

Thank Senator Markey for Sponsoring the Congressional ME Briefing

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Back in February 2017, Senator Ed Markey (D-MA)  publicly announced at a packed town hall meeting that he would advocate for ME. A few short months later, he did just that! His first act as an ME advocate was to sponsor a Congressional Briefing on Capitol Hill on May 18th ...

City Proclamation for ME: How-To Guide and Case Study

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Timbre Livesay and Mary Dimmock contributed to this article. This is an outline of the steps a California ME advocate, Mark Camenzind, took for getting city proclamations for ME. Below the steps is a template you can use for your own city proclamation. Feel free to adapt either for your city's ...

State Resolution for ME: How-to Guide and Case Study

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Rivka Solomon and Mary Dimmock contributed to this article This document includes the steps ME advocates are taking to get a State Resolution for ME passed in their State House (aka State Assembly or State Legislature). It also includes a draft template of a resolution for you to use in your state. Why ...
Meet the Millions Missing – Protest to Raise Awareness of ME in Scotland

Meet the Millions Missing – Protest to Raise Awareness of ME in Scotland

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Press Release  Details of the Event Millions Missing Edinburgh protest is being held from 1200-1400 on Friday 12th May outside the Scottish Parliament to raise awareness of Myalgic Encephalomyelitis  (ME - sometimes called Chronic Fatigue Syndrome) and the devastating impact it has on tens of thousands of people in Scotland.  Protests are ...

Impact of proposed NIH and CDC cuts on ME Research

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How would the proposed NIH and CDC Budget Cuts affect ME research? News organizations recently reported that President Donald Trump’s administration has asked the House and Senate to approve budget cuts for 2017 of $1.232 billion for the National Institutes of Health (NIH) and $314 million for the Centers for Disease ...

The Sleepy Girl Guide to Social Security Disability (U.S.)

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Renegade disability guide for Myalgic Encephalomyelitis ...

Engaging People with ME as Partners in the CRCs

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The National Institute of Health’s RFA for ME/CFS Collaborative Research Centers breaks new ground. For the first time, the funding agency is strongly encouraging researchers “to establish partnerships with patients groups and solicit their input” as part of their research plan. #MEAction assembled a team of volunteers to assist researchers in ...
graph showing differences in activin

Australian scientists publish study showing potential biomarker for ME

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Scientists in Canberra and Melbourne have just published a study claiming to have found that activin B is a biomarker for Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS). Participants with ME/CFS were recruited using the Canadian Consensus Criteria ...

Australia University will Study Effects of Xbox on Physical Activity in ME/CFS Patients

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The University of South Australia will begin a research study that looks at how active video gaming can increase physical activity in adults with Chronic Fatigue Syndrome/Myalgic Encephalomyelitis. The study has no set research criteria, despite studies that show 2 out of 5 patients are misdiagnosed with CFS/ME in Australia ...

Three ways to help Unrest change the story

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1) Sign up Sign-up to receive Unrest email updates, so you know when the film is coming to a city near you, your family, or your friends! Help us use the film to create a circle of allies, build the movement to fight for equal treatment, and find a cure. 2) Get social Join the ...