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Medical Textbooks Earn a Failing Grade in ME/CFS – 2 of 2

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Note: This is a two-part article in our series on education in ME/CFS.  Part 1 covered UpToDate, the University of North Texas, Michigan State University, and the University of Nebraska; Part 2 covers the University of California–San Francisco, the University of North Carolina, and other best sellers.  To read Part ...

2016 Invest in ME Conference write-up on PR

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Phoenix Rising’s Mark Berry was at the recent Invest in ME conference and has written an excellent report: A New Decade of ME Research: The 11th Invest in ME International ME Conference 2016 As the article is quite long, here are some tasters (my summaries, with quotes from Mark’s article) to whet ...

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Solve ME/CFS Initiative Update

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Last year was a pivotal point in the battle against ME/CFS. Game-changing reports from the Institute of Medicine and the National Institutes of Health’s Pathways to Prevention Workshop delivered long awaited public credibility for our disease. The federal ME/CFS landscape has shifted, and there is newfound openness and awareness among ...
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 The alchemy of turning frustration into power

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when we feel down, or angry, or frustrated or powerless, let's refocus a little of our precious energy to move our community forward towards better research, understanding and treatment. Let's collate all the best resources from our community — the studies, the blogs, the articles, the doctors, the researchers, the ...
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New research: gut microbes identify 83% of patients

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Signs of bacterial infection and inflammation Recently, a team of researchers led by Ludovic Giloteaux of Cornell University measured the levels of several biomarkers in 49 ME/CFS patients and 39 controls, including LPS to measure bacteria in the bloodstream and CD14 and C-reactive protein to measure inflammation.  Researchers also measured the ...
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Tuller slams “terrible” PACE in podcast

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Dr. David Tuller has provided an overview and update of his work criticizing the PACE trial in a podcast interview with Professor Vincent Racaniello on This Week in Virology (TWiV). Dr. Tuller, of University of California, Berkeley, published a series of damning critiques of the study on Professor Racaniello’s Virology Blog, starting ...
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Advocates and scientists respond to NIH’s Request for Information

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Leading scientists, organisations and patients around the world have responded to the US National Institutes of Health’s (NIH’s) Request for Information to guide its research strategy on ME/CFS. It is the first time that the NIH has asked for public input on the disease. The request, made in May, drew public ...
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QMUL spend £250,000 on PACE data tribunal

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Queen Mary University of London (QMUL) have revealed that they spent £250,000 on legal fees in the recent tribunal concerning the release of anonymised data from the PACE trial. Their statement was made in response to a query made under the Freedom of Information Act by Mr. John Peters. QMUL paid ...

 

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