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Is the Dutch Health Council really going to Ignore 10,000 signatures?

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Keep up-to-date on this issue by following the Twitter accounts @mecvsnieuws and @ME_gids More than 10,400 signatures for the Dutch petition ‘ME is not MU(P)S’ (Medically Unexplained (Physical) Symptoms) was presented to Prof. van Gool, president of the Dutch Health Council three weeks ago on September 18th. The petition aims to hold ...

A New Era for ME/CFS Research – SMCI’s Discovery Forum

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Announcing Discovery Forum 2017: A New Era in ME/CFS Research ...

7 Reasons for Why It’s #TimeForUnrest

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The #TimeForUnrest campaign has officially kicked off, and these are some of my reasons for for why it’s #TimeForUnrest. 1. People are dying ...

Individual Community Symposium Talks Available on OMF YouTube Channel

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Watch individual presentations and Q&A from the Community Symposium on the Molecular Basis of ME/CFS ...

NIH announces centers for ME/CFS research

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The NIH announced the grants for three Collaborative Research Centers (CRC) and a Data Management Coordinating Center (DMCC) that will work together as a consortium for ME/CFS. These grants will be managed by National Institute of Allergy and Infectious Diseases and National Institute of Neurological Disorders and Stroke. The total cost of the ...

These Dangerous ME/CFS Exercise And Symptom Denial Trials Must Come To An End

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The most morally generous description I can give to the majority of exercise and symptom-denial medical trials performed on ME/CFS patients is 'torture born from ignorance'. Even if you were to describe the evidence of harm as a result of the treatments explored by these trials as preliminary and often ...
Parliament EDM 271 Urges NICE to Update Guideline on ME

Parliament EDM 271 Urges NICE to Update Guideline on ME

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UPDATE On 20th September, NICE overturned the original proposal and announced it would review its guideline on ME. This is great news but means we need to double our efforts to make sure that the new guideline is robust enough to protect and help people with ME for generations to come ...

As Summer Ends, A Warning to NIH

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Johanna Kaiser, a person with ME, sent this open letter over Labor Day to the director of the National Institutes of Health (NIH), Dr. Francis Collins, and the director of National Institute of Neurological Disorders (NINDS) ...

 

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