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Parliament EDM 271 Urges NICE to Update Guideline on ME

Parliament EDM 271 Urges NICE to Update Guideline on ME

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UPDATE On 20th September, NICE overturned the original proposal and announced it would review its guideline on ME. This is great news but means we need to double our efforts to make sure that the new guideline is robust enough to protect and help people with ME for generations to come ...

As Summer Ends, A Warning to NIH

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Johanna Kaiser, a person with ME, sent this open letter over Labor Day to the director of the National Institutes of Health (NIH), Dr. Francis Collins, and the director of National Institute of Neurological Disorders (NINDS) ...

Tools to Help Children with ME/CFS Succeed

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New resources are available to help parents and educators provide accommodations and resources to help children succeed in school ...

First of its kind! Nevada delegation sends letter to NIH on ME/CFS

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On September 8th, Nevada's full Congressional Delegation sent a letter to Director Collins of the National Institutes of Health urging him to "strengthen and accelerate" its work on ME/CFS ...

Senate Appropriations Committee Recommends Restoring ME/CFS Funding

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On Sept. 7, the ME/CFS community breathed a sigh of relief as the Senate Appropriations Committee recommended restoring the $5.4 million Chronic Fatigue Syndrome program under the CDC ...

Did you see ME/CFS on PBS?

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A national, televised program on ME/CFS aired this month on the show, “The White House Chronicle,” with host Llewellyn King ...

Finding Connection within M.E.

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During the initial years of having Myalgic Encephalomyelitis (ME), it is common to watch all your interpersonal ties slowly dissolve. Being in my early 20s, those around me craved excitement, adventure, and new experiences. Those things I desired too, but little of which I could do or offer in my ...


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La desaparición de mi capacidad de leer extensamente es una de mis mayores pérdidas. Lo intento, pero las páginas se petrifican. Ahora debo contentarme con unos pocos párrafos; algunos días con un par de líneas ...