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Join the #MillionsMissing Art Competition Part-Two

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  Congratulations to Louise McAllan for her beautifully knitted #MillionsMissing wool hat. Here is her pattern and instructions; we encourage all knitters everywhere to use her pattern to promote #MillionsMissing.   For all you artists itching to create your own #MillionsMissing art, now is your chance. We received so many requests from people ...

#MillionMissing Activists Meet with HHS for Follow-Up

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As reported in the August 5 update on the meeting between HHS and advocates for ME on August 1, Assistant Secretary of Health Dr. Karen DeSalvo had committed to follow up on specific actions and meet again in October. On October 24, Jen Brea, Terri Wilder, Carol Head, Jennie Spotila, and ...


Jen Brea’s ‘Unrest’ to Debut at Sundance Film Festival

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After years of work and hundreds of hours of footage, Jen Brea's documentary, now entitled Unrest, is ready for its debut.  The film will be shown at the Sundance Resort as part of the Sundance Film Festival in January 2017; Brea's Unrest was selected to premier as one of the ...
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#MEAction US protest demands

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These demands were originally issued for the May 25, 2016 MillionsMissing demonstrations. Minor revisions were made to the demands in November 2016 to reflect community input on the definition, the primer, the name, and the need for improvements in clinical care.   You can access and download a pdf of the ...

Thoughts on NIH speakers from Dr. Zaher Nahle

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It was truly unsettling to learn about the news of an invited speaker lecturing at the National Institutes of Health (NIH) on November 9, 2016. For decades, the speaker has been a staunch adversary of studying the pathophysiology of ME/CFS and refuses to acknowledge its root cause. I have written ...

ME activist calls on NIH to “get back to science” at Shorter Talk

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M.E. denier, Edward Shorter, called CFS the modern version of hysteria in a presentation chronicling the history of 19th century hysteria before approximately 20 people at the National Institute of Health (NIH) on Nov. 9th. Shorter is a professor of the history of medicine at the University of Toronto. In his ...

Dr. Komaroff’s Webinar Provides Hypothesis, Hot Research and Hope

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Dr. Komaroff’s Webinar Provides His Hypothesis, Hot Research and Hope Link to webinar: by Darla N. In a webinar the Solve ME/CFS Initiative hosted on Nov. 10, Dr. Anthony Komaroff presented his hypothesis on ME’s cause and five popular areas of current ME research. Komaroff, Simcox-Clifford-Higby professor of medicine at Harvard Medical School ...
L0002360 Photograph: `Phrenology', a ceramic head
Credit: Wellcome Library, London. Wellcome Images
A ceramic phrenological
By: L.N. FowlerPublished:  - 

Copyrighted work available under Creative Commons Attribution only licence CC BY 4.0

Shorter invited to NIH to share perspective of disease denialism

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On Thursday, November 3, Dr. Maureen Hanson shared a screenshot revealing a planned talk on November 9th at the NIH by the historian Dr. Edward Shorter titled "Chronic Fatigue Syndrome in Historical Perspective." Dr. Shorter has a long history of treating patients with ME with disdain and denial, as illustrated in an ...