Category Archives: Country

What Did the Parliamentary Unrest Event Achieve?

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Tuesday 24th Oct., 2017 will long be remembered as a significant day for anyone involved in ME politics ...

SMCI Holds ME/CFS Research Discovery Forum

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The Solve ME/CFS Initiative (SMCI) held its second annual Discovery Forum Saturday October 14. The forum dubbed “a new era in ME/CFS research” brought together leaders from academia, government agencies, private clinics, biotech and research institutions to discuss developments in the field of ME/CFS research ...

The End ME/CFS Tour in Boston w/ Linda Tannenbaum

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Open Medicine Foundation (OMF) president, Linda Tannenbaum, will give a special lecture on the state of ME/CFS research at Newton-Wellesley Hospital in Boston, MA, on Saturday, November 4, 2017 from 1:00 to 3:30 pm. The event is sponsored by the Massachusetts CFIDS/ME & FM Association. Open Medicine Foundation® (OMF) is the leading research organization working to end ME/CFS and ...

The End ME/CFS Tour in NYC w/ Linda Tannenbaum

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Open Medicine Foundation (OMF) president, Linda Tannenbaum, will give a special lecture on the state of ME/CFS research at Mount Sinai West Hospital in New York City on Wednesday, November 1, 2017 from 6:30-8:00 pm. The event will be moderated by Terri L. Wilder, #MEAction New York Activist. Open Medicine Foundation® ...

A New Era for ME/CFS Research – SMCI’s Discovery Forum

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Announcing Discovery Forum 2017: A New Era in ME/CFS Research ...

Breaking News: NIH Announces Results of ME/CFS Program Awards

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The National Institutes of Health (NIH) announced today the outcome of its ME/CFS (myalgic encephalomyelitis/chronic fatigue syndrome) competitive consortium grants, marking an unprecedented and tangible commitment from the federal agency to the disease. The NIH announced four recipient teams; one Data Management Coordination Center (DMCC) and three Collaborative Research Centers ...

#MEAction Launches First New York Organizing Meeting

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With the excitement and attention around the theatrical premiere of 'Unrest' in NYC this month now is the time to take ME advocacy and activism to a new level in New York. Over the past year there has been increasing progress at the state level. Last fall a #MillionsMissing protest was ...

NIH announces centers for ME/CFS research

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The NIH announced the grants for three Collaborative Research Centers (CRC) and a Data Management Coordinating Center (DMCC) that will work together as a consortium for ME/CFS. These grants will be managed by National Institute of Allergy and Infectious Diseases and National Institute of Neurological Disorders and Stroke. The total cost of the ...

These Dangerous ME/CFS Exercise And Symptom Denial Trials Must Come To An End

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The most morally generous description I can give to the majority of exercise and symptom-denial medical trials performed on ME/CFS patients is 'torture born from ignorance'. Even if you were to describe the evidence of harm as a result of the treatments explored by these trials as preliminary and often ...
Parliament EDM 271 Urges NICE to Update Guideline on ME

Parliament EDM 271 Urges NICE to Update Guideline on ME

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UPDATE On 20th September, NICE overturned the original proposal and announced it would review its guideline on ME. This is great news but means we need to double our efforts to make sure that the new guideline is robust enough to protect and help people with ME for generations to come ...
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